Totally deflated - feeling desperate
Thursday, November 13, 2014
I have been seeing a TBI specialist for the past 2 years since my car accident. Since my symptoms have progressively got worse he recently ordered an MRI. The results came back and their were several abnormalities found. I was referred to a neurologist whom I was able to see within a week of the results. I met her yesterday. She explained the different things possibly going on. First I have something called cluster headaches. I agree with the assessment that explains them as having an icepick driven into your head. They do not last as long as a migraine but are more intense in their pain level. She said the course of treatment was medication and oxygen. The problem being I cannot take the meds because they would kill me. My blood pressure is so low I would never survive taking them. This is surprising to the most of my dr's because I take 2 strong stimulants 2x per day. So we went further into the results and what they may mean. She said she believes I have something called intercranial hypertension. The course of action for this is drastic weight loss. I asked her what that meant and she said I would need to have gastric bypass surgery as soon as possible. I told her I was not open to that idea but she stressed the severity of the issue. She said I needed to have a spinal tap ASAP and also a special type of MRI. The tap is scheduled for next week and the MRV is in 2 1/2 weeks. The dr wanted all this done before my knee surgery. With the tap they are hoping to relieve some of the pressure on my brain and testing for other possible issues that may be present. The results of that could take 2-3 weeks. The MRV results come pretty quickly. i left the appointment very frightened and lost. I DO NOT want gastric bypass surgery but she is saying I need to lose 150lbs within 6 months - to me that is crazy talk. The whole point of losing weight is to view how you eat and what you eat in a different light. To realize you can still enjoy the things you like but in the right proportion. The surgery does not help with any of that. It is a outside force forcing you to lose weight - one learns nothing from it. I don't know if I am angry about this or more deflated. It is really confusing right now. Also I need to carry the O2 with me at all times so it will be with me at work. I can't see me taking 30 minutes out of my schedule to use oxygen. One note on that - someone pointed out now effective this is on allieving the symptoms and stops one from being out of commission for an even longer time - so I will try to be more open to this. They are going to ween me off the migraine med I am on to see if that will raise my BP high enough to go on the right medication - keep your fingers crossed. It is a waiting game at this point. There are a lot of "What ifs" with no clear cut answers at this time. I try to focus on the best case scenario that could come out of this but my mind quickly goes to all the things that it could also be - esp what she thinks it is. I hope my odds are better then hers!