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SEAWAVE's Photo SEAWAVE Posts: 1,421
12/3/11 9:19 A

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No experiences to share, but I just wanted to send a little note of support. Hopefully, you'll have the same experience as others have and this will be a good thing in the long run, and not too disruptive for you.
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SeaWave
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I am who I chose to be. Stronger. Leaner. Further. Fierce.

Because I love...

Whether you think you can or you can't, you're right.


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (0)
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11/26/11 9:54 P

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Like you Joy, I didn't take hormones after I had a radical hysterectomy. That's
the reason I was so surprised when I got BC, that was hormone related. I
know that we can get hormones from other glands, but still......could not
understand.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (0)
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11/26/11 6:57 A

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I don't think the Dr. did anything with my bladder....Hopefullly if he did, he'd have told me! LOL I did take hormones following my hysterectomy, and if I had to do it over again, I would NOT....


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STANNER3's Photo STANNER3 Posts: 2,459
11/25/11 1:18 P

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No problems with "leaky bladder" at all! I know he did "tack up" the cervix, but I don't recall him messing around with the bladder.

I was ER/PR negative, so the hormones never had a part in my treatment. Sorry!

Suzanne

That which does not kill us makes us stronger.

Phil. 4:13 "I can do all things through Christ who strengthens me."

"A pessimist sees the difficulty in every opportunity; An optimist sees the opportunity in every difficulty. Winston Churchill

"Victory is not found in the ease of our circumstances, nor in the strength of our own resources, but in the presence of the Lord, who is with us" Roy Lessin


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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
11/24/11 10:39 A

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My love, prayers and best wishes are with you Dee. I hope this makes everything better, you are so positive, you will get through this. caring thoughts to you and have a happy thanksgiving. emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

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"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
11/24/11 10:19 A

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Thanks for sharing Suzanne!

I'm so glad to hear you had a quick recovery. I am hoping for the same!
Have you had a problem with a leaky bladder. I had read that sometimes that is an issue once you have a hysterectomy... unless the doctor "tacks" the bladder - or something like that.

Also - can I ask you if you chose to take the Armidex or some other medication?

Thanks,
Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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STANNER3's Photo STANNER3 Posts: 2,459
11/23/11 2:34 P

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I had my total hysterectomy about 2 years ago, and did it the robotic way, only about 3 tiny incisions and I was off work for a week and then right back to it!! I do treatment planning for cancer patients, so my work is mostly computer related, and therefore not very active, haha.

I had trouble with fibroids before my breast cancer diagnosis, and had the cramping as if I was getting my period even though I was in "chemopause"....and finally just hemorrhaged, which caused them to take action! Felt so much better after everything was out, and fortunately no problems since then except of course weight gain, but that's a constant battle!

Hope yours goes smoothly!!

Suzanne

That which does not kill us makes us stronger.

Phil. 4:13 "I can do all things through Christ who strengthens me."

"A pessimist sees the difficulty in every opportunity; An optimist sees the opportunity in every difficulty. Winston Churchill

"Victory is not found in the ease of our circumstances, nor in the strength of our own resources, but in the presence of the Lord, who is with us" Roy Lessin


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DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
11/23/11 8:25 A

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Thanks for the replies so far!

I am grateful that I am able to have a "robotic" hysterectomy that will require 5 small incisions and is minimally invasive. My doctor said that recovery should only be 2 - 3 weeks tops but that many women who have sedentary jobs are able to go back in a week to ten days.

I am a professor and we are going into our winter break so I don't have to be up and teaching (I can work from home). They want me to be up and walking or doing the stationary bike as soon as possible to help with recovery. That is good because I love working out and hate the idea of not being able to work out. Of course, my boxing class will have to be put on hold! LOL!

Thanks again for your support ~ I can ALWAYS count on this team!!! ALWAYS -- even when I've been "away" for a while!! For that, I am grateful!

Have a Happy Thanksgiving!!

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (0)
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11/22/11 11:14 P

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Dee, sorry that you have to get a hysterectomy, but you'll be glad, after
you've healed.

I had a total hysterectomy 18 years ago. I also had my bladder tacked up,
damaged because of child births. I had what they call it back then, a
bikini cut, all across the bottom of my abdomen. I was working full time
then, and was supposed to stay off work for 6 weeks. However, I went
back in 4 weeks, but not because I felt great. I didn't want too get behind
in my work, it was waiting for me, when I went back.

I felt weak for a full year.

I hope that your case will be different. That you are not being cut on the
outside, will most definitely be more favorable. Wishing you the very
best results.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (0)
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11/22/11 10:42 P

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Good luck Dee. I had my total done after cancer was found in my cervix. The Dr. told me he "took everything, from hip bone to hip bone". Unfortunately, I had to have it the old fashioned way, and have an incision scar from hip to hip. So I'm sure the recovery and everything was different from what you are having done. My recovery took 6 or 8 weeks, and boy was I limited in what I could do... Was sent home with a catheter still in (insurance company decision, as the Dr. wanted to keep me a few more days due to kidney failure and a collapsed lung..) I had quite a bit of pain, but no more than I expected. They put me on HRT after the surgery, and I wish now I had fought them tooth and nail, because it was after that that I developed the breast cancer. So stick to your guns about any extra meds. Good luck, and keep us posted. Hugs


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(. ;..♥ .* ) ..*) -::- ♥.*-:
(. ;..♥ Joy ♥.*) ;..
♥.*-:♥:-. ;..♥ -::-
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Joined 2/10/08

Co-leader of Managing Diabetes, Over 50+Over 50+
View my photos @ flickr.com/photos/joysgarden


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DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
11/22/11 10:02 P

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Hello Ladies ~
Lonnnnngggg Time Noooooo Seeeeee emoticon
As some of you know... In addition to working full time I am also in grad school full time (God willing, I will be graduating with my masters in social work this June 9th)...

Anyway -- I am still dealing with the loss of my mom to leukemia (she had also been a breast cancer survivor)... tough time of year since it is the first holiday season without her. =(

I am 1 year post chemo (finished my chemo a year ago this past September) and I have been taking (much against my desire) Tamoxifen - which they say increases the risk of uterine cancer. Anyway... I have been taking that for one year at my oncologist and hubby's pressing.

Even though I had stopped my periods after chemo (chemopause) ... I would get cramps as if I were getting my period -- but never did. So... at my urging my oncologist referred me to a gynecologist who was also an oncologist.... she decided to do an ultrasound of my uterus and we found that my uterine stripe (how thick my wall is) was 7 mm and it should be 4mm...

Long story short (too late, I know) ... and she is concerned that I have "significant proliferation of the uterine wall which may become precancerous" ... so I am scheduled to have a total hysterectomy December 5th.

I'm actually happy about it because that means I can stop the Tamoxifen... and this time I WILL NOT take any other medication (they suggested they would want me to go on armidex or something like that)... my hubby is on board with this (thank God).

The Tamoxifen has been terrible.. I've gained 30 pounds since starting this medication and I am struggling with depression - which I've read can be a side effect of Tamoxifen.

Anyway -- I was wondering if any of you wanted to share your experience with having a hysterectomy (of course, those who have had a hysterectomy)

Specifically -- how long did it take you to recover? I am having it done robotically and the doctor said a week to two weeks recovery (compared to 6 weeks the other way).

Thanks,
Dee
PS -- HAPPY THANKSGIVING!!



It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


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