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GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (107,694)
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4/26/20 3:48 P

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As one of the older members of this team, I wan to encourage you younger ones to move as much as you are able. I know it is hard with these pain & fatigue issues but trust me it is best for you. I have had fibro & arthritis for about 20 years now & it has gotten worse not better. Do your best to get through the rough days and you will find good days around the corner,

I am happy to see more members on this team & look forward to getting to know all of you. Emotional support is so important for all of us.

Karen from Ohio

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KITTEN333's Photo KITTEN333 SparkPoints: (1,616)
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4/20/20 11:37 A

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Hi, I'm Jen. Trying to get back on the wagon. I'm out to lose a total of 80 pounds but I am going at it 20 pounds at a time. Fibro has really kicked my butt this last year and I really put on some weight. I am ready to get it off!
I have a wonderful fiance' and a lovely adult son and a beautiful kitty as well as my parents and future mother-in-law as a steady support system. However, I still need the support of those who know what it's like to go through exercising with fibromyalgia or any other chronic pain disease.

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FRAGMENTEDANGEL's Photo FRAGMENTEDANGEL SparkPoints: (8,424)
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3/2/20 3:30 P

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Amanda here. Back on the site after 5-6 yrs away. I've fallen off of the weight management wagon due to personal issues and health issues. I was diagnosed with fibromyalgia just shy of 2 years ago. I'm the heaviest I've ever been and i'm hoping to figure out how to drop back down to something approximating healthy in ways that don't exacerbate my condition. I'm currently a volunteer crossing guard for my local elementary school. It gets me out of the house and at least semi active. Unfortunately my inability to work a "proper" job limit my funds. This makes healthy eating difficult.I have 2 grand daughters and i want to get back on track so i can play with them as they grow.

The elevator to success is out of order. You'll have to use the stairs...one step at a time.


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MRSJENRICKS's Photo MRSJENRICKS SparkPoints: (1,548)
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1/20/20 5:43 P

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Hello All,

I am Jennifer. I just joined the team and am excited to be here. I have several chronic illnesses, which I am sure does not make me unique. I have been fighting to have a normal life for the last year, and while it has been hard, I have enjoyed myself.

I look forward to getting to know all of you.

Jen

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MELISSARAYNES's Photo MELISSARAYNES Posts: 22
1/9/20 3:40 A

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Hello. My name is Melissa. I am a very positive person. I live my life through Winnie the Pooh characters. Today, I feel Tigger-ish. Today I feel like Eeyore. Today, I feel like. It puts my feelings and my emotions into perspective. I am not any of these characters, but I "feel" like these characters on any certain day. I have anxiety, and I feel like Piglet sometimes. I have chronic kidney stones and I feel like Rabbit some days and Eeyore other days. The biggest thing for me is that I "try" to act and think like Tigger and realize that I have the power to chose how I act and feel. At the same time, I can't be Tigger all the time and I don't want to be Tigger all the time. It's okay to feel like Piglet, and it's okay to feel like Eeyore... and all the other characters. We have every character within us and that is a wonderful thing.

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1/7/20 12:44 P

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1/7/20 12:42 P

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ASHLEYDAWN628's Photo ASHLEYDAWN628 Posts: 316
1/5/20 2:17 P

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I’m Ashley, I’m 31 and was diagnosed with Fibromyalgia and Arthritis about 10 years ago.

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TENACBUTTERFLY's Photo TENACBUTTERFLY SparkPoints: (0)
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8/8/16 11:21 A

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Hi
I am coming here seeking help. Not for me I have me pretty much on the right track I think, but my husband about 6 months ago started losing weight, and losing energy. seem like it gets worse each day. Down to skin and bones now. Have done a million tests of all kinds and doctors cannot tell us what is wrong. cat scans, blood tests, emgs, needle tests, stool tests, and they all come up negative. We do not know what to do. If you have any idea what it can be please send me a mail and tell me what you think so I can ask doctors. They did find inflammation around his aorta but say that would not cause all this for him. Thanks for listening to me. We are frantic and all we can do is pray because we do not know.
Thanks
Hallie

12/31- 270 1/7- 260 1/14 1/21 1/28- 262.6 2/4 2/11 2/18 2/25 3/4 3/11 3/18 3/25 3/31
God's Riches Blesings upon you.

Watch your thoughts; they become words.
Watch your words; they become actions.
Watch your actions; they become habits.
Watch your habits; they become character.
Watch your character; it becomes your destiny.
Lao-Tze


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JULIAINLA's Photo JULIAINLA Posts: 991
8/6/16 2:39 P

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WELCOME -SEAWAVE!!. Thank you for sharing your story. Many of us here at Chronic Illness Cafe are going through such different yet similar experiences with our health issues -physically and emotionally too. But we stand united to endure and thrive no matter how tough it can get. We chronic illness survivors keep treating (battling) our illnesses with medicines while striving to keep a positive outlook. Also we keep active as possible and for some pursuing enriching interests such as various types of art projects (creativity is great medicine!) But please don't push your self too hard-just keep as active as you are able- if only to do a little of goals per day (-that's still very good.) You might notice that this group isn't always that active (because of our illnesses)...but we are all still here as a group and we are very happy to have you here with us. Please feel free to share again whenever you feel like it. Stay strong, stay positive and, and no matter what keep it going....! emoticon emoticon emoticon

By the way,... sorry for the severity of your illnesses that you are going through. That is extremely challenging for you. Hope you are feeling better soon. emoticon

Edited by: JULIAINLA at: 8/6/2016 (14:42)
"You never know just how strong you are until being strong is the only choice you have"
Unknown


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SEAWAVE's Photo SEAWAVE Posts: 1,421
8/6/16 10:10 A

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I've been with SparkPeople on and off for a few years, but just found this team. I'm home!

I'm Mom to one 22 year old young adult who recently moved into his own home with friends. So my wonderful husband an I have an empty nest which is quickly filling up with renewed interests - for example, we're turning our master bedroom into an "artists studio".

It's so difficult to find people (and solutions) I can relate to - chronic illness is a different beast, isn't it? I have had cancer a couple of times (thyroid and breast). Hysterectomy and ovaries removed because of pre-cancerous cells. This year started going for scans every three months for suspicious lumps - possibly oral cancer now. I get migraines that can last days - July was a write off because of this. So far, the only triggers seem to be the weather and eating wheat products.I have osteoporosis from the meds they gave me for the cancer, and have severe pain because of it - started using a walker about a year ago. I can gain 20 lbs in a month when the Synthroid randomly decides not to work. I have severe sleep apnea and insomnia. I've been on unpaid sick leave since last Sept, arguing with the insurance about coverage. Apparently, they still don't have enough info despite the 85 pages of medical notes my doctor sent! Oh, add severe depression to the list (but I'm good at "hiding it" say the docs!)

I'm also trying to figure out how I can be more active generally when any or all of these problems hit me, to stop my "two steps forward, four steps back" cycle. I'm still fighting the fight, and am just now coming to terms emotionally with "what if this is as good as it gets?" They say to keep going with your hobbies, etc. to keep the morale up, but all of mine involve movement that I can't do at this point so I'm trying to develop some more sedentary interests, like sewing and watercolour painting.

Sorry to be so long - I don't think I've ever put all this in writing in one place!

SeaWave
Spring Starfish - EDT

Solvitur ambulato

I am who I chose to be. Stronger. Leaner. Further. Fierce.

Because I love...

