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BARBGEO's Photo BARBGEO Posts: 784
6/30/15 10:48 A

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Hey Whitecat,
NOPE not a camp counselor. I am camping near my children's homes and helping with the grandkids this summer. I cannot access much internet there... so I am off and on this summer. I came home due to extreme HEAT (ugh) and my kids were all busy without of town family guests.
My eating at camp has been REALLY good, but my workouts have been up and down. Partly due to the HEAT and partly due to my being timid. You would think I would get a lot of running in with 3 kiddos, but I am not... I do a lot of standing. I think mainly to keep them all in line of sight! LOL I can't chase all three!

Feeling very overwhelmed. I had asked for HELP from my support group, just to take over a couple of meetings. Well, I am glad I showed up, something needled me about the situation. I came and found my 'replacement' had NOTHING planned. Nada. She had not even brought the papers (sign in etc) I had given her. Very tired. Very very very tired.

Well, off to mow my lawn. Being gone-doesn't mean things still don't need to be done.

Hugs to all!
barb

All the best,
Barb G


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WHITECAT19's Photo WHITECAT19 SparkPoints: (110,057)
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6/18/15 10:54 A

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Camp? Are you a counselor? We used to do that sometimes.

My hubby has been to the ER six times in the past two weeks, with two admissions. He is in hospital right now. He may come home today, but I have learned not to count on that. I miss the sound of his CPAP when he's not home!

The latest neurologist has chosen to blame my depression for EVERYTHING that is wrong with me. Ho, hum! Same old, same old!

The Lord upholds all who fall, and raises up all who are bowed down. Psalm 145:14

A monk was once asked: What do you do there in the monastery? He replied: We fall and get up, fall and get up, fall and get up again. - Tito Colliander

The Jesus Prayer helps to lift the whole life, body and soul, to a level where . . . the world is sought and known in the beauty of God, not God in the beauty of the world. - Mother Maria of Normanby


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BARBGEO's Photo BARBGEO Posts: 784
6/18/15 9:16 A

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Hey there y'all.
Interesting... my regular temp is low as well. So when I have a 99 it is a 'deal'. A 101 is a BIG deal and that going to doctors is useless... oh if they only would READ. My files have been ignored by some really smart people over the years. :(

I am in and out this summer--with VERY weak cell/internet service. Tried getting a booster--what a waste that was. But when I am home I will do my best to check in! I NEED the support.

I have been home about a day and a half now. Not sleeping at all--I sleep better at camp. Don't know if it is the husband snoring, or stealing the covers or what. But this routine of 4 hours max kills me.

Hoping all are doing well. Keep us busy!!! POST! We need support, we all do.

All the best,
Barb G


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6/16/15 5:56 P

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My normal is quite a bit below "normal." Unfortunately, doctors don't care!

I hope you can get the use of a computer that allows you to post. It's nice to have the support.

The Lord upholds all who fall, and raises up all who are bowed down. Psalm 145:14

A monk was once asked: What do you do there in the monastery? He replied: We fall and get up, fall and get up, fall and get up again. - Tito Colliander

The Jesus Prayer helps to lift the whole life, body and soul, to a level where . . . the world is sought and known in the beauty of God, not God in the beauty of the world. - Mother Maria of Normanby


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SDANLSON's Photo SDANLSON Posts: 1,083
6/14/15 11:39 P

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I've been around a while too after my horse fell and I was picked up and flown from the local hospital to a larger one. I have never remembered all of the details, but that is not uncommon post TBI.

The "normal ranges" are the average of values collected from a very large group many years ago. Your normal could be a bit above or a bit below. You just have to collect data on yourself. Mine is a bit lower. So I know 98.6 is a temperature for me. I new that when I was in the locked ward and I also knew to tell them too look at the daily data for the past several weeks in my record.

I'm still going to be mostly out since computer access is still a problem. I have several computers, but either they have a problem or are too old to handle a newer operating system needed to be supported on todays internet.

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WHITECAT19's Photo WHITECAT19 SparkPoints: (110,057)
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10/15/14 2:39 A

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Well, now I am the one who has not been around! Hubby has had multiple trips to the ER with some of his medical issues, and I have been having more fevers. And my head and neck have been hurting a lot. I get so exhausted, I can barely move a lot of days. I think the cats would like me to hire someone to come and scoop their litter boxes, because it is not getting done often enough to suit them. I tell them I am too pooped to deal with their poop! (I try to joke about things. Humor does seem to help!)

