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Sleepless nights

Friday, May 27, 2011

It's 3:36 in the morning and I am still awake. Not because I can't sleep...but because my mom has COPD and has to sleep with a bi-pap. She is in the final stage and has gotten progressively worse the last 3 months. In and out of the hospital and at one point my sister, niece and I even went to the funeral home to go over things. Thankfully, God wasn't ready for her yet so she's still with us.
We were told that if she doesn't sleep with the bi-pap that she will be back in the hospital much sooner (we've been 4 times since Feb 19th) and most likely back on the ventilator.
I use a C-pap and know how frustrating the masks can be. Fortunately, I've been able to start using the nasal canula. Mom doesn't have that option though. She has to have the full mask. It leaks so much it drives us both crazy. Me more than her because she can sleep through it. This is why I have sleepless nights! I stay up for hours after she goes to sleep so I can keep checking her every 15 minutes to see if it's OK or needs to be adjusted again.
This is not good with my fibromyalgia but it's all I know to do right now. I just take naps during the day. She typically can't keep it on all night so after about 5 hrs takes it off. Then..I go to sleep. Now, if I could just get her to go to bed before midnight it would be nice. Many nights it's 1:00 or 1:30.
The positive side to this is that I get to get on SparkPeople and post and get my points! Everybody have a great Friday!
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Member Comments About This Blog Post
  • TELLITFORWARD
    It's so hard to watch our parents as they near their end of life on this earth. I pray she is a believer, and is not angry or bitter. My mom is like that right now.
    I live 1300 miles from my mom, so can only talk to her and contribute some cash for needs. Your attention to your mom is so dear. Yes, many offspring would rather not be bothered. When you say goodbye to her till you meet in Heaven, you won't be guilty, wondering if you should have done more. That is a comfort.

    3566 days ago
  • DAWNWATERWOMAN
    sorry that you're not getting enough sleep. It's so important to our health. I'll keep both you & your mom (and the rest of your family) in my prayers. emoticon emoticon
    3567 days ago
  • GRAMMAP1
    Lack of sleep can cause sooo many problems. Thank you for caring about your Mom so much. Many children these days neglect parents. emoticon emoticon emoticon Jane
    3570 days ago
  • no profile photo CD2036709
    My dh sleeps with a CPAP machine. He has a new type mask that doesn't do the leak bit and we both sleep a lot better. Maybe you 2 should go to the place you got yours and have her properly fitted for the better fitting one. His old ond did the leak bit and after cataract surgery, you cannot have air blowing into your eyes.
    3571 days ago
  • BOVEY63
    God bless you for being there for your mom! Prayers for your family.
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    3571 days ago
  • DUNNIKIN
    Oh my goodness, what a challenge. I hope you can at least resolve the leaky mask issue, so you can worry a tad less, and get a little sleep.
    3571 days ago
  • SLEEPYNURSEMOM
    I am sitting here in a sleep lab doing a titration on a patient with advanced COPD right now in a similar situation. It is never an easy thing, and you are blessed to have family to see this through with you. The nasal masks work great if you are able to keep your mouth closed during the night. The full face masks can be difficult to fit, but it is worth the effort to try to get a good secure fit. Have you had the DME come and assist with mask adjustments? That is part of their job and they should be more than willing to come and assist with this. Simple small adjustments can make the leaks stop, even at obvious high pressures. The main thing is that you are doing your best at taking care of your mother, and just remember that 4 hours is considered therapeutic. If your mom can make it five hours at a stretch, then maybe another 2-3 hours later, she should be in pretty good shape. Try to take some time for you. Get a break every now and then, even if it is just a couple of hours to go for a drive or to read a book or go visit a friend. There are some respite care services if you can find them in your area, where someone else can come and sit for the night or day for a fee of course, but sometimes a short break can be worth it to return rested and ready to continue... caregiver role strain is very hard on your health... and not sleeping well will add to this. Please take care of both of you. Wish I could help you. emoticon
    3571 days ago
  • PURPLE_ROSE_3
    I'm sorry you are going through this, but I'm sure your mother is thankful. I hope you can find something soon to make things easier for you both!
    3571 days ago
  • LADYRH
    Good Luck with the challenge you are facing.
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    3571 days ago
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