Whether you think you can or you can't, you're right.


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JULIAINLA's Photo JULIAINLA Posts: 991
4/22/16 12:26 P

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So glad you are feeling better today!! I hope it continues...! emoticon emoticon emoticon emoticon

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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CAMIL416's Photo CAMIL416 Posts: 311
4/22/16 11:20 A

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Thanks again,
I have been out of gabapentin which I take for pain and fortunately It work very well for me. I supplement it with tramadol or aspirin or ibuprofen depending on the level of my pain. I filled my rx yesterday and Took it last night before bed. I feel much better today. emoticon

Camil


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JULIAINLA's Photo JULIAINLA Posts: 991
4/21/16 6:50 P

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It really is. Many people on our team here suffer greatly and its understandable that they don't feel up to checking in here often. BUT we encourage everyone to please try to from time to time. We want to know how everyone is feeling. This is a good place to report how you feel or any thoughts about your progress.
Hope you don't experience that flare up you're worried about. If it does, hopefully it will pass quickly or be at least mild.
Sending positive energy for healing to you-and to all our team. emoticon

Edited by: JULIAINLA at: 4/21/2016 (18:51)
"You never know just how strong you are until being strong is the only choice you have"
Unknown


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CAMIL416's Photo CAMIL416 Posts: 311
4/21/16 3:18 P

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Thanks. I know it is hard to stay consistent in anything when you have chronic pain emoticon

Camil


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JULIAINLA's Photo JULIAINLA Posts: 991
4/21/16 3:08 P

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Hello WELCOME to our group CAMIL416 emoticon
Sorry to hear about your Fibro CFS and Osteo Arthritis.
We are a semi- active team here I think because we are all chronically ill .
But please check back in whenever you can and let us know how you are doing... emoticon


"You never know just how strong you are until being strong is the only choice you have"
Unknown


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CAMIL416's Photo CAMIL416 Posts: 311
4/21/16 11:24 A

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Hi, New here I have Fibro CFS and Osteo Arthritis. I live in Louisiana. I just turned 63. I am a grandma and live alone with 2 cats. Just moved and on the verge of a flare. Have been diagnosed for about 18 years. I hope everyone is having a good day. emoticon

Camil


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JULIAINLA's Photo JULIAINLA Posts: 991
4/12/16 12:30 P

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Hi Emily! Welcome! emoticon
I have been taking Tylenol for 3 years for a chronic pain condition and I noticed that I have gained weight I cant seem to lose. I looked up on the internet if this has happened to anyone else and I read a couple of articles saying it has been reported. Based on this I'm thinking that there is a chance your meds (one of them or more) maybe are contributing?
I am looking forward to sometime being able to stop the daily doses of Tylenol if my condition (ever!) improves. Then I guess Id see for sure if it is it. Before I got sick I was 30 pounds lighter. I can't seem to stick to a 1200 cal diet-I get so hungry....

Edited by: JULIAINLA at: 4/12/2016 (12:31)
"You never know just how strong you are until being strong is the only choice you have"
Unknown


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TAZANGEL36's Photo TAZANGEL36 SparkPoints: (5,000)
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4/11/16 12:50 P

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Hi, everyone! I'm Emily, psoriatic arthritis, fibro, and a list of others. I'm starting to wonder if the meds are affecting my ability to lose weight... I'm about 40-60 pounds overweight, and of course you know how much exercise helps and hurts us. I spent 4 months on a 1200-calorie a day diet, tracking, healthy food... scale didn't budge a single pound, clothes didn't become any looser. Really frustrating! So if any of you have tips, tricks, thoughts, I'm all ears!



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JULIAINLA's Photo JULIAINLA Posts: 991
3/16/16 8:55 P

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Hi, I really like it too. I notice on Spark People that there are a lot of good quotes. I should probably add more as I find ones I like! emoticon

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (107,694)
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3/16/16 7:10 P

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I like your quote by unknown.

Ohio


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JULIAINLA's Photo JULIAINLA Posts: 991
3/16/16 6:06 P

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Hi Karen, welcome to the team emoticon
Sorry about your fibro and arthritis. Its sounds like you got some great family to hopefully distract you from your pain -grand kids and great grand kids -wow! Very nice!

This group doesn't always get a lot of activity because I think many of us are sick with pain issues and don't check in on a regular basis.
But I think we try to keep it going as much as possible... emoticon

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (107,694)
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3/15/16 3:23 P

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Hi

I am Karen from Ohio. I have fibro & arthritis. I retired from job as social worker with Head Start a few years ago. I now work one day a week as activity assistant in a memory care unit.

I live with my two geriatric dogs. I have tons of kids, grandkids & great grandkids. They keep me going along with my faith, supplements & prescription meds.

Love Spark & slowing loosing a few pounds.

Karen

Ohio


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-THINQ-'s Photo -THINQ- SparkPoints: (70,048)
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9/28/15 9:25 P

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emoticon hi, there!
i'm Lizzi, known as LizziQ.

I have sjogrens and fibro, for which i was using lyrica but that went up too far in cost for me to keep using it. now i have another older med which hasn't really kicked in yet.. or maybe it has, i have been so busy and stressed that i haven't even given myself time to hurt.

i'm slowly getting back to exercising after spinal surgery a few years ago, and am finally dropping lbs again, albeit slooooowwwwly!

nice to see people here and posting, so many teams wind up not being visited for long periods of time, even with the efforts of wonderful leaders.
we have Four here, so Whoot! hopefully that'll make it easier for all.

i'm off to track my food and such; 'see' you all later!

Lii ~~~ -THINQ- PA, US Eastern Time Zone
BLC43 Spark Sisters Rising! Cappy2
Heres our Tracking Thread:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=34662x71554
x73476867

See this one for the Sheet:
docs.google.com/spreadsheets/d/1Czz
rkCGqvTVwEAKKEQ6uZZGlO2sP4H19KIUUYjHLF
yg/edit#gid=0


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JULIAINLA's Photo JULIAINLA Posts: 991
9/2/15 2:13 A

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Hi Bri! WELCOME! Sorry about your fibro. That is very painful from what I have always heard. And I guess you get very tired too. I understand because Ive been fighting a terrible virus for two years that exhausted me (but I think I;m slowly recovering). Sometimes our team here doesn't do too much posting. -I think everyone is dealing with their illnesses (and I say that with all concern, caring and love).
Myself and a few others do try to stay active here as much as possible. South Colorado sounds like it must be a beautiful place. I Hey I hope you do that 900 minutes Sept goal. Go BRI!! emoticon emoticon emoticon

Edited by: JULIAINLA at: 9/2/2015 (02:15)
"You never know just how strong you are until being strong is the only choice you have"
Unknown


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 11,125
9/1/15 6:00 P

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Hi, I'm Bri from Southern Colorado. With fibro, even though I want to be consistent, things go kablooey.

I've joined challenges but feel like I let my team down. I'm sure illness and times when my energy is too zapped to even check in for days on end sounds like excuses.

just the same my fitness goal for September is 900 minutes. some days i'll do more than 30 minutes and days less.

nice to meet you all. I hope I can be a support to many of you. emoticon




A goal without a plan is just a wish.


JULIAINLA's Photo JULIAINLA Posts: 991
8/5/15 3:52 P

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Carolyn, I hope you achieve that weight loss goal. I know it must be so difficult-since you are sick and in pain. Food can be so comforting. But just try to eat healthy and watch the size of portions, right? You hang in there-as you are strong willed and you are positive. :)
Your cat is 10 years old, well that is a blessing! May she continue on another 10 years-. I had a cat that lived to 17.

