BRAIN INJURY SUPPORT-IN PERSON OR ONLINE?
Wednesday, May 21, 2014
When I began my journey in brain injury--I lived in a VERY rural area. I was 8 miles from the closest shopping venue, and my doctor had given me a max driving distance of 15 miles (I was getting lost a lot). I had to fudge on that just to get milk.
I turned to the computer to get help--online forums and postings to help me cope. My husband--who is a nice man, but was diagnosed (at the age of 60) with Asperger's Syndrome has little to no empathy. He is a nice guy-but I am lost in his shuffle.
I met some wonderful people online. I am still friends with many of them. They support me much better than most of the people I have known for years.
When I moved to our current location in Grays Harbor WA I made a pact with myself that I would absolutely have a local support group. If I had to start it MYSELF. This is exactly what I did. I met a few people... talked to many. And for many many months it was ME in a room alone. Why? Cuz, um... we are BRAIN INJURED AND WE FORGET WHAT WEEK IT IS!!! So, I chose, to make myself a pact to be there every single week. Every Thursday. Still, I was on my own some weeks, but we have grown. Now, since I care about these people--I really don't WANT us to GROW... because that means that I know more people with brain injuries. You know? Well, we have grown... we have about 12 people regularly that come. I have a set program format, but we make room for those who really need to get stuff out. I think we are making a big difference.
We have lost two of our members already. Two people have died. Both prematurely from situations created by their brain injury. THAT MAKES ME MAD.
But I am glad, that I can share the things I have learned, the people I have met, and the friends I have made.
I don't care if it is face to face, or screen to screen--support is support. And WE ALL NEED IT.