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GATOR12's Photo GATOR12 Posts: 4,655
3/20/11 1:27 A

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I got on this thread late and have about wet my ummm underwear, laughing at y'all. What an amazingly talented group of comedians we have on this team. But laughing is one of the things that has kept us going, huh.
Love the laughter & smiles. Hugs to all, Brenda

Brenda


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SYLVIALYNN2's Photo SYLVIALYNN2 Posts: 572
3/16/11 10:52 P

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Went to a breast cancer support group this evening. It turned into a "show and tell". One woman asked if we would like to see her reconstructed breast. The nipple looks so real. Another woman just finished radiation after a lumpectomy. She read a poem she wrote and showed us her "burgundy" breast. I find groups like this and the face-to-face groups in my area are so supportive. It is amazing how almost complete strangers bestow such an out pouring of care, concern, support and prayers.

2010 the year to be the best I've ever been!


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CHERYN321's Photo CHERYN321 SparkPoints: (0)
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3/16/11 6:05 P

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Congrats to you gals that have finished the stretching and going for your tatts!!! I have one or two more injections to stretch these expanders (post radiation on my left side). The pain is killin' me!! emoticon My permanent implants are scheduled on May 6th, and tattoos to be done whenever.......Hoping to buy a new bikini for the Summer!!
You go girls!!! It's been a l o n g journey! emoticon

Cheryn :)

You have to accept whatever comes and the only important thing is that you meet it with courage and with the best that you have to give.

~~Eleanor Roosevelt~


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GLOMER's Photo GLOMER Posts: 4,579
3/16/11 12:42 P

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Thanks goodness we can laugh! Now we can all write our books and I'll name mine "Down Mammary Lane" emoticon

No boos please.

Eastern Time Zone


I expect to pass through this life but once. If, therefore, there can be any kindness I can show, or any good thing that I can do to any fellow being, let me do it now as I shall not pass this way again.



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CD5263005 Posts: 376
3/16/11 9:32 A

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Who would have ever thought you would have to make a decision like to nipple or not to nipple, to tat or not to tat. It's so absurd. It adds for some lively conversation with friends. It actually would make me giggle, I think because it's a sweet kind of an ending to a long deal. Good luck to you all.

DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
3/14/11 5:45 P

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Mandy--- that is awesome!!

I am happy with my results too .. but my left breast is much more firm than my right.... the right one feels more "real" than my left. but my doc says it is okay there is nothing wrong that it is just taking my left breast a little longer to heal and relax (probably because I had my port on the left side).

How exciting for you too ~~ Let me know when it is! :0)

Life is good :0) and I am so grateful for the medical miracles that exist today (and for insurance and for my friends on this site!!)

((hugs)) Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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CD1199018 Posts: 197
3/14/11 3:52 P

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Dee, so good to see you done with treatment and doing so well!

I'm all done with my reconstruction - so so happy with my results! - I'll be getting my nips tattoed in May also! Not sure of the exact date, yet. Wouldn't it be fun if it wound up on the 13th?! emoticon

DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
3/14/11 11:15 A

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Thanks to all of your support and sorry for not getting back sooner... busy woman!! Work full time, grad school part time and an internship!! Plus living at the gym in an effort to lose weight.

So .... here are some of your answers...

I had a double mastectomy with immediate reconstruction. I was fortunate that we caught it at stage I and it had not spread to the lymph nodes so I did not need radiation. So... I woke up (on my birthday last year) with little "bumps" and no nipples. .... every three weeks I would get a "fill" the week before my chemo was scheduled. ..... eventually I got to the size I wanted ("C" cup from an A nearly B, naturally - heck - I gotta go through this I'm getting the size I want! LOL!!).... anyway --- In January I had my nipples created and it amazed me and my hubby at how real they looked -- of course, it was my own skin but they really look like nipples!!.... though they look a bit weird because of no areola! :0)

So I went to my plastic surgeon last week and he said everything looked good and that I could schedule my tattoos... a simple procedure that his nurse will do right in the office (two hours)....

I chose to do this on my birthday because it means I've come full circle ... I am grateful. This is my last procedure but not my last step on the cancer journey... I am taking Tamoxifen for the next 5 years (God willing) and I have decided to SYMBOLICALLY .... WALK AWAY from Cancer by doing the Susan G. Komen 3-Day walk in Tampa Bay Florida this coming October!! That will be my "final" step on the cancer journey.... psychologically speaking.

So... here is the SHAMELESS PLUG!!!
If anyone wants to support me by making a donation (I have to raise $2300) you can go to the website http://www.the3day.org and clikc on the DONATE button... type in my name.....
Darlene Kinney and donate whatever amount you can .... every dollar counts!

Thanks again for all of your kind words and your continued support!!




