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On a new protical...it is working!

Tuesday, June 28, 2016

As many of you know I have a very rare auto-immune skin disease called Dermatomyositis. It is so rare only one to ten people in a million have this disease. I have been on prednisone for eleven years, therefore, it has caused me to become a diabetic. I have taken all the drugs known for this disease. They either effected my kidneys and my liver or I was allergic to it. My last drug to use was the IVIG, interveneous immune globulin. The main problem for me using this drug is that it causes migraines. I get this drug every six weeks. I go for four days for four hours each day. That following weekend, I would end up in the ER with an excruciating migraine that I would be treated for. I had previously visited a neuroligist but he would only allow me to take Excedrin Migraine. That did not help. I recently visited another neurologist and he gave me two new drugs. One is a migraine prevention drug and the other is the drug I get at the ER to treat my migraine when I go to the ER. I recently had my series of IVIG and took my new drugs. I did not end up at the ER. I am so grateful for a neuroligist that knows what he is doing and for drugs that work.
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Member Comments About This Blog Post
    emoticon oh my...hope your still well and take care emoticon
    982 days ago
  • LIS193
    1370 days ago
    emoticon I never knew, thank you for explaining. Really sorry you have to go through this. So happy that the other neurologist was able to help, good that you did not end up in the ER, and did not have those terrible migraines. Take good care my friend.
    1371 days ago
    Im so sorry to hear about your sickness. I hope it continues to go well with you with this new drug. #staybless
    1371 days ago
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