Edited by: JULIAINLA at: 8/5/2015 (15:54)
"You never know just how strong you are until being strong is the only choice you have"
Unknown


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CANTATA's Photo CANTATA SparkPoints: (0)
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8/4/15 11:00 P

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Thanks Julia! I'm definitely encouraged to be back here again and hopefully drop another chunk of weight. emoticon

I realized a little while ago that I said one of our cats is 8 years old. My mind must be wandering, since she is actually 10 years old now!

Carolyn

Don't take your organs to Heaven; Heaven knows we need them here!

Please become an organ donor.


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JULIAINLA's Photo JULIAINLA Posts: 991
8/4/15 3:32 P

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Welcome back...you seem to be a strong and resilient person. I am sorry you have been suffering so much for so long..I am very glad you have wonderful faith and a wonderful husband.,I hope you continue to get /feel better... emoticon .

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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CANTATA's Photo CANTATA SparkPoints: (0)
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8/4/15 7:38 A

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Not sure just how active this Team is .... I thought it would be more active than it appears by the dates of most recent posts!

I'm a returning Sparker. Numerous hospitalizations took me out of nearly everything for several years, and I even spent 15 months in hospice care (at home)! Am doing somewhat better now, though just got out of a week-long stay in the hospital a few days ago.

The nice thing is that even though I've been gone for 6-7 years, my weight is only 5 lbs. more than it was when I left! (And I had lost about 47 lbs. at that point.) So, I'm very happy that I don't have to lose the same weight all over again.

I have severe fibromyalgia, mild asthma, Crohn's Disease and a very rare liver disease called Primary Sclerosing Cholangitis (requires a liver transplant, but I'm not in the running for that and that's OK by me). I'm quite content to enjoy what God has blessed me with and face each day as well as I can. Drs. told us in 2004 that I had less than 2 years left at the most. In 2011 (after a 40-day hospitalization), they told us I had probably only a few weeks to a couple of months left. I'm still here. :-)

Toughest part of my life is that my 91-year-old Mom lives with us. She has major back issues, COPD, and some dementia. It's hard to be caregiver for her when I'm in the hospital myself!

I'm blessed with the best husband imaginable. We will celebrate our 37th wedding anniversary in less than 2 weeks. No kids, but we have 2 cats that rule the roost .... a 8 year-old Maine Coon mix named BiddeFur, and a 2 year-old Bengal mix named HazelNut.

30 years of chronic illness have taught me a lot about patience and about gratitude for each new day. :-)

Edited by: CANTATA at: 8/4/2015 (07:39)
Don't take your organs to Heaven; Heaven knows we need them here!

Please become an organ donor.


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JULIAINLA's Photo JULIAINLA Posts: 991
1/1/15 3:45 P

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HAPPY NEW YEAR ZM! Welcome to the team! Sorry to hear about your illness but glad to know you have such a positive outlook. -It is difficult to live with the pain but trying to be positive is key - to live our lives as normal as possible helps immensely. That's wonderful about your writing! emoticon emoticon

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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1/1/15 3:32 P

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HI!

I am ZM, (pronounced ZIM!) I have to do something about my weight because of my health, but my health makes it hard to know which path to choose about my weight. I am sure that is something that I am not alone in dealing with.

I have had fibromyalgia for 20 years, arthritis for about as long. The arthritis is in my spine, sternum, arms, legs and pelvis. I also have Interstitial Lung Disease, and a long litany of conditions that I do not focus on, because it just gets maudlin.

I am thrilled to have found a group of people who know what it is to wake up some mornings and just have to lie there until you either get the energy or oxygen to get up or the pain under control so you can move without screaming. I am interested in finding ways to live around my chronic illnesses, instead of live with them. Living with them has just turned into a major bummer.

I am a writer of mostly horror, but also paranormal suspense, poetry, flash fiction, short stories and prose in all genres. I write songs as well, they are mostly praise and worship. I am learning to define myself as a writer, singer, kitty-parent and all the things I am besides a Chronic Illness Sufferer.

Happy New Year!
ZM

JULIAINLA's Photo JULIAINLA Posts: 991
11/14/14 12:29 P

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Hi Laura Welcome back. Sorry for your illnesses -I hope you keep taking good care of yourself - keep hanging as you need in the Chronic Illness cafe. We all want you to feel as best as you can but we are hear to listen when you need to talk. That's wonderful you are getting married in June! :)

"You never know just how strong you are until being strong is the only choice you have"
Unknown


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LILANGEL181's Photo LILANGEL181 Posts: 155
11/14/14 11:38 A

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Hello, My name is Laura. I'm new to this team and a returning sparker after almost 3 years absence. *WAVES*

A little about me? I'm 29 years old and on June 7th, 2015 I get to marry my favorite man ever! We just bought a home together and are so excited! I have both Charcot-Marie Tooth- type 1 (a degenerative neurological disease that causes the nerves in my hands and legs to slowly die) and Narcolepsy (no, never fallen asleep randomly).

Nice to meet you all!

~ Laura


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LYMIEKANGAROO's Photo LYMIEKANGAROO Posts: 9
10/10/14 11:53 P

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G'day Julia, Welcome to spark people. Its a really good site with some helpful info that I hope helps in your journey to wellness. what you're going through sounds terrible, I really hope you get some answers soon. One tip I use to help with head pain... wear sunglasses if using the computer for too long (though you might already do that), the bright screen, even when dulled lots, can make the head worse. There are so many strange conditions out there, its really quite overwhelming... we never realize how lucky we were when we were healthy, but we will be again :)
Something else that may help... try to incorporate more anti-inflammatory foods into your diet, as well as alkalising foods (I try to drink freshly squeezed lemon juice in water every morning ~ even though lemon is acidic, for some reason it has an alkalising effect on the body). And maybe do a 3/4 week trial off possibly inflammatory foods such as dairy, wheat and gluten and see if that helps a little with the pain. It may not fix the problem, but it may help the symptoms, and we need all the help we can get :)
Final note (and this is because it happened to me)... if you were bitten by a tick prior to getting sick (even a year or more) get checked out for vector bourne illnesses.
Be well honey, hugs liz x

"You never know how strong you are.... until being strong is the only choice you have"
"A careful man tries to dodge the bullets while a happy man takes a walk" Eels


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JULIAINLA's Photo JULIAINLA Posts: 991
10/10/14 10:49 P

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Hello, this is Julia-in -LA.(Los Angeles). I have been sick 2 plus years with some still un-diagnosed illness that they think might be a brain virus in my Cerebellum area. It effects my ability to walk easily and my ears ring constantly with back head pain and strong pressure. IT is chronic. I pray it goes away. I hope everyone is coping alright with their illnesses here in the cafe'. I know its hard to endure!

