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SMIDGON's Photo SMIDGON Posts: 5,548
4/17/11 5:05 P

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I am not a Breast Cancer Survivor, but, my soon to be 44 year old daughter is! On May the 04 it will be a year since she was told the cancer is gone. So far, all is well. I don't know if she has had an issue with Tamoxafin or not, I;ll ask her.
When she gets her 18 year old settled in college she has expressed interest in SparkPeople. You can be sure I'll direct her to this team.

Thanks

P.S. Looking at the picture, she is the one on your right.

Edited by: SMIDGON at: 4/17/2011 (17:08)
"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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DONEAL7's Photo DONEAL7 SparkPoints: (0)
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4/17/11 6:13 A

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I have only been on tamoxafin for about 4 months. My behavioral oncologist has been adjusting Effexor dosage. She said it is supposed to help with the hot flashes. I don't know if we finally hit the correct dosage (225 mg) or if it's because they finally turned the heat off at work, but my hot flashes are a lot better.

Fight like a girl!!!


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IWANNABEE's Photo IWANNABEE Posts: 642
4/15/11 6:52 P

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Hi Dee,
When I first started Tamoxifen I thought I was gonna die. The hot flashes where so often and bad (upwards of 25 a day). I made it through the night with a wet facecloth and a fan. Eventually they lessened in strength and intensity (I'm over 18 mos. into them). I have found now what I eat REALLY makes a difference. I'm very careful with caffeine and fats (even the healthy ones). If I want some nuts or seeds, I try to eat them as early in the day as I can and no coffee after lunch time. I sleep au natural as I was always pulling my nightie off and on all night... hmm... could be a source of exercise emoticon . One thing that I did buy and I love are bed sheets that are made with dri-weave in them (just like work-out clothes), it wicks the moisture away when you sweat at night. For me rolling into the cold wet sheets once I finally got back to sleep were almost as bad as the actual hot flash. The sheets are a little pricey but I think for me they were worth every penny. Hubby tends to sweet at night as well and he isn't even on Tamoxifen emoticon
Hugs,
Jo

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PAT3ONTHEBACK's Photo PAT3ONTHEBACK Posts: 270
4/8/11 12:37 A

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I finally gave up on jammies altogether, finding that I cool off much better when there is no cloth barrier between me and the cool, evaporative air. I would keep a towel handy to spread out on the sheets if they became soaked because I hate wet sheets.

A fan is a great idea, once used to the sound anyway. The moving air really cool things off quickly. Great ideas, sparkies (or flashers as the case may be)

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GATOR12's Photo GATOR12 Posts: 4,655
4/6/11 10:17 P

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I don't know, either about the jammies, and this tip I can not report on first hand. Another acquaintance who had breast cancer at the same time I did, told me recently she didn't have much problem with hot flashes because her surgeon told her to start Vit E and take it continually. That's all I know. Mine have never been that bad at night. I spend lots of time throwing covers off and pulling them on and dread summer because worsens then.
I really like Sedona's rice pack tip. I have used rice in socks heated in micro for heating pad for my neck lots!

Brenda


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CARPROTH's Photo CARPROTH Posts: 19,335
4/6/11 12:50 P

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I'm another one who sleeps in light cotton nighties (knee length). When the flashes/night sweats hit, I use the skirt as a fan. I also have a Hug Herbal Pack (cotten covering filled with grains and lavender - similar to Sedonacat's rice bag) that I freeze and keep in a small cooler next to the bed. The bag is cooling and the lavender very soothing. I have a whole set of the packs and keep them in the freezer as 'owie bags' and the grands head straight for them with any bump, bruise, etc. I also have a zipper case for my pillow so the sweat doesn't seep in to the filling and keep 2 or 3 cotton cases in the cooler along with the pack to change the dripping ones. I know a lot of people who take a very low dose of either anti-depressants or anti-seizure meds that supposedly help with flashes . Supposedly no side effects from the small dose, but I'm still trying to live with the flashes without resorting to any more pills.

Carol


Shoot for the moon. Even if you miss you will land amongst the stars.


Nothing changes when nothing changes.



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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (0)
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4/6/11 11:10 A

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I just wear a light cotton nightie and have access to 4 pillows and switch them out during the night as they get sweaty and change the pillow cases all the time. I keep a fan going right next to the bed and a light quilt I can throw on or toss off. I really don't think there is an answer or cure, just something we all can relate to and have to get used to!

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SEDONACAT's Photo SEDONACAT SparkPoints: (182,174)
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4/6/11 9:26 A

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I don't know about the PJ's but I do have a tip that worked very well for me esp. at night.

I took a long tube sock, filled it with rice to the point where it was still flexible. I put it in a plastic bag so it wouldn't pick up odors and left it in the freezer. When I'd wake with the flashes, I'd get it and place it around my neck. Because it was long and flexible, it stayed in place without my having to hold it so I'd fall asleep. I'd wake up later really cooled down. Also during the day, I would hang it around my neck ,where again, it would stay without holding it. My hands would be free to do whatever I wanted. I also used a little lavender oil with the rice for relaxation and it's antiseptic properties.

I used the warm and cold rince in socks for years when I did labor support. The moms loved them.


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DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
4/6/11 8:24 A

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Hello Everyone ~~ So sorry I've been "absent" ~ Live has been super busy with work and school (and an internship) ~~ I've got a quick question for those of you in the know!

This lovely Tamoxifen has me FLASHING .... I handle it pretty well during the day but struggle with it at night. Right now I use an ice pack under my head and one on my chest just so I can fall asleep and when a flash wakes me up I get up and switch out the ice packs (I have a couple so I can rotate)... anyway I was wondering HOW you all deal with this?

Someone recommended Menopause Pajamas... they are really expensive and I was wondering if any of you have used these jammies and if you thought it was worth the extra money.

I know that doctors will prescribe antidepressants for the hot flashes but I am not depressed and I have a hard enough time trying to lose weight just from being on Tamoxifen... I would never add another drug known to make weight loss difficult! LOL!

Thanks -- I look forward to your comments!
Hope you are all doing well as I keep you all in my prayers!
((((hugs))))) Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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