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NYMELODY Posts: 13
10/16/13 11:34 P

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Hi Nicole,
Just keep being the sweet kind person you're being. Believe me your mom appreciates it tremendously. There's not much you can do other then being supportive, and it sounds like you are a precious daughter.

MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (22,581)
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7/10/13 12:52 A

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Does anybody know anything about Psalm31-2, our leader? Haven't seen her post for a long, long time.

~ Faith

Update - Psalm31-2 is no longer one of our team leaders.

Edited by: MAMABUGAZ at: 10/17/2013 (00:57)
~ Faith
Leader: Doing It With Multiple Sclerosis;
Plateau Busters!!!!;

2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months;have gained.
Goal range: 107-118 lbs/W31.5. Under 123 OK


 current weight: 121.6 
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DEJAMOM55511 SparkPoints: (0)
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4/20/13 9:49 A

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HELLO MY NAME IS ALEXIS AND I AM 33 MY MS HAS GONE HAYWIRE ITS HASN'T STOPPED IN A LONG TIME I HAVE BEEN ON EVERY MEDICINE NOW I AM GOING TO TRY THAT NEW PILL THAT CAME OUT IN MARCH AND SEE WILL IT HELP I AM SO DIZZY ALL THE TIME AND CAN'T FEEL MY FACE



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MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (22,581)
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3/16/13 8:41 P

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I wanted to answer your question, Greenie. "My Neurologist just told my that after 24 or 25 years the MS starts to progress a little faster and things start going wrong, has anyone ever heard of this?"

I kind of have more than one answer to that. Back 10 years or so ago, I used to read that, prior to people with MS using DMD's (disease modifying medications), that RRMS would progress into SPMS in about 10 years in 50% of the people.

Recently, I asked my MS Specialist if there was any current information on that, for those of us who do use meds.
She said that for some people with MS, the MS kind of "burns itself out" and flares quit happening, and it does not seem to move into a more progressive MS either.

However, I think that only happens for some people. I would guess that, since MS is considered a progressive disease, that it is also very possible that, as we age, it begins to progress faster.

I suspect that it's not the same for everyone.

Is your MS beginning to progress faster, MARNA?

~ Faith



~ Faith
Leader: Doing It With Multiple Sclerosis;
Plateau Busters!!!!;

2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months;have gained.
Goal range: 107-118 lbs/W31.5. Under 123 OK


 current weight: 121.6 
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127.5
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MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (22,581)
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3/16/13 8:23 P

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Greenie (I know you, MARNA), Michelle, Ginger, and any other new members:

I just noticed that I've missed a bunch of your introductions hidden here on Psalm31's Stickie.

Welcome, and please come back!

~ Faith

~ Faith
Leader: Doing It With Multiple Sclerosis;
Plateau Busters!!!!;

2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months;have gained.
Goal range: 107-118 lbs/W31.5. Under 123 OK


 current weight: 121.6 
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162.5
145
127.5
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CD13343604 Posts: 149
2/22/13 8:21 P

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Hello everyone my name is nicole. I am almost 30 yrs old. Although I do not have MS I have been affected by it. My mother was diagnosed when I was 17. The doctors thought it was a brain tumor so I am thankful that its MS. She had progressed and relapsed but now it's secondary progressive MS. I also lost a very good friend to MS. My mom was on avonex for years but her doctor wants her to now try tysabri. I guess the reason why I'm here is to keep learning on how I can help and support my mom.

MICHELEKRAUS's Photo MICHELEKRAUS Posts: 121
10/23/12 9:24 A

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Hi everyone,

I am 48, mother of three girls, and I was diagnosed in March 2012 with MS. This followed about two years of dizziness, unexplained leg and arm tingling, and then when I finally got insurance, I was able to get the MRI, etc. Since the diagnosis, I've had two relapses that put me in the hospital, even though I was on medication (Avonex).

In August of 2012, I started the Ideal Protein diet, as well as starting on Copaxone. I haven't had a relapse, and I am feeling better than ever! I haven't started any hard exercising, but I have lost over 40 pounds and I know that, along with the new medication is key to my health so far.