"You never know just how strong you are until being strong is the only choice you have"
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LYMIEKANGAROO's Photo LYMIEKANGAROO Posts: 9
9/25/14 7:33 A

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G'day, I'm in Melbourne Australia and am new to the spark teams. Err... is it polite to start an intro with grumbles ??? I have Chronic Lyme disease, Babesia (poss other tick infections yet to be confirmed) Fibromyalgia, Chronic Fatigue, Hypothyroidism, bod-wide arthritis, a yummy chocolate addiction... emoticon and er... have a cat, snake, fish and love gardening. I'm on month 4 of my Lyme treatment and know its going to be a slow road to health, so just try to keep smiling. I'd love to hear from any fellow Lymies, or just anyone to say g'day. Catch ya round, Liz x

Edited by: LYMIEKANGAROO at: 9/25/2014 (08:12)
"You never know how strong you are.... until being strong is the only choice you have"
"A careful man tries to dodge the bullets while a happy man takes a walk" Eels


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JEFFJAPAN SparkPoints: (1,633)
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9/3/14 5:15 P

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In a medical report that was written in Japanese that had was about my MRI. It said 'T2, FLAIR' could somebody plea tell me what it means.

CMRRN123's Photo CMRRN123 SparkPoints: (671)
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9/2/14 5:21 P

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http://www.mslivingwell.org/learn-more-abo
ut-ms/understanding-your-mri/

Take care of your body, its the only place you have to live.


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JEFFJAPAN SparkPoints: (1,633)
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9/2/14 5:17 P

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In a medical report that was written in Japanese that had was about my MRI. It said 'T2, FLAIR' could somebody plea tell me what it means.

CMRRN123's Photo CMRRN123 SparkPoints: (671)
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9/1/14 2:17 P

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A newbee to SP. I have Fibromyalgia, diagnosed in 2002. Have been in a pain management clinic which put me on Fentynal patch which I had a sever reaction to. Was then put on Lyrica which is not recommend for people with Macular Degeneration...had to have monthly injections in my eyes to stop bleeding. I can't take any type of pain medications due to allergic reactions. I have tried walking as a form of exercise, but, that only led to Chronic Fatigue which caused me to sleep for 3 days. I'm finding it very difficult to loose weight which in turn leads to depressed mood. I hope to find some help here on SP.

Take care of your body, its the only place you have to live.


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JEFFJAPAN SparkPoints: (1,633)
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8/31/14 3:56 A

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A day late and a dollar short. The story of my life...
This past Tuesday after months of asking my endocrinologist if i course please see an neurologist and only getting looks like 'you're a hypochondriac,' she finally let me see a neurologist who didn't believe me when i said i had Melas(mitochondria encephalomyopathy with lactic acidosis and stroke like symptoms)and that i had thought i had a stroke like episode until the MRI that showed Yes i did indeed have a stroke. A small localized one. but a stroke none the less that's gone untreated for a year. It sucks when doctors don't believe you. I also tried to enlist cardiogist on my medical team. Only to be seen by my endcrinologist when i asked to see a cardiologist she 'he won't see you because he doesn't know anything about mitochondria diseases'. The nearest mitochondria doctor is in Tokyo. 2
hours away by bullet train. I question my endcrinologist's ability to determine whether i have cardiomyopathy or not.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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8/30/14 3:38 P

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What kind of cheese would you like? lol Hey, whining, venting, whatever you call it. Its good to do it sometimes. Welcome Jeff. sorry for the delay. that's me.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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JEFFJAPAN SparkPoints: (1,633)
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6/8/14 6:43 P

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Hi i'm Jeff and i've been living in Japan for 13years now. I've had low grade chronic depression since fifth grade elementary school. Now i'm 36 i still have depression and it seems to be getting worse. I was diagnosed with melas a mitochondria disease ten years ago. I was diagnosed with diabetes six months ago. I can't excersize toomuch or i get lactic acidosis..but for diabetes i need to exercise to keep fit andmaintain good glucose control. I live in aichi prefecture and the only mitochondria docs are two hours away by bullet train in tokyou and yes i'd love some cheese with my whine.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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4/3/14 12:09 P

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Hello to all the new members. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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LARTOON's Photo LARTOON Posts: 42
1/20/14 2:10 P

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hi Rachel... I know what you mean. :(


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RACHELVP SparkPoints: (87)
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1/20/14 1:33 P

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Hi, I'm new here. I have an immune deficiency and other autoimmune diseases. I'm house-bound so I don't get to do a lot of exercise. I had lost over 100 lbs. but since I got sicker, I put back about 30 or so. I need to get back on the right track and move in the right direction.

LARTOON's Photo LARTOON Posts: 42
1/18/14 11:26 A

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Hi Jayne, Hi All. I'm also new here. Again, looking for lots of motivation to start the 2nd half of life. Need to lose 50 and on #4. Its so not easy! But I'm from MS, and now live in Canada. A new life, a new start! Cheers All, and good luck as well.

Josie

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JBREWSTER70's Photo JBREWSTER70 SparkPoints: (1,150)
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1/8/14 11:39 A

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Greetings from Houston, TX! My name is Jayne, I am a mother of three teenage boys, and wife of 17 wonderful years to my best friend. I have lost 20 lbs so far and about 50 to go. I have been dx with FMS and chronic fatigue. I've been learning a lot since I've been a member here. I think the biggest lesson I am working on right now is acceptance. That and patience. I am a people pleaser by nature so, I'm working on accepting that's it's OK if I don't get everything done when I don't feel well, Or if I run out of time. 😊
I'm glad I found y'all !

Twitter: jayneB09


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ROSSKT88 SparkPoints: (2,713)
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12/19/13 1:22 P

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Hi everyone, my name is Katie. I am 25 years old and last year I got diagnosed with Ulcerative Colitis a type of Inflammatory Bowel Disease. It got so bad to the point where in April of this year they had to remove my large intestine. I am working on keeping the weight I lost off because I was really overweight. I have two more surgeries coming up and I need to be as healthy as possible. It's been a lot to deal with but I have the support of my family and friends and that really gets me through the tough days. I have also found when I get down that listening to my music and doing a 10 min. workout can really lift my spirits. Thank you for adding me to your group and I hope we can all reach our goals, whatever they may be.

CD14358620 SparkPoints: (1,152)
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11/21/13 8:52 P

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Hi folks ~

Another severe fibro person here (and osteo and ????) Recently moved homes and starting to work my way out of a looooong flare. Have had some success decreasing pain through diet (no prepared food, wheat or corn. very limited dairy ~ who knows what's next). I need to find that balance between pushing myself to ++ goals with exercise without re-injuring myself in the process. Look forward to getting to "know" some of you. :-)

CD14346874 SparkPoints: (763)
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11/13/13 8:50 P

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Hi my name is Bonnie. I have fibromyalgia and POTS and my 2 disabilities are Tietze Syndrome and a neurogenic nerve disorder in my left rib cage. Due to all of this my soon-to-be ex-husband handed me divorce papers when I was approved for my disability...but honestly, I am so much happier without him!! My goal(s) are to move 30 minutes a day. As you all know this is a challenge. And I wouldn't complain if I lost 20 pounds in this process:0). The cold weather is upon us here in Ohio so I joined Planet Fitness. I am looking forward to starting my new life with a better me:0)

Edited by: CD14346874 at: 11/13/2013 (21:05)
CD8248021 Posts: 2,161
9/18/13 9:29 P

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Back after a mental and physical break down - health took a real set back - probably brought on by me thinking I could do it all after a first bit of good health and success in years - last year from end of May to November I lost 26kgs and felt better than I had in forever I was even up to walking 10kms a day - well being forced to return to full time work, my doctor deciding to wean me off meds she decided I didn't need and well hectic and stressful family life by the end of December the weight was alaready slowly climbing and I was averaging 2 days a week bed ridden - fast forward to June and I was gettting disciplinary action for too much absenteeism, had a bit of an emotional collapse decided nobody could help me and I was going to sulk, from June to now I have put on another 15kgs :-(

