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NADINEL's Photo NADINEL Posts: 11,825
7/31/08 11:42 A

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Hello. I learned a few of these on my own - the hard way.
Yes, hospitals are ignorant when it comes to PE or DVT. They always look for something else first. I think whenever they draw blood in an ER, they should make it top priority to find out INR. It would be so easy.
I am glad you posted. Have a great day.

MICANDREU's Photo MICANDREU SparkPoints: (38,140)
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7/31/08 9:54 A

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May of 86, was the first DVT and PE. I was 17. I did six months anti-coagulant therapy. (Birth Control)
I was doctor advised is treatment for, cramping and such..

May 96, was the second and, not the last of the clot episodes, additionally;it was the beginning of long term blood thinners...
In 97 and 2000 I was blessed to have two healthy children. they are 8 and soon 11.

Over the years, I have learned some things, and here are my humble thoughts.. For long term self care, with Dr. supervision...

Learn to know where your INR levels need to be for you with your doctor. Find a doctor that understands you needs, this is the most important, for long term care. Each person will be advised by what levels or ranges are, and they need to be stayed within as best as possible... It is REAL important to do that... It more work at time than most realize...

Taking Blood Thinners is similar to insulin for diabetics. Food does effect us, directly... Yes, it does require us to pay attention to how we treat our bodies with not only food, but activities as well..
As well with Diabetics, we need to stay consistent with our meals.. FOod matters to out blood and so does exercise...

VERY few Doctors understand and acknowledge long term blood thinners...

They are many of us, yet we get thrown in with other categories... Heart issues, Lung issues, etc... Because, it's blood, it needs to be addressed on its own merits... THis is my pet peeve of being lumped it when it's a separate issue..

Also, over the last twenty years the food lists of items that have interactions with the blood thinners has change considerably... It when from 2 foods, greens and onions.. There may have been one or two more but that was the extent. Now there is a full list of items... So be careful.

The majority of the Emergency Room Staff that I have personally dealt are Educated by Ignorant to having a protocol for a possible DVT, or PE Patient in their hospitals.

The bottom line is know your body and trust when it is telling you something...

Co-Leader The Phoenix Club
Co-Leader Blood-thinners

Woman are like Teabags, you never know how Strong they are until they are in Hot water.
Elinor Roosevelt


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