I am now divorced (as of 9/'12), traveling quite a bit for fun with friends (France in Feb '13!), working full time and going to school part-time. I am tired sometimes, but mostly, I feel energized by everything I am accomplishing now.

Nice to meet everyone, and I look forward to helping and being helped!


Highest Weight Ever: 287
Starting weight: 08/01/12 232.0 (Size 22)
September 205.5
October 194.0
November 184.0
December 181.5 (Size 14)
January 172 (size 12)
2013: Maintaining 175-180 and the size 12.
January 2014: Up to 182 and size 14. Getting back on the wagon and will get back down!



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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,450
9/18/12 11:08 A

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Hello, I have had MS for around 25 years I am holding my own I have a little trouble with my legs and cognitive problems other wise so far ok. My Neurologist just told my that after 24 or 25 years the MS starts to progress a little faster and things start going wrong, has anyone ever heard of this?

leader MS & WEIGHT

YOU ALL
LIGHT
UP MY LIFE

GREENIE



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AMYLOUISE327's Photo AMYLOUISE327 Posts: 104
9/9/12 3:38 P

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Hello all! I am newly diagnosed & knew nothing about the disease until now. I am a wife, mom to 4 (20,19,17 & 6, 2cats, a dog & bunny) and kindergarten teacher. I am not able to work right now due to fatigue & balance issues. One of the good thing about K is we always have a restroom close! I will be starting physical therapy & the iv steroids soon. We are working on making a treatment plan. Since I'm starting on this new adventure, I'd love to know all those things you wished someone had told you. I am also interested in how to manage fatigue, exercise and diet. Thanks all!

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KTHURMON Posts: 10
6/28/12 10:31 A

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Hi! I have been MIA on SP, but am recommiting! I have had RRMS since 2006. I have had very few sympoms, so it has been hard for me to accept my dx...especially since I've never been sick before, never been hospitalized except for the birth of my 3 children (Currently ages 4, 8, and 10).

I live in Edmond, OK...moved here in Nov 2011...still looking for friends and someone to help me on my journey.

I also have 2 special needs kiddos.


Kristie

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SUSANBEAMON's Photo SUSANBEAMON Posts: 16,927
6/3/12 1:15 A

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I am new to this forum, but not to MS (I was diagnosed in 2002 at the age of 52) nor to weight loss struggles. My neurologist says I have a demylitising syndrome consistent with but maybe not MS, and carpal tunnel because all my damages are in my spine, not my brain. But my balance is shot, my hands tingle all the time, when I get overly hot I can't think clearly or fast, if I sit in a hot tub, I can't walk very well. And like a lot of people with MS, I also has other problems, overweight, arthritis. I try to separate what the arthritis causes from the MS. There seems to be some overlap. I am loosing finally, mostly because I need hip replacement surgery, and the surgeon wants me 40 pounds lighter. I have 15 pounds to go on that, but I will still be heavy.

KNITTENMOM1's Photo KNITTENMOM1 Posts: 50
5/26/12 6:43 P

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Hi! I think I have already introduced myself but I am Cheryl and I have Chronic Proggressive
MS! I think t hey keep changing it!
Right now I am having a problem with my taste buds and my mouth is dry and it tastes yucky and sweet! A friend told me I have Scojerns or something like that, so I am going to the Dr. next week tosee! It is awful and so I can't eat! At least I can't eat but there must be a better way!! Any suggestions would b appreciated!!

Good luck!! Everyday is a new one!!


