SP Premium
Walking Guide
Group photo
Author:
PONDSITTER's Photo PONDSITTER Posts: 820
7/17/08 12:51 P

My SparkPage
Send Private Message
Reply
Hello Everyone: My name is Sally. December 06 I was diagnosed with a blood clot in my right leg. When I went to the hospital with leg pain I had no pulses in my right foot at all. I had THP (i believe) therapy and then surgery where a stent was put in. I was in hospital for 2 weeks and then in in-house physical/occupational therapy for 1 week. I went home on December 23. On December 30 was readmitted for same thing in left leg. Had the same treatments but was in hospital for 3 weeks that time. It's been a slow recovery and for the past year my INR has been erratic. I am therapeutic with INR level at 3.4. For the past two weeks it's been 3.7 and then 3.1. For the first time in over a year I didn't have to have it checked this week. I still have a mobility problem partly due to my weight (which I am losing .. have lost 65 in the past year and half). Also I have a lot of numbness in both feet but the right foot is definitely the worse. My doctor tells me how lucky I am to have my right foot at all. Have a lot of trouble finding shoes that are comfortable. Crocks mammoths are the best I have found.

Thanks for listening.

Sally emoticon

Sally

Vini, Vidi, Velcro ... I came, I saw, I stuck around.

The bend in the road is NOT the end of the road ... unless you fail to turn.

God whispers to your soul, speaks to your mind, and sometimes when you are too busy to listen he has to throw a brick at you.

Sorrow looks back. Worry looks around, Faith looks up.

my.sparkpeople.com/PONDSITTER


 Pounds lost: 32.0 
0
28.75
57.5
86.25
115
FILTHYLAWYER's Photo FILTHYLAWYER Posts: 7
6/21/08 12:00 A

My SparkPage
Send Private Message
Reply
Hi! I'm 25 and just had a PE 2.5 weeks ago. The doctors think it was caused by BC, but they aren't really sure, and there were no signs of any clots before I started having chest pain and trouble breathing.

I've been on coumadin since then, and I'm having a rough time adapting (I stopped the Lovenox shots last week). I also have celiac disease, so I can't eat anything with wheat/barley/rye - salad was always my fallback, but I didn't eat it consistently. Now I'm trying to eat a small salad or the equivalent everyday, but it's hard to judge.

My INR levels were between 2-3 last week, but since at least Monday they've been lower than they were when I was released from the hospital, around 1.5. I get really freaked out because I can feel a difference in my lungs when the INR is low - I feel like something is sitting on my chest and there is chest pain.

Does anyone else have that happen? I'm completely paranoid that I'll have another PE because my INR levels are low. Any time something hurts I think it's another clot.

 current weight: 196.0 
239
224.25
209.5
194.75
180
LASHERTHECAT's Photo LASHERTHECAT SparkPoints: (0)
Fitness Minutes: (83,263)
Posts: 7,821
5/22/08 2:00 P

My SparkPage
Send Private Message
Reply
Hi Tonya,

Great to meet you! I'm surprised to find someone with a similar problem right away...

I had an aortic valve replacement in 1987 when I was 17, so I've been on warfarin for more than 20 years.

A couple of years ago, I had an aortic dissection that caused a huge aneurysm above my artificial valve, and I had to have a huge emergency surgery (The doctor had only performed it 5 times.)

In any case, my cardiologist wants by INR between 3 and 3.5. I don't have any food restrictions either, but I take a lot of warfarin (I love veggies, esp. lettuce, broccoli and asparagus) - alternating betw. 10 and 12 mg.

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


 current weight: 145.0 
153
150.5
148
145.5
143
MOM_TO_JASMINE's Photo MOM_TO_JASMINE SparkPoints: (0)
Fitness Minutes: (4,941)
Posts: 292
2/24/08 3:11 P

My SparkPage
Send Private Message
Reply
My name is Tonya. I found out on my 30th birthday that I needed open heart surgery. I had open heart surgery in February 2006 to replace me aortic valve and now have a mechanical valve. This is why I am on Warfarin and will be for the rest of my life. My doctor prefers my level to be between 2.5 - 3.5. I take 7.5mg 5 days per week, and 5mg 2 days per week. I do not have any food restrictions, everything in moderation is key for me.

