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HRTBRKR2013's Photo HRTBRKR2013 Posts: 544
9/27/13 7:06 P

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Just started back on some of my meds feeling drained today.


John 11:35 "Jesus Wept"
Romans 8: 28 "And we know that in all things God works
for the good of those who love him, who have been called
according to his purpose."
God is good...
All the time,
All the time ...
God is good.
God's blessings to you.


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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
9/22/11 10:01 P

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I'm feeling okay. I still have occasional back spasms and have been sleeping. Fortunately, that will chance when I get the mattress! Yes, I won! I'm pretty excited about that!

How are you?

"It is never too late to be what you might have been." -George Eliot



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9/7/11 11:57 A

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DEBRAPANTS, how are you feeling? Is your back any better? I certainly hope that you won that mattress! If not, I'm praying that you will get another one. Let us know how things are. emoticon emoticon

I can do ALL things through Christ whom strengthens me.


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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
7/1/11 6:48 P

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Thanks for the info! I'm going to check out that website!

"It is never too late to be what you might have been." -George Eliot



PSTENSEN Posts: 34
7/1/11 6:30 P

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I love things like broccoli, cranberries, spinach salad, but don't eat them "regularly" either. I self test at home with an INR/PT machine. So I can keep a closer watch on my inr. I do eat broccoli & spinach & cranberry products (except juice) and am staying pretty steady. Other things tend to start my inr's to go off but I haven't figured them out yet. It only happens once in every couple years usually. Last year my dr increased my warfarin by 1/2 tab a week and that worked fine until this Summer. He had to increase it the 1/2 tab again as for two weeks in a row my inr was running low and it was lower the 2nd week which indicated a new pattern.
You can download a guide book which gives information about diet restrictions etc. The website is www.ahrq.gov and you'll navigate to a page where it lists a downloadable "guide to couomadin/warfarin. I was surprised at some of the "no-no" foods! Examples: kiwi, blueberries, cabbage, cauliflower, beef or pork liver, (don't eat those anyway!), MAYONNAISE, margarine, canola & soybean oils, vitamins, cashews! I LOVE CASHEWS! Much of these foods I either eat sort of regularly, or not at all anyway! There's more on the list.

There is another ebook that you can download, but they charge for it. It's called "The Quality Calorie Diet for Coumadin Users" by Dr. Gourmet--Timothy S. Harlan, MD. It's 143 pages long, but very extensive in it's information and it contains recipes, diets, info on doses, and a lot more. It may be something you might be interested in.

As for the level you're to be at, usually it's between 2.0 - 3.0, but if there 's some reason you dr. wants you between 2.0 - 2.5 then of course you need to do that. As time goes on, you'll get used to your body and how it reacts to different things. Considering I've been stable for so many years with just minor adjustments in doses occassionally, I think I'm doing good.

It's the Post Thrombotic Syndrome that's been my biggest issue for years. I've decided in this past month that I am going to do what I can to work through it's pain and we just bought me a new bicycle. I'm taking very short rides right now for a couple reasons, one I'm not used to the bike, I haven't riden in probably 30 years or so and I am trying to build up my stamina. Eventually I want to be able to go for rides whenever and I'm hoping that the extra excercise will help me loose weight!

Good luck!

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
7/1/11 5:20 P

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I can empathize. I don't eat a lot of greens, so now I basically just don't eat them.

"It is never too late to be what you might have been." -George Eliot



DERLAJ's Photo DERLAJ Posts: 394
7/1/11 4:57 P

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One problem is that I don't eat "greens" on a steady basis -- maybe once every 2 weeks or so. Therefore it is a problem to adjust my Coumadin so that I can eat them. My INR is supposed to stay between 2 and 2.5, which doesn't give me a lot of leeway. I'm told NO green tea, NO cranberry juice. I think I'm just whining because what I'd really like is a great big chocolate malted milk, which has nothing to do with Coumadin.

Derla

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
7/1/11 2:57 P

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Welcome, Derla. What about your diet on Coumadin are you having a hard time following? I was under the impression that I could have vitamin K in my diet at levels I was used to as long as I kept those levels steady, and I'm not aware of any other diet restrictions related to Coumadin.

"It is never too late to be what you might have been." -George Eliot



DERLAJ's Photo DERLAJ Posts: 394
7/1/11 2:41 P

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I don't know if I"m supposed to click 'reply',new topic or subscribe, so if 'reply was wrong, I"m sorry.

