On a new protical...it is working!
Tuesday, June 28, 2016
As many of you know I have a very rare auto-immune skin disease called Dermatomyositis. It is so rare only one to ten people in a million have this disease. I have been on prednisone for eleven years, therefore, it has caused me to become a diabetic. I have taken all the drugs known for this disease. They either effected my kidneys and my liver or I was allergic to it. My last drug to use was the IVIG, interveneous immune globulin. The main problem for me using this drug is that it causes migraines. I get this drug every six weeks. I go for four days for four hours each day. That following weekend, I would end up in the ER with an excruciating migraine that I would be treated for.
I had previously visited a neuroligist but he would only allow me to take Excedrin Migraine. That did not help. I recently visited another neurologist and he gave me two new drugs. One is a migraine prevention drug and the other is the drug I get at the ER to treat my migraine when I go to the ER. I recently had my series of IVIG and took my new drugs. I did not end up at the ER. I am so grateful for a neuroligist that knows what he is doing and for drugs that work.