Edited by: MOM_TO_JASMINE at: 2/24/2008 (15:54)
Tonya

Never regret anything, because at one time...it was exactly what you wanted.


 current weight: 213.8 
220
197.5
175
152.5
130
HEIDIS2NDCHANCE's Photo HEIDIS2NDCHANCE Posts: 1,212
2/16/08 1:16 A

My SparkPage
Send Private Message
Reply
I also have noticed that I feel much better when I stay moving. When I sit for a long period of time my legs start to ache. Plus, I figure when we stay moving it gets us closer to our goals. Right!?!

***Heidi****

Formerly known as Heidinorge.


 Pounds lost: 24.6 
0
19.75
39.5
59.25
79
CALYANNA's Photo CALYANNA Posts: 44
2/15/08 10:19 A

Send Private Message
Reply
Very true. I have been walking my dog for 45 minutes a day and I feel great! Gotta keep moving, even if it is just walking around the house.

0
19.75
39.5
59.25
79
IMJUSTGOOFNOFF's Photo IMJUSTGOOFNOFF Posts: 17
2/15/08 12:39 A

My SparkPage
Send Private Message
Reply
Hi Heidinorge Congrats on getting off the thinners! I have kind of decided that to keep from clotting you need to keep moving! Then the blood doesn't have time to set there long enough to clot lol. Anyway good luck with your goals!

On my way to a better me!
HEIDIS2NDCHANCE's Photo HEIDIS2NDCHANCE Posts: 1,212
2/14/08 11:26 A

My SparkPage
Send Private Message
Reply
Hi IMJUSTGOOFNOFF,
Welcome to the team! I read your other post and Congrats! on getting your INR levels to a consistant level. I constantly struggled on being in the right range. Thankfully, I don't have to worry about that anymore, for now.

Good luck with all your goals and again welcome!!
Heidi

***Heidi****

Formerly known as Heidinorge.


 Pounds lost: 24.6 
0
19.75
39.5
59.25
79
IMJUSTGOOFNOFF's Photo IMJUSTGOOFNOFF Posts: 17
2/12/08 10:39 P

My SparkPage
Send Private Message
Reply
Hello team. I was pleased to find this site. I had a DVT in my left leg from my ankle to my hip in 1992. I was in the hospital over a week and on coumadin for almost a year. Then in 1998 I was working in a bakery and started having trouble breathing. I went to the Dr. and she told me I was allergic to the flour, needed to quit my job. This went on for almost 3 months. One night I coughed just before I went to bed and got really dizzy. I didn't go right to the Dr. (big mistake!) The next morning I got up and was still dizzy and couldn't catch my breath. I went to the hospital and they found that I had been throwing tiny clots for a long time. I had less then 50% of my lung capasity. I apparently do not have the factor v problem but they do not know where they came from or why I had the clots. I will be on the warfarin the rest of my life.

I am glad that we have found each other and can help ourselves through this problem of weight and blood thinners.

On my way to a better me!
RITAN7471's Photo RITAN7471 Posts: 81
2/1/08 7:43 P

My SparkPage
Send Private Message
Reply
Thanks for the warm welcome, Calyanna! As far as they "know" it's the BC pills, but I didn't have any blood clots in my legs or arms so it's a bit of a mystery how they got to my lungs.

But I had my final protein S test yesterday and I hope to hear on Monday whether it's normal. If it isn't I may have to take coumadin again, depending on how "not normal" it is.

I agree with you completely that now my goal of weight loss has a lot more to do with my health than my vanity. I can't help wondering whether inactivity, obesity and the birth control pills all worked together to cause my problem.

Thank God for the telephone consulting nurse. I was walking around weak and lightheaded for 2 weeks before I finally called to see *if* I should go to the doctor. I'm so happy that so many of you have had PE and are here to talk about it and offer help and advice.