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GOALGETTER70's Photo GOALGETTER70 Posts: 28
5/2/12 12:07 A

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Been awhile since i have been on Sparkpeople can not remember if i introduced myself the last time i was on.
My name is Billie i have had Relapsing-Remitting MS for fifteen years, in the last three years i have really declined in health and i think a lot has to do with lifestyle and stress, so my goals are to eat healther, get moving more and to lessen my stress. I am taking a big chance in this economy to try and change jobs since i can no longer keep up with the pace at my current place of employment this is a scary decision, hoping it works out since my doctor does not support me filing for disability yet. Been out walking at least three days a week with lite cardio and strength training a couple days a week. I recently participated in our local Walk MS and make it the whole four miles i was very proud of myself. Just glad to be feeling better and getting some more strength and less fatigue

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AYVAZQUEZ SparkPoints: (0)
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4/18/12 2:14 P

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Thank you. It's actually my mother's name spelled backwards but my name ends with Y not an I. Her name is Ileana. Yea I learned the hard way to listen to my body and not overwork my self with exercise.

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4/11/12 2:52 P

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Wow you have a beautiful name. Where does it come from? Is it Spanish or Hispanic. It looks like my cousin's name.

Well I myself take Copaxone. Honestly the daily injections are not bad. They have a device that you load the needle into, it is spring loaded so it does the actual injection and you don't have to see what you are doing. My mom has MS too and she takes Avonex. She has done pretty well on it. Either the day of or the next day are usually not too great. Makes her feel really blah. Last year she had an MRI and there was no new damage in the last 5 years. There is a possibility that I may need to switch. I am not sure if I am just having my symptoms act up or if I am having actual exacerbation. I am getting a steroid pack again. Yay fun and joy. I guess I will just have to see how it goes.

For you just pay attention to how your body is responding to your meds, your vitamins, your diet, and exercise routine. Different treatments work for different people. Make sure that you don't overdo yourself with the exercise. Your mental and spiritual health is just as important if not more important than your physical health. I will be continuing my research on the positive mind. Personally, I find that my faith is what keeps me going. Every time I want to get super down about something I remember a these verses.

2 Corinthians 12:9-10
New Living Translation (NLT)
9 Each time he said, ďMy grace is all you need. My power works best in weakness.Ē So now I am glad to boast about my weaknesses, so that the power of Christ can work through me. 10 Thatís why I take pleasure in my weaknesses, and in the insults, hardships, persecutions, and troubles that I suffer for Christ. For when I am weak, then I am strong.

Philippians 4:6-7
New Living Translation (NLT)
6 Donít worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. 7 Then you will experience Godís peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.

Deuteronomy 31:8
New Living Translation (NLT)
8 Do not be afraid or discouraged, for the Lord will personally go ahead of you. He will be with you; he will neither fail you nor abandon you.Ē



emoticon ( Aww cute Kitty) I couldn't help using the this emoticon.

AYVAZQUEZ SparkPoints: (0)
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4/3/12 6:33 P

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Thanks Beth. My name is Anaely. I already started treatment with Avonex last week. Have you tried Avonex before? I was terrified of needles so that's I decided to go a weekly injection. So far is going well. I had no idea what MS was and how I got it. So once I was able to get better and come to my senses after my first relapse I have been proactive researching info. With the help of a nutritionist and my primary doctor, I started working on healthy eating, take vitamins, and exercise daily. Faith and positivity has played a huge role in keeping me going. Thanks again for all that info and your support. I really appreciate it. emoticon

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4/3/12 1:19 P

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Hi. My name is Beth. Well we have a wonderful group of people on here and we have many resources. If you need anything that you could not find on here already then let Faith or I know and we will try to find the info or at least point you in the right direction. My best advice being this newly diagnosed is get on a therapy ASAP. For me that included Copaxone, taking vitamin supplements and now also changing my eating habits,focusing on losing weight, working on mental/memory exercises and making sure that I had a right attitude and spirit. What many of us have found is that because of different medicines and the challenges that MS can pose that can make weight gain an insidious little monster. Also depression and other emotional issues can be big hurdles too. I am not trying to scare you. Your best defensive is a good offensive. Be proactive with your doctors about all aspects of your health and also be aware that being positive has huge benefits for your mental.emotional and physical health. That is something I am personally researching is the since behind how we think affects us. The last thing for me personally that makes my journey easier is my faith and belief in The Word of God. So this what I do and it allows MS just to be an aspect of my and not something that controls or consumes my life. Feel free to contact me if you have any questions, thoughts, or concerns.

