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Fibro getting worse?

Friday, January 28, 2011

Everywhere I read, it says that fibromyalgia doesn't get worse. Well, my symptoms have certainly changed and my life has gotten worse. Picky, picky.

My exhaustion has increased exponentially. And my pain is gone. Go figure. Pain is the main symptom of fibromyalgia. So, what's going on? I believe my fibromyalgia has morphed into CFIDS. Can't prove it - no tests, but I've had to lay down for half of the day or I'll fall down. Especially after going out of the house for a period of time.

So, I have to adjust my life to this new symptom. I've already given up Girl Scouts, any outdoor activities, Red Cross volunteering. But I refuse to crawl into bed and stay there. So I'm hanging onto being a hospice volunteer and meeting with a widow weekly. I'm also going to try to visit my grandkids weekly as long as I have the spoons to survive their high energy play.

I'm even thinking about being a library volunteer - simply going in and straightening book shelves. That shouldn't be too demanding, other than having to stand for 30 minutes.

I will not give up this fight. I will have a life.
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Member Comments About This Blog Post
  • MUSIC66
    nancy that good your not giving up .i will prayer for you.
    3558 days ago
  • DEE107
    I know we have flare ups and just had one and it last a while too ugh hope you feel better soon
    3559 days ago
  • JAZZIELORI
    You are such a wonderful person..looking to help someone when you aren't feeling all that well...I tell you I am surrounded by walking miracles Nancy! You inspire me..as do our mutual Sparklers..they don't take no for an answer...they still want to give back...you still want to give back and that alone makes me think your a saint!!
    HUGS!!
    Lori
    3559 days ago
  • RURAL3
    I commend you for your great attitude and strength. My prayers are with you.
    3561 days ago
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