My INR was never very stable, it fluctuated between 1.7 and 3.8. For a while I was off all greens and eating the same exact thing every day. I wasn't even allowed to take a multivitamin. Still, it was unstable. Luckily I never had any trouble with bleeding or bruising so they just increased my dose til I was over 2.0 no matter what happened.

emoticon What a long post! I'll shut up now and let others get their 2 cents in!
Take care everyone!
emoticon

Happiness is a place between too little and too much.


 current weight: 203.0 
213
198.5
184
169.5
155
HEIDIS2NDCHANCE's Photo HEIDIS2NDCHANCE Posts: 1,212
1/31/08 3:01 P

My SparkPage
Send Private Message
Reply
Hi Ncarolinagirl!
I also have Factor V. It was scary to think that I would one day not be taking Coumadin anymore. But I've been off of it for 3 weeks, after consulting with my doctor, and I feel so much better. Are you heterozygote or homozygote Factor V? I think that will make a difference on how long you'll be on Wafarin.
Keep up the good work!
Heidi

***Heidi****

Formerly known as Heidinorge.


 Pounds lost: 24.6 
0
19.75
39.5
59.25
79
HEIDIS2NDCHANCE's Photo HEIDIS2NDCHANCE Posts: 1,212
1/31/08 2:20 P

My SparkPage
Send Private Message
Reply
Hi Calyanna,
Thanks for welcoming me!

I fell and sprained my ankle about a month before the DVT. I believe that this was the beginning but the doctors won't confirm that. I also was on birth control pills. Then a couple weeks after I fell, I took a long car ride from Georgia to Utah in two days with very few stops. Right after that my ankle and lower calf muscle just started hurting but I didn't think much of it until it didn't go away. Then I finally went to the doctor and they did an ultrasound and found it had traveled to the back of my knee. I was put on immediate bed rest and lovenox and coumadin. Then 24 hours later I had difficulty breathing and went to the emergency room where they found the PE. I was in the hospital for five days and had a tests done that determined I also have Factor V Leiden.

Sorry that was so lengthy, but I hope that answers your question.

Heidi

***Heidi****

Formerly known as Heidinorge.


 Pounds lost: 24.6 
0
19.75
39.5
59.25
79
CALYANNA's Photo CALYANNA Posts: 44
1/31/08 11:21 A

Send Private Message
Reply
Welcome Heidi,
What were the factors that caused your DVT and PE? If you do not mind me asking. Only reason is the doctors cannot find any reason why for me. Just researching, in case a light goes on.
Happy to meet you!
Calyanna

0
19.75
39.5
59.25
79
HEIDIS2NDCHANCE's Photo HEIDIS2NDCHANCE Posts: 1,212
1/30/08 6:48 P

My SparkPage
Send Private Message
Reply
Hello Everyone!
I just came across this team and it made me happy to see that there are others dealing with the same thing I've been dealing with.
I had a DVT and PE July 24, 2007. I was on Coumadin up until about three weeks ago to have some more testing done and will go to the doctor on Friday to find out the results.
My clots were caused by a number of factors so I'm trying to change my lifestyle and be as healthy as I possibly can.
I look forward to being apart of this team. Hopefully I can both give advice and receive it!
Heidi

***Heidi****

Formerly known as Heidinorge.


 Pounds lost: 24.6 
0
19.75
39.5
59.25
79
CALYANNA's Photo CALYANNA Posts: 44
1/30/08 12:20 P

Send Private Message
Reply
Welcome Rita,
It must be nice to know what cause the clots. They still have not determined why I got them. I just have to take the coumadin until I do not have anymore symptoms. Then they will probably have me take an aspirin a day.
I think it is important to loose weight for a health reason and not for vanity or because of an insecurity. I think it will mean more and last longer.
I feel more motivated to get healthy since the PE and DVT experience. My outlook on life have been renewed!
emoticon
Calyanna

0
19.75
39.5
59.25
79
RITAN7471's Photo RITAN7471 Posts: 81
1/29/08 7:42 P

My SparkPage
Send Private Message
Reply
In May 2007, I was diagnosed with bilateral pulmonary emboliam. Birth control pills were determined to be the cause, and I was on blood thinners for 6 months, and can never take any hormone replacement or birth control pills again. I wish I had found this group when I was diagnosed!