AYVAZQUEZ SparkPoints: (0)
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3/31/12 11:08 P

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Hi everyone

I was recently diagnosed in February 2012 with MS. As you already know it's scary and challenging living with MS that's why I'm glad to see there's a lot of support groups available. Anyways, just wanted to introduce myself to the group.

SHYFEMMEKAT's Photo SHYFEMMEKAT Posts: 1,778
2/25/12 10:22 A

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Welcome to all the new members!

emoticon



"When you rise in the morning, give thanks for the light, for your life, for your strength. Give thanks for your food and for the joy of living. If you see no reason to give thanks, the fault lies in yourself."
--Tecumseh, Shawnee leader; Mar 1768 - Oct 5, 1813



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KIZZYHAM's Photo KIZZYHAM Posts: 7
2/23/12 4:39 P

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Hello! I'm new to the team, but returning back to the Sparkpeople venture. I have not been definitively diagnosed with MS, but have all the criteria to be diagnosed. I haven't had any new lesions for 2 years...so I guess you could say I'm in a "holding pattern."

I do, however, have bouts of numbness on my left side, vertigo/aura, and fatigue which are mainly stress and hormone induced (great...I needed more than just PMS to deal with, right?). Anyway, I wanted to say "hello." I look forward to meeting everyone...and learning some ways I can get through the fatigue...and get to the business of losing some weight and feeling healthy again!

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LORIHAWKS522's Photo LORIHAWKS522 SparkPoints: (0)
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2/23/12 9:57 A

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Hi everyone! I have gained too much...and need to lose, but with MS it's more challenging to stay motivated. I was diagnosed 5 years ago, and I have about 25 pounds to lose. I have started an MS blog to help myself and others, and to document my experiences with Gilenya, the pill approved for MS. Please check it out if you're interested! MyScarletLetters.org

Thank you for your support :)
Lori



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SOCCRIM7's Photo SOCCRIM7 SparkPoints: (0)
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2/21/12 12:43 P

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Thanks SHYFEMMEKAT! :-)

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SHYFEMMEKAT's Photo SHYFEMMEKAT Posts: 1,778
2/20/12 9:19 A

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Hi SOCCRIM7! Welcome!

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"When you rise in the morning, give thanks for the light, for your life, for your strength. Give thanks for your food and for the joy of living. If you see no reason to give thanks, the fault lies in yourself."
--Tecumseh, Shawnee leader; Mar 1768 - Oct 5, 1813



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SOCCRIM7's Photo SOCCRIM7 SparkPoints: (0)
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2/18/12 3:58 P

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Thanks CAYCEESMOM.

I read through your post about getting diagnosed. I took the long way to the neurologist. My eyesight was extremely cloudy and I had pain when I moved my eye (right side for both). I went to my optometrist, who immediately sent me to the neuro-opthamologist, who sent me to the neurologist after diagnosing my issue as optic neuritis. What a pain.
The neurologist did a spinal tap and MRI on me and found 3 lesions. We knew the one episode was the optic neuritis, another episode was when my right hand and arm was going numb and prickly (my MD told me I had carpal tunnel)...to this day, I have no clue what the third episode was. My neuro diagnosed me after the tests came in, which surprised me...since your neuro is hesitant about disagnosing you, is there another one you can go to, for a second opinion? I have heard of quite a few people with this issue...

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CAYCESMOM's Photo CAYCESMOM Posts: 381
2/17/12 8:23 P

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Welcome SOCCRIM7 emoticon

I hope to get to know you better.

Kelly

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SOCCRIM7's Photo SOCCRIM7 SparkPoints: (0)
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2/17/12 2:13 P

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Hi there...I just joined this team today after finding SP on Monday (2/13).

I am a 38 year old married mother of 2 boys (15 & 12). I was diagnosed in 2008 and have been letting MS rule my life ever since.