I just joined this group. I find it very difficult to follow both the Diabetic diet and the diet I need for the Coumadin I'm taking.

About 2 yrs. ago, I developed clots in both lungs. It took me a long time to realize just what I had survived - and the only symptoms I had was a 'sore muscle' type of discomfort on one side of my chest. I really wondered why I was being watched so closely in the hospital - I didn't know they were expecting me to crash. And I"m an RN. My brain just would not take in exactly what was going on. Genetic testing was done and I have a genetic condition I can't even pronounce. As I look back in my family, there were several that died of blood clots, but there was always a good reason for them having that blood clot. (My father had surgery at a time when the patient was to lay quiet for about 2 weeks - his blood clot went to his brain the day before he was to come home).

I'm lucky that the low dose Coumadin keeps my INR quite steady and I only need to have my blood checked every 4 weeks -- but it certainly infringes on my weight loss and diabetic diet.

Derla

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
5/8/11 8:42 A

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Thanks for replying, PSTENSEN. Yours is an interesting story! It sure is amazing how resilient our bodies are! I'm so glad that you've gone so long without any problems!

I had a blood clot in my left calf in 2003 and was put on Warfarin for 6 months. This blood clot developed after I broke my left foot. Then in July of last year I developed another blood clot in the same calf while 9 weeks pregnant. i was hospitalized when it was discovered not only how large that blood clot was but also that part of it broke off and traveled to my lungs. I had surgery while hospitalized to have an IVC filter placed so that if more of the blood clot were to break off, it would be kept from traveling to my lungs or brain. I was having such difficulty breathing when I got to the ER that I know I could have and would have died if I'd put off going any more! And to think I was expecting just to get Lovenox injections or something and be sent on my way! Blood work was completed and I found out I am heterozygous for Factor V Leiden. I was switched to Heparin injections when 36 weeks pregnant and remained on those until I gave birth to a healthy little baby girl in February of this year. Then I was put back on Lovenox injections and discharged from the hospital. Immediately after my discharge, I started working with the local hospital's anticoagulation clinic to switch from Lovenox to Warfarin. The reason behind this was partially because Lovenox would likely only be covered for 6 weeks post partum and I was told I'd need to be on blood thinner for 6 months.

I finally met with a hematologist in April, and he is going to have tests done to see how my body is doing with the clots. I did have a doppler ultrasound repeated on my leg just before that appointment, and the blood clot was still there but "stable." So the hematologist is going to look at all my risk factors and medical history and determine whether or not I can get the IVC filter removed or if it should be kept in permanently and whether or not I need to be on blood thinner for life at this time.

So, I'm still currently on Warfarin but not knowing how long I'll need to continue taking it, and I'm kind of in a limbo land until July. I wouldn't be surprised if I have a surgery before the end of the year to remove the filter. And I have made peace with the idea of being on blood thinner for the rest of my life as well.

"It is never too late to be what you might have been." -George Eliot



PSTENSEN Posts: 34
5/8/11 5:53 A

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Hi Debra,
I've been on warfarin permanently since 1989, but on & off them from 1972 to 1989. In '72 I got a blood clot in my leg, threw a PE in the hospital then had a vena cava plication done. During those years I repeatedly kept getting clots for no apparent reason until 1989. Then I got on in the mesintaric vein in the intestine. While hospitalized for that they ran tests to see why I kept clotting. The found I have Protein S Defiency, which is a genetic blood disorder. I was then put on warfarin for life and have not had a clot since. I did have internal bleeds several times because of the warfarin, but it was found I had ovarian cyst which caused the bleeding and the warfarin was not helping. I ended up having a complete hysterectomy and since then I have been good. No bleeds, no clots! That was done in 1991 or '92. My son who is also multi-challanged also has PSD and is on warfarin now since 2005.

I also have PTS (post throbotic syndrome) which causes severe leg pain some days, and bearable pain the rest of the time. It has cause me to slow down considerably and that's why I'm in the bigget desire to loose weigh, but am having the hardest time doing it, since when young, I was underweight! (about 80lbs) & didn't have to "worry" about gaining or loosing.

So now let's hear your story! How long, and why?

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,275
5/8/11 1:04 A

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I am a new Team Leader here and thought I would create a general chat thread where we could get to know each other a little better and ask and receive support as we need it.

As a relatively new member of this group, I am curious to know how long you have been on blood thinners and what happened to result in your needing them. Also, what blood thinners are you currently on?

"It is never too late to be what you might have been." -George Eliot



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