My hematologist says that if I ever become pregnant I will have to inject myself with heparin every day during the pregnancy, so I expect that eventually I will need this group. So while I get healthier and lose weight I'll visit here to share my experiences on blood thinners and get more tips and help for the time when I'll have to take them again.
Hello everyone! emoticon
Rita

Happiness is a place between too little and too much.


 current weight: 203.0 
213
198.5
184
169.5
155
RJSANFILIPPO's Photo RJSANFILIPPO Posts: 71
1/29/08 2:44 P

Send Private Message
Reply
Because I have a mechanical valve it has to be between 2.5 and 3.5. I have seen it go as low as .1 up to 5. Pretty scary. I bruise very easily also. There are times I am not sure I bumped into anything, but touched something and I bruise. Sometimes the bruises are there for weeks.

SW: 257 CW: 222
Long Term GW: 130

Green Team for BL4
LOST 16 LBS.

BL 5
Wk 1:
Wk 2:
Wk 3:
Wk 4:
Wk 5:
Wk 6:
Wk 7:
Wk 8:

Update:


 current weight: 222.0 
257
225.25
193.5
161.75
130
CALYANNA's Photo CALYANNA Posts: 44
1/29/08 12:34 P

Send Private Message
Reply
OMG - you have been on a roller coaster ride. My doctor said that she wanted me to be between 2.0 and 3.0. I have been managing to stay there. I do bruise easily and I have veins in my left arm and chest that stand out more than any others.
I am glad to hear that you are recovering. Hang in there and thanks for your story
emoticon We plan to kick the clots!

257
225.25
193.5
161.75
130
RJSANFILIPPO's Photo RJSANFILIPPO Posts: 71
1/29/08 11:50 A

Send Private Message
Reply
Hi my name is Rusti. Mom of three boys (13, 9, 6) and wife to a wonderful man. In April '03, I had open-heart surgery to replace my mitral valve. Because I was 33 at the time of the surgery the gave me a mechanical valve, which meant blood thinners for life. my INR's were not carefully monitored by the doctors, so by the time Aug '04 rolled around, I had 2 TIA's and a major stroke. I have have recovered about 75%, but that is another topic. Around Oct '07 my doctor had me go through a genetic testing. I have a mutated gene that will not process Vit. K properly. My INR levels have been a roller coaster. During the time that I was in rehab from my stroke (6 weeks to the day), I had blood work every day then towards the last 2 weeks it was every other day. I was in range 8 days total. My INR range is 2.5 - 3.5. That is scary! I hope that I didn't scary anybody that is new to blood thinners. I'm just an odd and special one as my doctor has said.

SW: 257 CW: 222
Long Term GW: 130

Green Team for BL4
LOST 16 LBS.

BL 5
Wk 1:
Wk 2:
Wk 3:
Wk 4:
Wk 5:
Wk 6:
Wk 7:
Wk 8:

Update:


 current weight: 222.0 
257
225.25
193.5
161.75
130
CALYANNA's Photo CALYANNA Posts: 44
1/27/08 7:16 P

Send Private Message
Reply
Hello All,

I just joined SP. I was diagnosed with a DVT in my left arm and a PE in my left lung. I am on coumadin and I take 15 mgs a day. I am 43 and they said I was an unusual case. I haven't travelled or taken birth control. They tested my blood and could not find any reason for the clots. My left arm swelled and it turned purple before I was on the blood thinner. I had trouble breathing, but thought it was my asthma. I have a difficult time doing cardio. I really miss the green leafy veggies. I appreciate this SP Team. I am glad you all are here for the added support.