So here I am back at 130kgs and have pulled my head out of my backside - needing support and to remember slow and easy is better than going all out then falling and failing

I have chronic fatigue, fibro and all the nonsense that entails including half the people in my life telling me it doesn't exist or isn't really a condition or that I'm just lazy/fat/depressed etc

I also have had since birth bronchial issues ( get pneumonia regularly) and liver problems. Since my early 30s there have also been issues with hormonal stuff which results in some pretty cruddy times but numerous tests and meds can't seem to work out why - and amongst all of that my bowel stopped working at all and I became enema dependent - again they cannot work out why

I was up to 27 prescription meds a day plus natural stuff but as most of it appeared to be doing nothing except sending me broke I weaned myself off most of it since June and am now down to 3 prescription meds a day (apart from during TTOM when that increases as I have to take meds to make my blood clot) and am on about 5 natural supplements which are helping - including spirulina blue which is AWESOME and means I can get through the whole day at my desk job - no sick days since July which is a miracle for me :-)

So hope to get to know some cool people on here again that can help me keep positive and focussed

Deb




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7/28/13 11:02 P

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Hi,
I am brand new to sparks. I am a disabled physician. Starting in medical school, I was diagnosed with MS, chronic mono, chronic fatigue syndrome, POTS, chronic hypovolemia, Lyme disease and, most recently illness from black mold exposure.

The actual truth, in retrospect, is that I developed Lyme disease at age 17, which was misdiagnosed as various things over the years. Right about the time i was finally diagnosed and treated, i moved into a house that was full of black mold. After 10 yrs of that, which caused severe disability-I spent those 10 yrs in bed-that is finally diagnosed.

I recently moved to Dallas for treatment. Am quite lonely and discouraged.

TLICHIE's Photo TLICHIE Posts: 174
7/20/13 7:38 P

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Hello!

I'm back to sparkpeople after a while away. I've been ill with Chronic Fatigue Syndrome and Fibromyalgia for 20 years. I do what I can, but some days that's not much!

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CATMARIE1960's Photo CATMARIE1960 Posts: 801
6/27/13 8:53 A

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Hi, just dropping in to introduce myself. I'm Catherine, and am coming back to SparkPeople after a year or more absence.

I came looking for this team, not for myself, but for a cousin-in-law. She has several chronic illnesses and I am so worried about her. I'm here to learn so I can be supportive and helpful to her.

Don't wait for January first or even next Monday to start anew. Do it now!

Sexy comes in all shapes and sizes!


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
6/8/13 2:23 P

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Hey everybody, I am glad to have stumbled upon this team. I have been sick for years and believe that it's more complicated than fibromyalgia and parasites... I am investigating Lyme and believe there is a strong possibility of me having it. I am doing my best to learn as much as I can and how to treat it and by whom. Thanks for being here!

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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PRIVATEFATGIRL SparkPoints: (554)
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1/17/13 11:19 A

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HI All I am new again to spark pages I am really serious about getting my weight and health in order I am morbid obese. I have to get control of this I need all the support I can have. I am so determine. I just marched in place for 2 mins and was so out of breathe it was ridiculous But you know what the best part about is I did it I will be joining as many teams as I can and making realistic goals for myself that I can achieve I will not accept failure anymore that is not a option for me anymore. I have a beautiful little boy that has special needs I need to be healthy to care for him. I need to begin to control the things I can . I can control what goes in my mouth. Please feel free to add me as a friend I am very friendly I need you all and just to let you guys know I have to copy and paste my intro to all the teams because I refuse to be typing all day lol Any who I am looking forward to being successful with you all

LADYSLIPPERS12 Posts: 7
12/29/12 2:45 P

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Glad to be here. I am homebound from Dec-Apr so this is terrific. I haven't had a chance to read others posts yet I am still setting things up but as you see I have plenty of time to do it. emoticon

RECHARGEREVAMP's Photo RECHARGEREVAMP Posts: 96
12/3/12 11:02 A

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Hi! I am Amanda. I am 27 years old and have a preschool aged girl. I also have Lyme disease and Rocky Mountain Spotted Fever. This is all rather new to me since I have only been battling it for about 4 months. I am currently finishing off my first herx after an ozone treatment :-P. I'm trying to stick with the Paleo diet to help with the Lyme and hopefully lose the intense amount of weight I need to. It's hard to find support here in the Southwest, but I am lucky to have amazing doctors and an LLMD. Hopefully I can make some friends here who can understand what I am going through.

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CD13343604 Posts: 149
11/24/12 10:25 P

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Hello everyone. My name is Nicole. I am an emotional and I tend to over eat. I get so depressed at times that I ether stay in bed all day or make a huge bowl of air popped popcorn or chips and I can easily eat the entire bowl. I am not even hungry but I just love food. Good makes me so sick also from all my allergies. It makes my physically and mentally sick. My mind gets all cloudy and I have these sneezing fits and paralyze in my arms and legs at times. You would think that would make me stop eating so much for whatever reason but it doesn't. I need some help here.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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11/17/12 1:30 P

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emoticon Welcome new members!

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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MOPPET4 SparkPoints: (0)
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11/7/12 10:18 A

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hi
omy gosh!! i know exactly what you are going thru. I had a vp shunt done in 2010, which left me no stamina for exersising--and,yes,food is my comfort. I''m turning into a tv addict,my family cannot understand why i am like this. let's chat often, and i would be honored to be your spark friend.





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MOPPET4 SparkPoints: (0)
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11/7/12 9:59 A

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what an inspiration you are. I had hydrocephalus'diagnosed in 2010.had vp shunt put in..still having issues with balance and memory I am 60 yrs old. My motivation to keep well is non instinctive. I also have joint and bone pain issues. let's talk often-------we need progess report from each other.I would be honored to be your spark friend.

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KARENSTURNNOW's Photo KARENSTURNNOW Posts: 30
8/30/12 4:26 P

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Hi,y'all! I have been on and off of SP for about a year and a half but am fairly new to this group. I was diagnosed with fibromyalgia about 12 years ago. In 2007, I became very ill with recurring diverticulitis. After 5 hospitalizations, I had surgery and had 18 inches of my colon removed. After that, I had to have 2 more abdominal surgeries, incisional hernia repairs. I was so sick and so weak from it all. I couldn't even walk through a grocery store. Then, in 2008, I was diagnosed with Trigeminal Neuralgia. I thought I knew what pain was after my surgeries. Compared to the Tn, surgery is a cake walk. In 2010, I went through a medically supervised 12 week nutrition and exercise program at my local YMCA . It was the jumpstart I needed. I lost 56 pounds. But in the last 6 months, I have regained 30 of those pounds. It makes me ill to think about all my hard work wasted. But I am trying again despite my issues with pain. I wanted to encourage those with FMS that exercise really does help, with the pain and especially the stiffness. (although mornings are still pretty tin-manish) I also wanted to let you know that my doc prescribed me Topamax and Baclofen for my TN but it had the wonderful side effect of greatly reducing my Fibro pain. (I am no longer on these meds so I definitely saw a difference when I weaned off of them). Maybe those meds are an option for some of you. I have to say it is so very hard to stay motivated when your whole body racks with pain. Exercise is harder, food is more comforting!