It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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3/13/11 9:25 P

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I'm supposed to wait 9-12 months after radiation (Thanksgiving I was done) so I have a while to decide and can always do it later. Really my main concern about NOT having boobs is the heat here in the summer and those darn bras! How great it would be to have little bumps and wear a sundress w/o worrying about a bra! I mean no jiggle, no big 'headlights', just free and breezy! I'm not scared really but the hassel and the pain just puts a damper on your everyday life! After this summer I will see where I stand. I do not miss my 38 D's one little bit!! The reason I did a double was because of the lopside thing and for fear of getting BC in the other one.


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GLOMER's Photo GLOMER Posts: 4,579
3/13/11 7:18 P

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Hey Dee,
Congratulations! Good for you! I do think it would be cool to have the tattoos.

Eastern Time Zone


I expect to pass through this life but once. If, therefore, there can be any kindness I can show, or any good thing that I can do to any fellow being, let me do it now as I shall not pass this way again.



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GLOMER's Photo GLOMER Posts: 4,579
3/13/11 7:16 P

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I changed my mind after I thought about the surgeries that I had already had. One for the mastectomy but a month earlier I had a kidney removed - turned out non-cancerous but then the breast came back positive.
When I talked to the plastic surgeon he said I would have the stretcher put in then after I got to the size I wanted (I'm with you B is plenty), he said he would make the other one match. Not so much for me right now. Maybe later if I keep losing things. I don't like being lopsided but I really don't want anymore surgeries for awhile. I'm a coward.

Eastern Time Zone


I expect to pass through this life but once. If, therefore, there can be any kindness I can show, or any good thing that I can do to any fellow being, let me do it now as I shall not pass this way again.



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JOCALAT's Photo JOCALAT Posts: 1,036
3/13/11 6:51 P

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congrats!!

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3/13/11 6:42 P

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Oh you are so funny! I swear I thought you were going to say it melted all over your computer!

So when I go to WW to weigh in, I wear my cami instead of the 4 pound prosthetic!! (if they only knew)

With my prosthetic, the insurance pays for them yearly. So I got 2 sets, one a lounging type that is used for exercise and swimming etc. the other kind, which I have worn twice, soooo heavy and I got 4 bras! All covered by insurance and they were so expensive and not a dime out of my pocket! I may wait till next year and just get the lounging type and i will go with a smaller cup size. I would just want small boobs anyway. If I do get reconstruction...the nipples bug me, I've heard they hurt, itch, are too big, too pointy, etc. In fact when my mom had BC many years ago she had her nipple redone because it was always erect! She only had it done on one side and her real boob was not the same and it looked weird. I would do just a small size, like B and maybe just the tats and not the nips, but maybe nothing. I really can't imagine right now going through all those surgeries. I had my double mastectomy around Labor Day and my skin is still sore. What in the world made you decide not to do it after you were scheduled?

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GLOMER's Photo GLOMER Posts: 4,579
3/13/11 6:20 P

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First - yep I would get the tatoo - it would make you feel more like they are real. The Plastic Surgeon that I went to showed me pictures with and without nipples. They really looked real! (not obvious under a shirt either).
Second:
Here is the information for the prostheses: I picked the one I wanted from the pictures then I called and talked to a representative that was very helpful.
The one I got cost about $79.00 It's light and easy to wear (nothing like the silicone one I got) but heavy enough that it doesn't ride up. There is a small weight in it - not much. There are lighter and less expensive ones that you can get but they might be too light to hold the bra in place.

Just Google: JC Penney's Breast Prostheses or JODEE and it should come up. It's part of JC Penney's - sort of.

JODEE
This is the one I ordered.
SOFTLY II Breast Form
Style:
45

Next:
If you knit - there is a place on line that you can get a free pattern for what's called Tit Bits. It is a knitted prosthesis with a nipple knitted right in it. I started one but haven't finished it. You can put a weight in it - I have a 2 pound fishing weight that I'm going to use - lol.
The person that designed them sells them also. She put the pattern out there for folks that can't afford the prosthesis or don't have insurance. I think it's wonderful.
One time at work I got hot and took out my prosthesis, put it in my lap top case and forgot where I put it. So I figured I could make one in bright red and put a clapper in it so if I put is somewhere again I could just clap and find it.
Just Google Tit Bits and it will come up.

Let me know how you make out. I don't think I ever laughed as much as since I had the mastectomy.

emoticon

Eastern Time Zone


I expect to pass through this life but once. If, therefore, there can be any kindness I can show, or any good thing that I can do to any fellow being, let me do it now as I shall not pass this way again.



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3/13/11 5:49 P

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Glomer, may I ask what catalog? I get the TLC one but you really can't tell what the materials are. I still wear the cami I got in the hospital. It's super light but like wearing an undershirt and Phoenix is too hot for it.