257
225.25
193.5
161.75
130
NCAROLINAGRL's Photo NCAROLINAGRL Posts: 176
1/7/08 8:28 P

My SparkPage
Send Private Message
Reply
Hi! I'm 28 years old and I was diagnosed with a chronic blood clot going from my vena cava to my left knee. The drs believe it formed after the birth of my son exactly a year ago( Happy 1st b-day Kristian!). I went into the hospital 4 weeks after giving birth and had a PE an hour after being admitted in. I missed a whole month of my son's life b/c I was in the hospital. I also have a filter and had to have Thrombolysis. I'm doing great now with only 1 other clot situation back in September! I've joined a gym and try to workout everyday. My leg slows me down sometimes, but it has gotten a whole lot better. I'm on warfarin and hate it, but I'm scared of the day my dr. says I might be OK to get off. I don't really think I will have to worry about that to much though, b/c I have Factor V. We should be very proud of ourselves. We could easily use our conditions as a excuse not to eat right, workout, and be lazy. I'm only 5 lbs away from my prepregnancy weight and when/if I see 127 again I'm gonna have to take a picture of the scale! emoticon emoticon

 current weight: 136.0 
137
134
131
128
125
KIMBERLEYJOY1's Photo KIMBERLEYJOY1 Posts: 7
11/19/07 6:54 P

My SparkPage
Send Private Message
Reply
Hi Everyone, I have been on Warfrin for about 6 weeks now and would like to know if anyone else has had problems with fatigue or feeling dizzy. I am always tired but can't seem to sleep If I try and drive I get sick to my stomach like I have Vertigo or something. If anyone out there has had these issues I would love to hear from you.


137
134
131
128
125
CHEERMOM07 Posts: 2
9/2/07 10:01 P

My SparkPage
Send Private Message
Reply
Hello, I am on warfrin. I will be on it the rest of my life. Does anyone one have any suggestions on what to eat while trying to loose what? Thanks for the help

LYRICCOL's Photo LYRICCOL Posts: 32
9/2/07 8:23 P

My SparkPage
Send Private Message
Reply
Hi I am new to site. Today is the first day :-)

I am on blood thinners for the rest of my life. I had a double PE with no symptoms until I couldn't breath. Luckily I was about to sing at church and there is a hospital a few blocks away. Turns out I am not factor V but I was on birth control pills. They had to put in a filter because I had more clots the day of the incident. That is why I have to stay on blood thinners. I have been really lucky with my care. University of MN has a great program (my Dr is currently do a study on women and hormone levels vs INR changes). I also do home monitoring (thank god for great health insurance and an employer that doesn't skimp).

Overall I am healthy and have not had any reoccurring clots.

137
134
131
128
125
POGRANT's Photo POGRANT Posts: 4,888
8/31/07 5:41 P

My SparkPage
Send Private Message
Reply
Thanks for the welcome!!!!

You can do anything that you put in your mind. Have Strength!!!


 current weight: 100.0 
145
133.75
122.5
111.25
100
CHEERMOM07 Posts: 2
8/31/07 10:05 A

My SparkPage
Send Private Message
Reply
Hello, I am Nat, I am 29 years old. I have been on warfrin since August 4, 2007. I have a blood clot in my left leg. "Our help is in the name of the LORD, who made heaven and earth." Psalm 124:8

KIMB21I Posts: 5
8/30/07 9:49 P

Send Private Message
Reply
Wow. Sounds like you have had it rough lately.
Welcome to the team.
emoticon

POGRANT's Photo POGRANT Posts: 4,888
8/30/07 8:05 P

My SparkPage
Send Private Message
Reply
Hello, I am Chris. I am on blood thinners for cronic blood clot syndrome, as I speak I have one in my leg, and am having issues in my lungs. My problem is that the Dr`s cant regulatethe warfrin, and this causes clots. This summer I had three clots.
I`m plesed to meet everyone here.

You can do anything that you put in your mind. Have Strength!!!


 current weight: 100.0 
145
133.75
122.5
111.25
100
KATHY71's Photo KATHY71 SparkPoints: (0)
Fitness Minutes: (752)
Posts: 675
8/23/07 8:49 A

My SparkPage
Send Private Message
Reply
I understand your fear as I was 25 when I started on blood thinners. In my case I was admitted to the hospital with a heart rate of 180 beats per minute. Which also can cause blood clots to form and travel.



