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BARBGEO's Photo BARBGEO Posts: 784
2/24/17 4:48 P

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Hey there, glad to get to know you. I am so sorry about your daughters passing. And the ongoing challenges that each of us face through this battle of the minds... :(

Hugs from WA state!

All the best,
Barb G


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RONDARC's Photo RONDARC Posts: 10,901
2/1/17 4:12 P

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emoticon

~~ Ronda~~

If you make up your mind to be happy there's no reason why you shouldn't have a fairly good time.

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TERRIFICTONYA's Photo TERRIFICTONYA Posts: 518
1/24/17 2:10 A

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Thank you my friend. My attitude has been cultivated through several years of emotional maturity. As I arrived at the age of 40 ( ten years ago) I faced the cold hard reality that no one ( friends, family, etc) was willing to care for me as my health declined so I had to develop a stronger attitude in order to become a healthier person. Now, even though my local circle of friends and family has not increased, I am confident I do not require help from any other person to manage my health.

My daughters passing was a shock to many as it was so sudden. However, knowing that she was spared much stress and struggle and pain brings me great comfort every day.



Terrific Tonya Heathco,Empowered Seizure Survivor!
Life Long Lover of Learning
Goddess of Goodness


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RONDARC's Photo RONDARC Posts: 10,901
1/21/17 6:58 P

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emoticon You have a wonderful attitude! I'm sorry to hear about your daughter. emoticon

~~ Ronda~~

If you make up your mind to be happy there's no reason why you shouldn't have a fairly good time.

Border Collie Lovers - Team Leader
Lets Go Hiking - Team Leader
Dog Lovers Team - Team Leader
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TERRIFICTONYA's Photo TERRIFICTONYA Posts: 518
1/21/17 6:36 P

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What a blessing this intimate group is to be in our lives! I am so glad I came across this group with such a fun and inviting name.

My name is Tonya and I live in TN, managing a life altering diagnosis of genetic brain abnormality PVNH ( Periventricular Nodular Heterotopia) In easy to understand terms, the grey matter of my brain migrates to places it should not be, clusters with other grey matter, forms nodules( tumors), and continues migrating. My doctors say I have the best mindset for this incurable and medically uncontrolled rare disease because I call it "my rocks that roll!" Most prevalent with the neurological disease, I have been recorded as experiencing 8 different types of seizures and , until about 10 years ago, experienced approximately 500 seizures a month. As I used different therapies with y doctors permission, seizures subsided to now approximately 20 seizures a month of only 2 types of seizures. Yes, Life is GOOD!

My daughter was born with the same genetic disease. SUDEP ( Sudden Death in EPilepsy) took her life Nov 29. 2012. She was 27 and left behind a 7 year old daughter.

I am married, however my husband is non-supportive. I'm okay with that. Daily I practice unconditional Forgiveness and unconditional Love. If I were financially independent, there would be no want or need for him to be here. As for now, he is my provider and that is the extent of our relationship.

Living with any type of disease that effects the whole brain will have an effect on the whole body, as will the medications that I must take to balance my day. As result, every system in my body is effected by disease and yet, I CARRY ON!

Keep smiling everyone and step up to ask questions. I am here to share my life, inspire you, and uplift you when you are in want of support.

Terrific Tonya Heathco,Empowered Seizure Survivor!
Life Long Lover of Learning
Goddess of Goodness


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