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KORCEI Posts: 21
7/23/12 7:00 A

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Hi All,

I am live Nampa, ID. I am fighting several different health problems which make exercising difficult. I know that weight lost would be good for me. I just lack any motivation to lose weight. One of my few pleasure in life at the moment is eating. So I am looking for friends that understand that when I say doing 5 minutes of stretching can put on the couch for the day in pain. It really hard when everyone around seems convinced that I all I need to is get active. I look forward to reading posts and hopefully getting some good ideas on how to do this.

Have a great and pain free day,
Korcei


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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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7/5/12 6:33 P

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LILLIANH13 and Wquest Welcome to the team, we love having you.. Sorry your welcome is a little late.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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CD4728027 Posts: 116
5/5/12 6:52 A

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Hi! I'm new and looking to find others in a similar health situation as myself so I don't feel as alone about my current health place.

I'm a 26 year old with several chronic issues, some mild and a few recently annoying. My life has been a whirlwind for the past several years losing several close family members, going straight through college and grad-school and this coming fall I will finally get to embark on my first official teaching position--in college no less. I'm excited but very nervous as my health is in a low place thanks to several conditional roadblocks.

I've had asthma and allergies since I was born and while they aren't severe they cause complications with other things. Back last summer my chronic sinus infections became so severe they would debilitate me; my face would swell so bad my eyes would be swelled shut. Now I'm in a chronic state of sinus swelling because the sinus infection stopped responding to antibiotics last fall. I have to have the FESS surgery on May 29 to finally get things out and fixed.

On top of that last fall my white blood cell count stayed out of whack for months and I was tested for leukemia, lupus, RA, and several other things. I wound up in ER one night with a doctor that luckily listened to me and sent me for a gall bladder ultrasound. My gall bladder was full of stones and severely infected (the dr's said it looked like strawberry skin when they removed it.) A month after the removal surgery my white count was more normal (still up due to the sinuses) and I felt much better.

As if that wasn't bad enough I just had emergency eye surgery in April to fix retinal holes, tears, and a partial detachment. They sealed the holes and tears and placed a scleral buckle in my right eye for the detachment. It put me off work for the rest of the school year because I was restricted from everything for the first three weeks and then I still have to avoid high infection risk areas right now.

I was doing amazing at eating well and exercising before all this hit last summer; was even up to running three minute intervals. I'm looking to get started back in a healthy lifestyle especially after my sinus surgery at the end of the month and am hoping to find someone here to help encourage me and I can encourage you.

WQUEST's Photo WQUEST SparkPoints: (0)
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4/27/12 12:58 P

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Hello, this is my 3rd day with this site in general and found your team page today. I have so many medical conditions and medications that interfere with weight gain and fluid retention, that if I listed them we would be here all day on just this 1 post! Mainly I want to get some support/ideas on dealing with fibro and exercise induced asthma issues. For me, I seem to get weaker and have so much more pain from doing almost any activity, not to mention having to follow most activities with a breathing treatment. I am caught in a circle and a mean one at that. I have no support people in my life that I can count on to help me with things or even to really talk to; everyone pretty much wrote me off a long time ago out of ignorance. I am housebound and without the internet I doubt I would even be alive. Thank God for online grocery shopping!

Every thing is possible, what slows you down is the probability factor. So why let that get in your way?


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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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4/7/12 6:53 P

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Welcome everyone Glad you could join us here!

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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EILEENKNY Posts: 2
3/29/12 3:53 P

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Hi, I'm new here and on the site, although my profile says I joined in 2006. I don't remember doing that-fibro fog, I guess.
I'm 59, a longarm machine quilter with my own business in my home. I'm married to a very supportive guy who tries too hard to help sometimes. We have 2 grown kids, one of whom is married and has given us an adorable grandson.

I used to be a schoolbus driver; I got hurt on the job in 2005, which herniated a cervical disc in my spine. I had 2 surgeries, tons of PT and lots of medications. I've been diagnosed with RSD, fibromyalgia and osteoarthritis. Needless to say, I haven't been moving around much.

Rationally, I know that to ease the pain, I have to lose weight. That's my primary reason in being here. Less weight equals less pain.

I'm looking forward to "meeting" everyone; maybe even help others

CD8248021 Posts: 2,161
3/23/12 8:05 P

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Hi all I'm Deb and I was on SP a while back but due to a bit of a breakdown and health issues fell off the edge of the world for a while - but I'm back and trying to build a huge support network. I have a barely functioning bowel which they can't find any reason for, a liver that works at about half what it should, I have tendencies to get pneumonia or severe chest infections at the drop of a hat and now have Chronic Fatigue/fibromyalgia which is making all the rest seem like nothing .

looking forward to chatting with some of you, and learning and growing with all of you too

MJLADY51's Photo MJLADY51 Posts: 104
3/1/12 8:17 A

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Hi, my name is Martha and I live in St Cloud, MN. I am so glad to finally find a team that is set up to deal with chronic illness. I have a lot on my plate and I am sure some of the drugs don't help trying to lose weight. I even reduced my carbs because my husband is a borderline diabetic. This has helped some, I have lost 5 lbs but only in two months. I have sleep apnea, restless leg syndrome, peripherial neuropathy, gluten intolerance, lupus antibodies, sjournes disease, rheumatologist, fibromylgia, and osteoarthritis. I have one knee and both hips replaced. I just want the pain to go away and being tired all the time. I also suffer from clinical depression and anxiety order. Which my doctor told me goes hand in hand with having so many health issues. Only can deal with one thing at a time. I am so lucky to have a husband and children that support in the fact I do not do much. When I have a good day I tend to overdue and then pay like hell with pain and being tired.
I hope that some of you can give me suggestions. I can only walk 5 minutes a day without starting to get tired and hurting.
I hate whining but I guess we have to get it off my chest. Don't expect long messages like this to often. LOL

Isaiah 41:10 fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.




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CD8204396 Posts: 98
12/1/11 12:06 A

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Hi everyone. My name is Tanya and I live in Sioux Falls, SD. Last year, I had to stop working because the pain of my many chronic conditions had made work impossible. At that time, I had already been diagnosed with Sjogren's Syndrome, fibromyalgia, migraines, cluster headaches, hypothyroidism, and chronic fatigue. My rheumatologist is also thinking that I have psoriatic arthritis. As my boyfriend says, "It just keeps getting better." However, now it all makes sense why the treatments for fibromyalgia and Sjogren's only had minimal affects on the pain, stiffness, and fatigue.

I have had migraines ever since I was a kid and I have had cluster headaches since I was about 19 or 20 years old which is also when the symptoms of fibromyalgia and Sjogren's began even though it would take about 15 years to get a diagnosis. I have had episodes of psoriasis, but only affected small areas such as in the front of my knees and feet as a kid or my ears as an adult.

I think the most difficult part of all of it has been the gradual and quite severe loss of movement. The stiffness and pain makes even the simplest tasks difficult and often impossible. Yet, I figure the best thing I can do is to try and enjoy the things I still can and make the best of my situation. I have grown quite fond of watching the birds and squirrels on my patio.

I am so glad that there are so many teams for support on this site. It is one of the few places where I can meet people who understand how hard it is to lose weight when exercise is impossible and medications cause weight gain and other issues. I am currently about 100 pounds overweight, although I would be ecstatic to lose even 50 pounds. When I quite working, I did lose about 13 pounds. I don't think I truly realized just how much I relied on caffeine and food cravings just to get through a work day. Once I was able to rest whenever I needed, I became much less dependent on caffeine and food as a pick-me-up. In fact, I have pretty much given up caffeine altogether which is important in trying to manage Sjogren's and even fibromyalgia.