If I DO get reconstruction I will probably bypass the nipples. Maybe just the tatoos? Any thoughts on that? Anyone just had the reconstruction for boob bumps w/o the nipples? I mean when I had them I didn't want them to be sticking out so why would I now? I'm afraid I would always look cold! lol!! emoticon emoticon emoticon emoticon

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GLOMER's Photo GLOMER Posts: 4,579
3/13/11 4:09 P

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I had mine all scheduled and changed my mind. I decided I didn't want anything that wasn't my own body inserted. I know a lot of folks that have them and they are happy - although everyone of them has had to have more surgery for scar tissue at least once.
I hate the prosthesis also but so far I found a lighter one in a catalogue so I'm good to go.

Eastern Time Zone


I expect to pass through this life but once. If, therefore, there can be any kindness I can show, or any good thing that I can do to any fellow being, let me do it now as I shall not pass this way again.



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3/12/11 9:53 P

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I would have loved to have immediate reconstruction at the time of my mastectomy but not an option because of the radiation. If I do go for reconstruction I may not even do the nipples, I really just want bumps so I don't have to lug around that 5 pound prosthetic bra! lol! My hubby doesn't really want me to have more surgery, boobs mean nothing to him so it's totally up to me. I just like hearing input from others.

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HEATHER809 Posts: 366
3/12/11 8:44 P

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I had a skin-sparing double masectomy so no need for me to have tatooing. The tumor was far enough away from my nipple that this was an option for me.

Congrats Dee! That is exciting news! Is this the last step in your cancer journey? I still have one more surgery scheduled for June then I should be done besides the blood work appointments and daily pills.

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SYLVIALYNN2's Photo SYLVIALYNN2 Posts: 572
3/12/11 8:28 P

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I would ask your plastic surgeon if he does tattoos. If not, ask if he can recommend someone. I will be having my right breast removed on March 22 and begin reconstruction. The plastic surgeon will be harvesting the latissimus (back muscle) while the surgeon is removing my breast. When he is finished she will pull the muscle to the front and put in an expander. One of the last things she will do 6-8 months down the road is to tattoo the nipple and areole to match my left breast.

2010 the year to be the best I've ever been!


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3/12/11 3:50 P

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Congrats!
Can you clue me in on what steps you had? Like DELAYED reconstruction? My Radiation Onc. said if I do reconstruction it shouldn't be done for about a year after the end of my radiation. At first I was gung ho for it but now I really can't imagine the skin on my chest stretching! It is so tight now. He would do a lat flap on my right side but just the expander on the other and the skin on both sides are so tight. Not sure if I will go through it or not but would love some insight. Pain? Fills? time? What was your treatment plan? Thanks and again congrats!

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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,618
3/12/11 11:16 A

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I hope it all goes well for you, I think I had mentioned this before, but I have never been offered tattoos, maybe my plastic surgeon does not do that, does anyone know if this is standard? So happy things are coming along Dee! emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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SYLVIALYNN2's Photo SYLVIALYNN2 Posts: 572
3/12/11 9:11 A

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What exciting news, Dee. Are you a dietician? Have you changed your diet since your cancer diagnosis? If so, what are you doing for recovery and prevention. My right breast will be removed on March 22 and will start reconstruction at the same time with back flap and expander. Want to eat more healthy and need to get to a good BMI.

2010 the year to be the best I've ever been!


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MAURIZIA's Photo MAURIZIA Posts: 15,640
3/12/11 1:28 A

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Happy tattooing, Dee. What a great birthday giftbtonyourself!

Mauri, EASTERN TIME ZONE, NEW ENGLAND

"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi

"Love yourself. You are the ultimate act of creation, fashioned by the hands of a Divine Artist." - fCheryl Richardson, rom GRACE CARDS (a 50 card deck)


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SWARMSOFLIZARDS's Photo SWARMSOFLIZARDS Posts: 231
3/11/11 10:54 P

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Dee, that's so exciting--congrats! And just think, you and the nips will share a birthday!

emoticon emoticon

Meredith

"Imagine that in front of you is a castle. That's where you want to be. But surrounding that castle is a moat, full of piranha. The only way to get into Sexy Abs Castle is to swim across the moat and let the little fish painfully chew off hunks of fat. The real situation is exactly like that, only the swim will take years."
tinyurl.com/piranha-moat


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DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
3/11/11 10:52 P

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I am so excited that I just had to share.....

I went to see my plastic surgeon yesterday (the follow up after my nipple surgery in January) and I am healing nicely (they were quite long at first but they shrank to a nice "normal" size! - much to my delight! LOL!) ~~

I scheduled my areola tattoing to be done on May 13th -- my birthday! And... as it happens... exactly one year after my mastectomy. I had my mastectomy on May 12th and woke up in the hospital on my birthday -- cancer (and boob) free. This means I have come full circle and I have to say that each and every one of you helped me through this journey (as you continue to do) and I am forever grateful ~~ and I cannot thank you enough!!

Just had to share :0)
((((hugs))))
Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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