A person's task is to hear the Lord saying to them everyday "I have chosen you and you are precious and you are beautiful and I love you".





 current weight: 159.0 
159
149.25
139.5
129.75
120
KIMB21I Posts: 5
8/22/07 10:06 P

Send Private Message
Reply
I think the hardest part of this whole ordeal is having to deal with this and only being 28. I was completly shocked when they told me I could have passed the clot to my brain or lungs. It scared me to death. I mean to think if I hadn't gone to the hospital that night. I might not have gotten up the next morning. I barely had time to wrap my mind around that before they are telling me lose weight, get healthy, be active, and so on and so on. It's been quite a trip and the worst part is trying to get others to understand you are doing everything you can to get better. I mean do they think I really want to die. I immediatly jumped on the wagon when this happened. I really think it gave me some much needed motivation to make some huge changes in my life. I just wish it was easier to lose the weight. I appreciate you sending me that web site. I plan on going there now. I wish you luck with your goals as well and thanks for replying. Look forward to talking to you again soon.

KATHY71's Photo KATHY71 SparkPoints: (0)
Fitness Minutes: (752)
Posts: 675
8/22/07 9:52 P

My SparkPage
Send Private Message
Reply
Hi all I am on a blood thinner have been for 10 years now. One good reason why you probably are not losing the weight is because you have cut out so much of the food you need. Corn is not really the best to be eating on a steady basis as it is starch or sugar can't remember which off hand and is not digested in the body.

If you eat properly with all fruits and veggies your INR levels will get under control. It might take a few months but trust me they will stabilize.

A person's task is to hear the Lord saying to them everyday "I have chosen you and you are precious and you are beautiful and I love you".





 current weight: 159.0 
159
149.25
139.5
129.75
120
FLLADY61's Photo FLLADY61 Posts: 88
8/22/07 9:08 P

Reply
I almost died in December from Double Lung Clots, or PE....I have a Protein S deficiency and am on extended therapy as well. they do not know for how long. I am also Diabetic and have high blood pressure. I too am way overweight. And like you they said I needed to lose weight. But again easier said than done. My daughter and I joined Curves in Feb. At first I was doing good, then it ended. We still go, but it is just to help in lowering my bp and sugar.

As for diet, I have had to cut everything I really like out of the picture. I was eating a small salad 2x a week, and my INR dropped to 1.7. So NOW i can not even have that. I eat corn, beets, tomatoes, and peeled cucumbers. And they get boring.

check out this site. www.ptinr.com it has all kinds of info, and if you are unsure of a vegetable, it will tell you. That is if you have not found the site already.

Good luck in your weight loss.

It will be worth it all.
When I reach my goal, I will be so happy.

I may not lose 92 pounds before my cruise, but if I lose 40 I will love it.


159
149.25
139.5
129.75
120
KIMB21I Posts: 5
8/22/07 8:43 P

Send Private Message
Reply
Hello to All..
I just joined the program today and I was doing some research and saw this discussion group. I thought I would leave a quick note and give everyone a little info on my situation. First, I will say I was diagnosed 4 months ago with a DVT and was immediatly put on warfarin. Two months later I was told the blood clot had become chronic and I had to undergo an IVC filter placement. My vascualr doctor then gave me a long list of must do's and don'ts. The first on the list was to quit smoking(no questions asked: I have been smoke free for almost 2 months);he then told me I needed to lose weight and get into shape(no problemo, right? Except that's easier said then done when you have had a thyriod disease since you were eight); and finally he said I would remain on the warfarin for a minimum of the next two years(So, how do you diet when most of the good foods for you are off limits?). So as you all can see, I have quite an uphill battle. I have made great strides in attempting too lose wieght, but since quitting smoking my appetite has become a lion. So long story short, I am hoping to get some great advice from the all of you and possibly find some things that have worked or not worked. So I am off to read through some of the past discussions and am so grateful I found this group. Look forward to getting know some of you soon. emoticon

Page: 1 of (1)  

Report Innappropriate Post

Other Blood Thinners Support Introduce Yourself to Team Forum Posts

Topics:
Last Post:



Thread URL: https://wfl.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x10249x8462175

Review our Community Guidelines