I am looking forward to getting to know the people in this team and consider any suggestions from others as valuable in helping my cope and manage my chronic health problems. Just knowing I am not alone is a big help in maintaining my sanity and keep things in perspective.

MAMAPETES's Photo MAMAPETES Posts: 34
11/16/11 10:01 P

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Hello, everyone! My name is Betty, and I live in Coos Bay, OR. I was diagnosed with Fibromyalgia about 8 years ago, when even less was known about this disease! I was put on Elavil to help, and continue taking it. When I moved here and got my new care provider, I was put on Lyrica. I tried that for about 9 months, but found the weight gain I experienced from the medication was not worth the little relief I got, so, after discussing it with my provider, I discontinued it. I also have severe muscle spasms in my lower back from an accident I had in 1972, so it is easy to over-do things. I managed to do my 2 sets of each strengthening exercises yesterday, but I feel it in my back today. Still need to do my cardio, too, but I may not make it tonight! But I still have time to get it done before bed if I can just convince myself to do it!

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CRAZEDQUILTER's Photo CRAZEDQUILTER Posts: 7
10/27/11 12:41 A

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Hi, I'm Chandra and I'm a recent transplant from Beaverton, OR to Grants Pass which is in southern Oregon.

I have a bunch of chronic illnesses and until about four months ago, didn't realize that my pain levels were wildly out of control. I thought that was just how I was supposed to feel because of the illnesses I have. However, I did mention to my doctor that the pain had been getting harder to cope with, so she did a pain assessment and I ended up on a daily regime of medications to manage my pain. I cannot even begin to explain how much my life has improved.

I think it's explained best when you look at how some days were so painful that getting out of bed, showering, feeding myself and my pets were about all I could do, and feeding myself was a real struggle if my husband wasn't able to help cook, or I was home alone with nothing that I could eat straight from the refrigerator or only have to microwave.

Now that I'm not in so much pain, I've been able to start walking again and it's been wonderful. I feel like I have my life back. Before most of my health issues hit, I was an extremely fit and active person. I may never be able to do martial arts again, or field training dogs, but I should be able to eventually walk three to five miles on an easy hiking trail with my husband. Right now I'll start out with a quarter mile being my goal and build from there.

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CTUPTON's Photo CTUPTON SparkPoints: (204,376)
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7/29/11 7:05 A

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Hi Bren! Thanks for the wonderful welcome! Chris

I have to be diligent about caring for myself. 100 DAYS OF WEIGHT LOSS is a great way for me to keep focused. Day 1 is July 1, 2017. Build habits to produce success. Most of these habits I have at least tried before but did not sustain. First habit: delay eating by using a timer.
LONG TERM GOAL: Reduce A1C,BP,tryglicerides,and weight.Evening Eating Sabotage Myself Frustration ..Help! www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=51755


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JITZUROE's Photo JITZUROE SparkPoints: (247,716)
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7/28/11 8:31 P

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Hey Chris! Nice to meet you. My name is Bren and although I have a different nerve condition than you, I can completely relate to finding so much joy in getting one low pain day. It is precious and worth more than $ for sure.

ARIA also pointed me in this direction (thanks ARIA!!!), and it is so nice ot know we are not alone in our battle with our pain and health. It's so easy to fall into the mentality that our health conditions mean we should give up all dreams of getting fit and (for me) losing some of my depression weight.

We are here to support all, and I hope everyone has a low pain night- filled with some giggles
Bren

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CTUPTON's Photo CTUPTON SparkPoints: (204,376)
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7/28/11 7:40 P

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MALKS_ARIA, I have to thank you for suggesting this team. I may not post often because of the commitment to the Evening Eating Team. I hope that is OK. I will try to check in as much as possible.

I battle fatigue and body pain from trigger points and fibromyalgia. I so wish I could have some energy! When I get that anywhere from 1 day to (on rare occasions a week_-- it is heaven. Mostly I live thinking of things I want to do but not having the energy to get them done.

I am 64 and anxiously awaiting retirement (June 2012 )from teaching deaf students. I love the kids but they sure zap a person's energy! High school sciences and lately they give me more and more health classes. We are now in portable classrooms and space is very tight.

I am caregiver for my husband who had a debilitating stroke in the spring of 2006. We have a daughter, 30, who lives in another city about 3 hours away. We have a cat, Cujo, who is orange and white and big and very hairy! He keeps us laughing. We moved from a house in the country to a condo. We needed the one floor layout and love the natural setting here. Very nice neighbors.

I am loving water aerobics for exercise. Land exercises are too painful for me. Zumba in the pool is awesome. I was able to try it this summer while off from work.

Chris

emoticon

I have to be diligent about caring for myself. 100 DAYS OF WEIGHT LOSS is a great way for me to keep focused. Day 1 is July 1, 2017. Build habits to produce success. Most of these habits I have at least tried before but did not sustain. First habit: delay eating by using a timer.
LONG TERM GOAL: Reduce A1C,BP,tryglicerides,and weight.Evening Eating Sabotage Myself Frustration ..Help! www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=51755


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JITZUROE's Photo JITZUROE SparkPoints: (247,716)
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5/28/11 8:26 P

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Hi Everyone! I am so glad I stumbled onto this thread!
I have a rare neuromuscular and nuerovascular disease called Erythromelalgia.
It mainly affects my arms and legs, which swell a lot and are usually kinda purple. I wear tights and pants all the time for my legs, but it's hard to cover up the hands at work : )
It's a painful disease and gets debilitating, so I am always looking for pain relief methods that others are having success with. So far ice packs are my saving grace, but it's not good to use them all the time since they damage your nerves (arg!).

Anyway, I lived in shame with this for a long time when the doctor's couldn't diagnose me, and I honestly felt like a freak. Then turning to food for comfort and being depressed about the lack of treatments did not help. The docs even put me on meds for fribromyalgia hoping it might help (didn't), but of course I tried it out .

I have not encountered anyone else like me, so seeing this on Spark was encouraging. People in pain can unite and support each other WHILE trying to lose weight- wahoo!!!
Bren

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EEYOREGRAY Posts: 14
5/28/11 2:34 P

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I'm glad to have found this group. There are so many chronic illnesses in the world today and I've got more than my share, but somehow I continue to press on despite the issues associated with these disorders/illnesses.

I know how hard it can be to live with chronic conditions and so I congratulate everyone for their determination to continue to press on through the mental, physical and emotional pain of chronic illness.

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RAVEN2FEATHERS's Photo RAVEN2FEATHERS Posts: 7,175
5/28/11 1:08 P

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Hi there ! I'm Alison from Mukilteo Washington, originally from Everett Washington, I am the mother of two adult children whom I love dearly and the grandmother of one very beautiful and very talented little girl we've nicknamed Little Ma'am, Kimberleigh is her real name.

I suffer from many allergies and many other health problems that will most likely never go away. But I'm good with that because I've lived with them my whole life and I know what to expect as time goes on.

Oh Great Spirit who dwells in the sky, lead us to the path of peace and understanding. Our lives are so short here, walking upon Mother Earth's surface. Let our eyes be opened to all the blessings you have given us. Please hear our prayers, oh Great Spirit.

