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BERNIE22's Photo BERNIE22 Posts: 48
10/12/10 9:50 P

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Thank you for sharing your story LIVN2BPINK. I share your frustration. six weeks ago I began Synthroid after not feeling quite right while taking the generic Levothyroxin. They are the same but the generic is a 'bid' medication and vary in strength from my understanding. Since I've been on Synthroid, my nails have begun splitting severely. The Pharmacist thinks the dosage may be too high. I will have to check w/the doctor. I will keep note on your prescriptions. I too began VD and now Folic Acid, V-C and will try VB's now. I'm sporadic on the B's. Thank you again. Keep us updated. :-)

LIVEN2BPINK's Photo LIVEN2BPINK Posts: 4,156
10/12/10 3:34 P

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Hi All,

I am on combination of the generic... 5mg. Cytomel and 35 mg. Synthroid. Originally on the Levo alone but combined with the Cytomel my quality of life has improved.
Even more improved with weekly prescription VIT D and 1000mg of B12 2x daily. My nails are no longer brittle, love having nice nails :)What's best I am finally able to get back to exercising! What's worse though is that my Mom's TSH went to 8.5 so they put her on Synthroid and within 6 weeks her TSH was back in range and she was losing weight! This has been a year long journey of my life feeling like crap!!! In my little experience I'd say my VOTE is for real thing and I'm sure there are variations in the generic that affect how I feel at random times.
Deb

In giving we receive...so give to yourself.


Be the Pursuer of Your Own Happiness

There will come a time when you believe everything is finished. Yet that will be the beginning."


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IRUNBIKE2BFIT's Photo IRUNBIKE2BFIT Posts: 1,185
7/30/10 8:03 P

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HI Jane, yes I know that, Synthroid is the Brand name, I've always taken it since the 1970's. they only thing is the Liothyrionine its the Generic of Cytomel. Because Cytomel is the Brand name and evidently it's very Expensive. Because they asked me before they filled it, since I was just trying it to see if it would help in addition to the Synthroid. I said okay. so far so good the Liothyrionie is fine.

It's really your Health insurance companies that can determine what you can take or they have several tier costs for Medications and they would perfer that you take the Generics so they don't have to pay out so much for them. But the key is to make sure that your Doctor puts on the perscription "Do not use Generics" so that the Pharmacy doesn't automatically fill with the Generics.

Peggy


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BERNIE22's Photo BERNIE22 Posts: 48
6/15/10 8:48 P

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Hi, I'm on thyroxine it for a year now. I have noticed up and down swings with it during certain months. It also rises blood pressure etc. I found out recently that because it's a generic of Synthroid, that each month the prescription could be manufactured by a different company which means that each month the prescription may not be consistent with regards to strenth. I see my primary in August where I want to try Synthroid to see if it's more effective.

Edited by: BERNIE22 at: 6/15/2010 (20:50)
YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (254,076)
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6/15/10 4:08 P

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IRUNBIKE, did you know that Levothyroxine is a generic of Synthroid? A generic may not have the consistency of the name brand. I got the doctor to switch a few weeks ago and really have noticed the difference.

Jane on Guam



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LETSTRYAGAIN3's Photo LETSTRYAGAIN3 Posts: 146
6/15/10 3:21 P

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I have been had hypothyroid for just a few months and have been searching information by reading some interesting books and internet search. Does anyone take dessicated thyroid? learning the medical process it appears synthoid does not do the full job in thyroid treatment as many people notice a marked difference and feeling a lot better when taking Armour.

`Chosetolose` starting a `Six Week Challenge`

lose 2 lb per week over 6 weeks starting June 20th.
I`m in, any of you up for it?

That means we could be 12lb lighter by the last day of July!!!


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IRUNBIKE2BFIT's Photo IRUNBIKE2BFIT Posts: 1,185
5/14/10 8:36 A

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QUOTE:[I have been HypoThyroid and taking medication for over 15 years. I have lost 80 lbs in the last 13 months.
I was taking .150 mg of Synthroid. I went to get my Cholesterol and Thyroid Blood Tests and my TSH was very low .13, so the doctor LOWERED my dosage from .150 to .125 mg (Synthroid to Levothyroxine).
I took the new dosage for 6 weeks and retested my TSH and it was still low. Now I am on .100 mg Levothyroxine.
Does it make sense that he is lowering my dosage instead of Increasing my Dosage ???
I am going to my Internist (Primary Care Physician).
Do you think I should see an Endocrinologist at this point. ]

Yes Rena that does make sense. Hey, if you lost the weight and haven't gained it back? Then stick with the lower dosage. As long as your feeling Good, have the energy to get through the day. And your overall health is good, I wouldn't worry about it.

But it's up to you if you want to go to a Endo...but I think they won't find anything different than what your current doctor has done for you. It might wind up to be a waist of time? Give it time and see how you do on the lower dosage.

