SP Premium
LANCER1984
25,000-29,999 SparkPoints 29,005
SparkPoints
 

Totally deflated - feeling desperate

Thursday, November 13, 2014

I have been seeing a TBI specialist for the past 2 years since my car accident. Since my symptoms have progressively got worse he recently ordered an MRI. The results came back and their were several abnormalities found. I was referred to a neurologist whom I was able to see within a week of the results. I met her yesterday. She explained the different things possibly going on. First I have something called cluster headaches. I agree with the assessment that explains them as having an icepick driven into your head. They do not last as long as a migraine but are more intense in their pain level. She said the course of treatment was medication and oxygen. The problem being I cannot take the meds because they would kill me. My blood pressure is so low I would never survive taking them. This is surprising to the most of my dr's because I take 2 strong stimulants 2x per day. So we went further into the results and what they may mean. She said she believes I have something called intercranial hypertension. The course of action for this is drastic weight loss. I asked her what that meant and she said I would need to have gastric bypass surgery as soon as possible. I told her I was not open to that idea but she stressed the severity of the issue. She said I needed to have a spinal tap ASAP and also a special type of MRI. The tap is scheduled for next week and the MRV is in 2 1/2 weeks. The dr wanted all this done before my knee surgery. With the tap they are hoping to relieve some of the pressure on my brain and testing for other possible issues that may be present. The results of that could take 2-3 weeks. The MRV results come pretty quickly. i left the appointment very frightened and lost. I DO NOT want gastric bypass surgery but she is saying I need to lose 150lbs within 6 months - to me that is crazy talk. The whole point of losing weight is to view how you eat and what you eat in a different light. To realize you can still enjoy the things you like but in the right proportion. The surgery does not help with any of that. It is a outside force forcing you to lose weight - one learns nothing from it. I don't know if I am angry about this or more deflated. It is really confusing right now. Also I need to carry the O2 with me at all times so it will be with me at work. I can't see me taking 30 minutes out of my schedule to use oxygen. One note on that - someone pointed out now effective this is on allieving the symptoms and stops one from being out of commission for an even longer time - so I will try to be more open to this. They are going to ween me off the migraine med I am on to see if that will raise my BP high enough to go on the right medication - keep your fingers crossed. It is a waiting game at this point. There are a lot of "What ifs" with no clear cut answers at this time. I try to focus on the best case scenario that could come out of this but my mind quickly goes to all the things that it could also be - esp what she thinks it is. I hope my odds are better then hers!
Share This Post With Others
Member Comments About This Blog Post
  • BEEANDHAM
    emoticon
    2160 days ago
  • HUITLACOCHE
    How scary and stressful! You have every right to demand more information about what happening to you and not move forward until you feel comfortable. This is a really highly stressful situation so make sure you are being good to yourself and keeping your stress level down as much as possible. Feel free to get support from your sparkpeople friends!
    emoticon
    2162 days ago
  • JUNEAU2010
    If it saves your life, wouldn't that be worth it? I am terrified of dying because of my morbid obesity, so I can relate. Prayers for you and for your caregivers.
    2166 days ago
  • BETRHO48
    emoticon Karin,
    I am continuing to lift up prayers on your behalf.
    emoticon emoticon emoticon
    ~Beth




    2167 days ago
  • FELINEBETTER
    Karin! If at all possible - I think you should try to get a second opinion. This sounds like a life/death situation and you need to feel as confident as possible before you undergo any kind of life-changing event like this! Please see if that's possible. I will keep you in my thoughts and prayers. emoticon
    2171 days ago
  • no profile photo CD2560890
    emoticon emoticon emoticon

    I can see why you are so deflated and defeated but think of the surgery this way. Learning to eat healthy and changing our lifestyle is just that, our LIFE style. If, without the surgery, you have no life, what sense does it make? I know this is not the plan you had but needs suggest a change in plans and a new way of approaching and thinking about your future. You are young. DOn't give up everything that is to come in your life for something that will not enhance your life. Think long and hard about the pluses AND minuses of surgery. You can do this.



    BIG HUGS Gini
    2171 days ago
  • GORDON66
    I would be frightened too, so it would probably be a good idea to talk to your therapist. While it's clearly not the same type of situation, my therapist reached out to my doctor about a medication I was taking. Since mental and physical health are dependent on each other, hopefully your doctors can connect. As for the weight loss surgery, it often comes complete with a support group. I have to agree that 150 pounds is a staggering amount of weight to lose in six months. In order to reach that goal, you will have to change your eating habits and lifestyle. A friend of mind had the surgery and was very successful. Before making any decisions, do all your homework, so you can make choices that are best for you. I wish you all my best.

    Leslie

    XXXOOOXX
    X
    2171 days ago
  • IGNITEME101
    Oh, dear! I'm sorry to hear this. Thankfully you're still breathing!! I was also recently involved in a car accident. What you're facing is pretty scary. None of us like having our CHOICES taken away from us. I thought low blood pressure was good! My entire life I've had low blood pressure. Oh well, I'm sure the DR. knows what she's talking about in regard to your BP. Praying for you dear one!
    2171 days ago
  • ICECUB
    I HATE WAITING FOR TESTS. IT MAKES ME SO NERVOUS. I HOPE EVERYTHING WORKS OUT FOR YOU. I UNDERSTAND ABOUT NOT WANTING SURGERY. I WOULD LIKE TO DO IT ON MY OWN. I AM NOT VERY SUCCESSFUL AT THE MOMENT. ONLY YOU CAN MAKE THAT DECISION. I WILL KEEP YOU IN MY PRAYERS.
    2171 days ago
  • AJB121299
    nice
    2172 days ago
  • Add Your Comment to the Blog Post

    Log in to post a comment


    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.