"Native Amerian Prayer for Peace"
Tsalagi, Sasa Ageya


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GABBY308's Photo GABBY308 Posts: 10,736
4/28/11 1:11 P

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Hi!
I'm Gabby and also live in Western Ny as one of the other newbies just posted being from. I'm 59 and on SSD for CFS/Fibromyalgia. I also had PTSD from being abused as a child. I'm joining this group as opposed to the other Fibromyalgia groups because it's for all chronic illness. My husband suffers from severe chronic pain from 3 back surgeries. My 86 year old mother lives with us and she has osteoarthritis. They don't need to lose weight but there's a lot of stress from being the caretaker in this household and battling through my own fatigue and pain; which leads to emotional eating. I thought this group would understand if I have to vent a little


" Dont eat less; eat less often."
"I want to see what will happen if I don't give up."




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MARIAHE1 SparkPoints: (0)
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4/4/11 8:29 P

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Hi everyone, my name is Mariah. I have had fibromyalgia all of my life. While living in Alaska, my fibromyalgia was made a hundred times worse by a medical treatment that went wrong. I nearly died but as they say "that which doesn't kill you, makes you stronger.". I was diagnosed with a malignant melanoma and we moved back to the states. About 10 years ago, I was diagnosed with Osteoarthritis and a couple years ago I was diagnosed with IBS. I have a team of great doctors and today, I am much better. Needless to say, I still have bad days but I keep moving.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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3/27/11 5:01 P

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emoticon gREAT TO MEET YOU hALEY! Welcome to the team look forward to getting to know you more. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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HALEY12793's Photo HALEY12793 Posts: 5
3/18/11 3:01 P

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.

Edited by: HALEY12793 at: 3/18/2011 (15:02)
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HALEY12793's Photo HALEY12793 Posts: 5
3/18/11 3:00 P

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Hi yall :)
My name is haley and im 18! wohooo. im trying my hardest to graduate cause of being sick and all. I have CFS (chronic fatigue syndrome), chronic migraines, POTS( Postural Orthostatic Tachycardia Syndrome), dysautonomia, fibromyalgia, anemia, mitral valve prolapse, and a brain tumor. Haha im the problem child as my mom says.
butttt anywayyyyyyy i am a very happy person or i try to be. Sorry getting to the point.... I want to lose weight and get healthy before college. But most importantly... I need to change my habits to try to benefit my health!!
But before i became ill, i played like every sport you can think of. I was extremely active. But now i spend my days in bed mostly because i cant get up. blah blah blah. idk what to say. sorry im very ADD haha.
okay yahhh thats me :D
emoticon emoticon

Edited by: HALEY12793 at: 3/18/2011 (15:05)
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IMHAPPY2BME's Photo IMHAPPY2BME SparkPoints: (0)
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3/11/11 9:39 P

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Hi my name is Monica. I was diagnosed w/fibro less than a year ago after abt 3 yrs of being misdiagnosed. I even knew I had been misdiagnosed & told my family doctor who just blew it off. So I went to a new doctor. After spending over an hour w/me conducting many tests & both of us asking question I was finally diagnosed correctly. Which is what I thought I had & told my family doctor. Grr I have learned to listen to my body after other experiences. I degenerative arthritis in my upper back, tailbone area, and knees. I have a problems w/my neck & upper back due to my ex and his lovely temper. I also have PCOS, severe depression, anxiety, and agoraphobia (occasionally). Wow! I am a basket-case. LOL No, the depression is multiplied because of the PCOS and fibro. I am 34 and never married and no children. I hope one day to find a good guy to marry and have at least one child. Since I am unable to work I watch my cousins children and I love it. Great children, but it can be challenging at times. Lately I have been doing red-light therapy for my fibro and arthritis. It has helped greatly. I just wished it helped more w/my headaches and migraines. Oh well. At least I have been able to cut done on pain meds. I am happy to be here!

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PRINCESSKAT814's Photo PRINCESSKAT814 Posts: 12
3/7/11 3:10 P

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Hi everyone,

My name is Rebecca and I'm from Western NY. I am 31 years old and was diagnosed with IgA Nephropathy in November 2008. I joined a gym early last summer and switched to a gluten free diet in order to get my disease under control. Since then, I've lost 20 pounds and my nephrologist is thrilled with my healthier lifestyle and progress. I was seeing her and getting lab work done every 3 months but since I have incorporated these changes I only need to see my neph and have the lab work done every 6 months. I am no longer experiencing nausea on a daily basis (a result of going gluten free), no longer exhausted or lethargic, and am LOVING exercise!!! I am currently training for my first 5K since high school!! Some days I feel so great that I forget that I have a chronic disease but it took me two years to realize that I needed to take control of this disease.

Have a great day everyone.

Take care,
Rebecca


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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,055)
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2/20/11 1:42 P

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Hello Cindy Susie and inform55! Welcome to the team! We are glad to have you and look forward to getting to know you.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AUNTCINDYKNITS's Photo AUNTCINDYKNITS Posts: 58
2/11/11 6:35 A

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Hi, Everyone, I read a bunch of your introductions and want to start by saying that the world is full of suffering and brave people who enjoy life anyway or who try very hard against the odds. I admire everyone who is here trying to change their weight and their health and their lives. As for me, the whole list of diagnoses is too long to go into, but basically I have a mitochondrial disorder (my cells do not make energy as efficiently as they should) and I turn stress hormones into neurotoxins and environmental poisonings with more neurotoxic substances. Because of these problems, my brain cells get tired and I have seizures, usually 5 or 6 day, but often they cluster and last off and on for hours. In addition I have other neurological symptoms. I am homebound and have an assistant with me much of the time. My kids are newly grown; I have three standard poodles and I"ve been married 31 years. This year I gave up my car, my Segways, my ambitions to write novels and a lot of other things due to recent decline. I have had a couple of doctors misunderstand me through ignorance and think that my illness is either -psychological (I know, I know, but it gets worse), -faked, _or a psychological reaction to trauma, probably early sexual abuse. Unfortunately this diagnosis is in the electronic records of the local hospital authority so almost every doctor sees this before I see them personally. I am currently trying to be evaluated by a national expert so that my record can be cleared. I saw a psychotherapist for 12 years as I was raising my children and my health was steadily declining. If there were any psychological issues, they would be found by now. I even think my insurance company is investigating me, because if I am not as sick as I say I am, then I am addicted to benzodiapines, I am agoraphobic, paranoid, attention-seeking; I am defrauding the insurance company, I am doing a million things I am not. The sicker I get the less I am believed. I am just a regular person. Even writing this I worry is a mistake because I am so used to not being believed. So before I run out of room I want to say I look forward to a community which understands the virtues and shortcomings of the medical system. I look forward to cheerleading and to having a place to tell my victories and frustrations. To end positively, I have a great marriage and a great doctor and a few great friends and I am getting neurofeedback, and the seizures are lessening. Hurray! My left brain is more injured and my right brain is kicking in and I suddenly have a new interest in art and music and am enjoying learning guitar, writing songs, knitting, sewing, painting, photography, all kinds of new things. It's incredibly cool. See you on the boards: eat well, be strong.

Edited by: AUNTCINDYKNITS at: 2/11/2011 (07:10)
"Although attempting to bring about world peace through the internal transformation of others is difficult, it is the only way."
His Holiness the Dalai Lama


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,566
1/3/11 5:21 P

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Wow Welcome Susie (I am new too)... But my Birthday is the same as yours :) June 3 .... Hope you have a great day and spark helps you smile a bit more often.

aria

~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


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