I went through the Same exact thing as you, Last year. I'm on .075mcgs of Synthroid and .10mcgs of Cytomel (my body doesn't seem to convert the synthroid to T3) I have lost about 10 lbs since last July. I also went to see a local Endo, that wasn't much good at helping me, He was all in doing the numbers game of treating Thryroid disorders not about how you feel. So for me that was a waist of his time, my time and my money. So I gave it a couple of months to get used to the dosage amount.
Also had my Primary Doc add the Cytomel and I'm feeling Great! I have lot's of energy. And I want to loose about 15 more pounds to get to my Goal weight.



Peggy


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BERNIE22's Photo BERNIE22 Posts: 48
2/7/09 1:55 P

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That is so true, however primaries are only able to go so far. A specialist specializes in that one area (sometimes two). When it became unsafe for me, I went to Boston. It was one of the best decisions I made. I took control of my own health, became knowledgable and didn't just "trust" the doctors knew what they were doing, I made sure of it.

CANDYM4's Photo CANDYM4 SparkPoints: (0)
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2/6/09 6:59 P

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Before you spend the money and have yet another doctor to see and coordinate with talk to you primary doctor. Remember that the more doctors you have the more copies of ALL TESTS and MEDICATIONS you have to carry with you. You also have to weigh what this one says against what that one says and you wind up with so many opinions that you don't know what to do or think. You need to see as few doctors as possible. If you primary doctor does not want to take care of you, find one that does. Speicalists are there for consulting only, not to see every one to six months. I have three pages of medicines that I take and I see only two doctors and my psy for psy meds only.
Candy

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I live in Topeka, KS.

My NASCAR driver is Dale Jr., his number is 88.


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BERNIE22's Photo BERNIE22 Posts: 48
2/3/09 9:40 A

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Good job, if we don't help ourselves, who will?

REEN325's Photo REEN325 Posts: 160
2/2/09 9:42 P

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Thank you all for the advice.
I am searching Aetna's Website and looking for a Endocrinologist that is covered by my insurance plan.

I am having problems with Fatigue, Constipation, I am cold all of the time and my nails are brittle.


~ Doreen ~

Attitudes are contagious. Is yours worth catching?


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HUNGERFORGOD's Photo HUNGERFORGOD Posts: 63
2/2/09 8:59 P

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I totally agree! You should definitely be seeing a specialist.
Your health is too important.

Susan


Numbers 6:24-26 (New International Version)

24 "The LORD bless you
and keep you;

25 the LORD make his face shine upon you
and be gracious to you;

26 the LORD turn his face toward you
and give you peace."



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BERNIE22's Photo BERNIE22 Posts: 48
2/2/09 12:21 A

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I believe we need to be informed and up-to-date in all our personal medical issues. I chose to see an "Endo" in Boston (best of the best) but sometimes even 'they' don't know everything. My TSH levels are always within the so called 'range', yet my TPO of late has been high and increasing. I'm on watch now and get tested every three months. The choice to see a specialist such as an Endo is very comforting to me as he knows more than my primary. He will catch something or be aware of issues much sooner, and to me, that's a life saver.

HUNGERFORGOD's Photo HUNGERFORGOD Posts: 63
1/30/09 3:36 P

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My understanding of medicating thyroid is that if your number is so nice and low,
you don't need MORE medication. You could need less, or your doctor can decide to keep it the same. Your number is within a good range, I wouldn't call it "too" low at all. Don't be afraid to talk to your doctor, it's your right to understand what you're taking, and why. :-)
How are you feeling? That's the most important question....

Susan


Numbers 6:24-26 (New International Version)

24 "The LORD bless you
and keep you;

25 the LORD make his face shine upon you
and be gracious to you;

26 the LORD turn his face toward you
and give you peace."



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SCORPIOC's Photo SCORPIOC Posts: 477
1/29/09 8:01 A

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Doesn't make sense to me maybe you should ask why they are lowering it and not increasing it there maybe an reasonable answer.

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REEN325's Photo REEN325 Posts: 160
1/26/09 9:27 A

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I have been HypoThyroid and taking medication for over 15 years. I have lost 80 lbs in the last 13 months.
I was taking .150 mg of Synthroid. I went to get my Cholesterol and Thyroid Blood Tests and my TSH was very low .13, so the doctor LOWERED my dosage from .150 to .125 mg (Synthroid to Levothyroxine).
I took the new dosage for 6 weeks and retested my TSH and it was still low. Now I am on .100 mg Levothyroxine.
Does it make sense that he is lowering my dosage instead of Increasing my Dosage ???
I am going to my Internist (Primary Care Physician).
Do you think I should see an Endocrinologist at this point.
emoticon

Edited by: REEN325 at: 1/26/2009 (09:32)
~ Doreen ~

Attitudes are contagious. Is yours worth catching?


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