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Migraine Associated Vertigo and trying to get in shape

Tuesday, May 08, 2012

I am just starting to spark again after many losses in my life and a new illness to deal with.

I started having lots of problems with motion and dizziness beginning last August, especially when I was driving or when I am a passenger in the car. I have not been able to drive since then and have been extremely isolated because of this. I have been to many doctors and have had many tests done. I have not had a definitive diagnosis as of yet, but most likely it is migraine associated vertigo with visual and motion dizziness. This whole mess started when I started menopause and is most likely what triggered this disorder for me.

My medical group is currently working on a referral to a specialist at UCLA, but it will probably take months to get in. I am also doing something called vestibular rehab therapy right now, which hasn't helped so far. I have also tried 5 medications since last year and none of those have helped and caused horrible side effects, so I went off of them.

I have lots of time to exercise and plan meals, but most days end up feeling unmotivated and very alone.

Any advice or ideas are welcome.
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Member Comments About This Blog Post
  • ILVTKD2
    I know that it's been over a year since you posted this comment. I was curious how you were doing and if you diagnosed with MAV? I have this and your post hit home, while not life threatening this is life altering. I hope that you're doing better by now.
    2815 days ago
  • MIKA016
    I will pray you have an answer soon so you can get back to your healthy self again. Hugs and keep moving forward. I think you have been doing great keeping yourself moving even with the problem you are having. Keep on sparking.... spark friends are here for you.

    ML
    3216 days ago
  • SSDCQUINCY
    I am sorry you have had to go through all of that. I hope it works itself out soon for you!! I too am feeling lonely unmotivated. Maybe we can help each other get over that. Now that you are home you should be able to spark more, so make time to do that. Start slow. Track your food and see how you are doing with your range. Choose 1 thing to focus on and start there. Take it slow and go from there.
    3217 days ago
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