A little about me: I was active when I was younger, then, somewhere along the line, got pretty lazy. I gained a lot of weight during both pregnancies and only lost jalf the weight afterwards. I started a family first, then furthered my education. While working on my BA, I did not eat well (blamed it on those late classes). By my 3rd year in the program, I weighed 224 (possibly more). I began exercising and eating better...by the time I graduated a year later (2007), I was down to 170. I continued an exercise program and eating healthier and by the time I began my MA program, was at 147...A year into my program, I was diagnosed with MS.

I used my diagnosis as an excuse for the past few years for my weight gain. I get extremely fatigued, but honestly, I also gave up and used my symptoms as a crutch...well, no more.

I weighed in, when I signed on to SP at 220 and have lost 2 lbs this week. I exercise 7 days/ week and am tying to work on eating healthier and drinking more water (up to 6 - 8oz glasses on most days).

I get really busy most days preparing for classes (I am now a college professor), but still make sure I have time for some form of exercise. I am joining this group in hopes of finding others who are like me (overweight with MS).


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CAYCESMOM's Photo CAYCESMOM Posts: 381
1/29/12 2:38 P

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Hello to all. I have yet to be diagnosed with MS. Me, my internist and the radiologist and lesions on my brain think I have it, now if I could just convince my dear neurologist. That is a frustrating battle. I am sure there are many others here who have had difficulty being diagnosed. I am living in constant limbo and using that as an excuse not to eat better and excersize. I think I'm afraid. Sometimes, my arms get so weak just from taking laundry out of the washer, I wonder what would happen if I was to walk very far from home. I worry that I won't make it back. Then the depression and constant worrying hit and food seems to quiet those fears only to make the problem worse. Right now, I am taking Neurontin and Celexa as well as Synthroid.

Anyway, this seems like a great site with so many helpful, nice people. I am looking forward to being part of this team (well, you know what I mean).



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JUDICAT63's Photo JUDICAT63 SparkPoints: (0)
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1/6/12 8:08 A

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Hi from across the pond - I am 48, have had MS for what seems like a lifetime - heading towards 20 years - had a big relapse last year, but CANNOT have one (WILL NOT!!! LOL) this year as my 28 yr old son is getting married!. I have a daughter who is nearly 24, and she is now living with me - after doing her degree and working 200 miles away - she is my "registered Carer" as MS is not the only problem (is it me or is it MS sufferers - in that we don't just have MS, but usually have a couple of other problems too?). Anyhow, we both need to lose weight and tone up, so I re-joined spark, got her in here too and we are helping eachother - it#s so wonderful to have a permanant buddy to work out with!

we have 4 cats, live in the middle of nowhere - Cotswolds - very pretty, and we are going to lose weight and tone up and look wonderful together!

JudiCat63 /aka Jude / Aka Tabsnpickles!

"Live alot, love a few, BUT ALWAYS paddle your own canoe"

~~~~~~~~~~~~~~~~~~~~~~~~~~
"to be Calm is the highest achievement of all..


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DMORANT's Photo DMORANT SparkPoints: (0)
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11/11/11 12:45 A

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Mom of two teenage daughters (12 and 16) living with my BF (together over a year now) and his two sons (5 and 9). Work full time in the aerospace industry as a Sales Mgr to a team of 30.

In HS I was extremely athletic and never had to worry about weight. Never worried about what I ate and ate whatever I wanted to.

Gained 60 lbs with my oldest child and 40 with the 2nd. It never went away!

I have MS and sometime struggle physically. But I don't struggle everyday so I refuse to use it as my excuse any longer!

I was 238 last year and am now 215. Two months ago I was 205 but had surgery and gained some back. Now I need to stop letting life get in the way and do this!


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PSALM31-2's Photo PSALM31-2 SparkPoints: (0)
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9/20/11 11:34 A

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I have noticed that we have a few new names here. I just wanted to say welcome we are glad you are here with us. Please use this team for information, support and friendship. I am really happy to see that you have joined our team.(although I am sorry that we all have come together because of MS). I hope to be talking to you soon! Have a blessed and wonderful week!

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