So, anyway, I hope I will be around more. I sure appreciate the mutual support that is present on this site!

Hope you are having a good week.

Kathleen

The Lord upholds all who fall, and raises up all who are bowed down. Psalm 145:14

A monk was once asked: What do you do there in the monastery? He replied: We fall and get up, fall and get up, fall and get up again. - Tito Colliander

The Jesus Prayer helps to lift the whole life, body and soul, to a level where . . . the world is sought and known in the beauty of God, not God in the beauty of the world. - Mother Maria of Normanby


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BARBGEO's Photo BARBGEO Posts: 784
9/26/14 7:24 P

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Hi Whitecat!
WOW! I too was hurt (head butted) by a horse, and also deal with fevers... sometimes. Not all the time. Mainly when I am shot down tired... you know that time. When moving your pinkie is major? Yep. My accident happened 10 years ago... and I don't know really how long the fevers have been an issue. Just the last couple of years I think.

Our group here is not terribly active. I try to remember to log in and check it, but obviously I am not as good as I thought I was. I am REALLY sorry I didn't get back to you sooner. I do think this is the right place. We just need more activity!

My site was also affected, and while I never went blind, I went from perfect sight to putrid. In a nanosecond.

Will look forward to getting to hear how things are going for you!
And welcome. Again, I am sorry I wasn't here to say that sooner.

Best to you,Barb

All the best,
Barb G


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9/8/14 11:26 P

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Okay, here goes!

I've had lots of neurological problems for a long time. I think a lot of it started with a head injury more than 40 years ago. I fell off a horse and had a severe concussion. I bled from the ear and actually lost my sight for a couple hours. (That was pretty terrifying. I thought it would not come back!) They did not know much about traumatic head injuries back then, but in light of recent reading, I think the injury accounts for some problems I have had for many years. Things like balance problems, attention problems, headaches, sensitivity to flashing lights, depression (probably some other factors figure in to that), etc.

Things got much worse in recent years, with vertigo that sometimes got very severe. Also much worse headaches with extreme sensitivity to light and sounds. I was also diagnosed with essential tremors a couple years ago. That is probably not related to the injury, since my dad had them, and my sister has them.

Anyway, the stuff that is going on right now is much scarier. I started having low-grade fevers on days that my symptoms were worse. This started about 1 1/2 or 2 years ago. Then, starting about Christmas of 2013, the fevers started going higher, sometimes over 102.0. I have had lots of tests, but nothing has provided a diagnosis.

Saturday I had a long conversation with my older daughter. She is a really smart scientist and is very good at sorting out data and seeing how things fit together, even if they seem like they don't make sense. I have been keeping track of symptoms and temperatures for a long time, but she is helping me set up a more systematic way of doing it. Then I will send the data to her, and she will do some graphs and such for me to take to my neurology appointment in November. I have already figured out that if you can bring carefully arranged data with you to a doctor appointment, they take you more seriously!

I have started checking my temperature both orally and at my temple. I had been checking only my temple temperature for years. Then I would go to the doctor, and they would check it orally, and I would never have a fever by that method. The oral thermometer I got is also showing no fevers. It stays between about 97.2 and 98.2. My temple temperatures used to be the same way, but then the temple thermometer started showing fevers that go up as my symptoms worsen. I have replaced the thermometer several times to make sure it wasn't just that the thermometer was worn out. My daughter thinks this may indicate that I am having inflammation localized inside my skull. That could account for the temperatures being different in the two locations. Sort of like when you get a sprained ankle, and your ankle feels hot to the touch.

I am going to arrange another appointment with my primary physician to talk this over, but my daughter's analysis sure seems to make sense to me.

Does any of this sound familiar to anyone? Any thoughts?

Thanks!

The Lord upholds all who fall, and raises up all who are bowed down. Psalm 145:14

A monk was once asked: What do you do there in the monastery? He replied: We fall and get up, fall and get up, fall and get up again. - Tito Colliander

The Jesus Prayer helps to lift the whole life, body and soul, to a level where . . . the world is sought and known in the beauty of God, not God in the beauty of the world. - Mother Maria of Normanby


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