Fibro getting worse?
Friday, January 28, 2011
Everywhere I read, it says that fibromyalgia doesn't get worse. Well, my symptoms have certainly changed and my life has gotten worse. Picky, picky.
My exhaustion has increased exponentially. And my pain is gone. Go figure. Pain is the main symptom of fibromyalgia. So, what's going on? I believe my fibromyalgia has morphed into CFIDS. Can't prove it - no tests, but I've had to lay down for half of the day or I'll fall down. Especially after going out of the house for a period of time.
So, I have to adjust my life to this new symptom. I've already given up Girl Scouts, any outdoor activities, Red Cross volunteering. But I refuse to crawl into bed and stay there. So I'm hanging onto being a hospice volunteer and meeting with a widow weekly. I'm also going to try to visit my grandkids weekly as long as I have the spoons to survive their high energy play.
I'm even thinking about being a library volunteer - simply going in and straightening book shelves. That shouldn't be too demanding, other than having to stand for 30 minutes.
I will not give up this fight. I will have a life.