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Best Day This Week

Thursday, November 17, 2016

The threshold for a good day has changed. Under normal circumstances, I don't know if today qualifies as a good one necessarily. Some of the genetic testing came back on my sister's leukemia. It wasn't the chromosome swap they were hoping for. Instead it looks like the abnormality or mutation is on her 11th chromosome. This means she will need chemotherapy plus the bone marrow transplant. If it had been the other marker chemo would have resolved the issue and, as long as remission maintained, she wouldn't have needed a transplant. She qualifies for a clinical trial they are seeing great success with. So for the next two weeks it's clinical trial drugs. She can be home 12 of those days (with two visits to Columbus and half a dozen or so to the local hematologist/oncologist). If she wears a mask and feels good she can even go to church or a matinee movie (no snacks). Then she goes back to The James for four weeks of chemo. Then, if she's in remission, she will rest a couple months before a bone marrow transplant in the early spring. My brother and I are both to be tested. There's a 25 percent chance one of us is a match. From there the rest of the family is tested. Then on to the donor registry. Tonight's link sends you to the donor registry page. If it's something you've ever considered doing, I ask you look into it for my sister and others like her fighting leukemia and other bone marrow disorders. Got potential donors under a certain age (40-ish I believe) the testing kits are free. https://join.bethematch.
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    Hugs and prayers for your sister and your family!
    1567 days ago
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