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Life with Gastroparesis

Thursday, February 21, 2019

I'm not sure how many of you out there have had the above diagnosis so I thought I would reach out to you all to share my experiences of the above

I was recently (November) diagnosed with Gastroparesis (basically paralysis of the stomach) which has drastically changed the way I eat and what I eat. I went to see my Dr as I was vomiting in my sleep and the food was coming up exactly as it had gone down 6 hours before (sorry for the graphic description). I was also vomiting during the evening after eating very little due to still being full from lunch. The impact this has had on my life is enormous.

I can no longer tolerate most foods and have to 'graze' rather than eat meals. I stop eating/ grazing at 4pm to give my stomach time to work whatever it can do into reducing the contents before bed time, reducing the risk of vomiting in my sleep.

Fibre is out! I love salads but eating one leads to the most horrendous stomach cramps and nausea. I'm full most of the time (it's the only bonus!) and I have constant nausea, like morning sickness without the pregnancy. I felt very sorry for myself when I first received the diagnosis however I have tried to put a positive spin on it so here are the benefits:

I'm now a cheap date should I ever want to date again (soup and I'm done!)
My food bill is now around £10 per week
Soups are my friend :-)
I can't tolerate snacks as it leaves little room for proper food (like soups!)

I'm a coeliac so my food intake was restricted anyway however the managing of gastroparesis has meant that I have to plan well ahead and pack my 'grazing' foods for the day such as a flask of soup or a protein shake (gluten, dairy and soya free!) . I have lost 14lbs since November and my walking has improved (my mobility is still reduced due to other conditions). I';ve been told that sometimes the stomach 'wakes up' again however I'm planning for long term and living with the restrictions.

After researching the condition I'm not any wiser regarding whether people put on weight or lose weight with the condition as the results vary from person to person. I assumed I would lose weight quickly however my body doesn't like that plan at all! Some of my new gastroparesis friends are less fortunate than me as they are on feeding tubes due to the fact that they cannot eat anything. There is no cure and I've been told to treat it as life long.

This wont beat me though, it's another obstacle I have to overcome and I'm managing quite well (although soups are sooo boring after a while). I fully intend to carry on living life to the full and although I have to fit a lot around my eating I'm still so lucky and I cherish every day
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Member Comments About This Blog Post
    738 days ago
  • EISSA7
    Thank you for enlightening us...I was not aware that such a condition existed. It seems that you have figured out a way to manage your eating and carry on...good luck!
    738 days ago
    738 days ago
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