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5/9/12 12:30 P

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Nancy glad for the good news!! Hang in on the treatments. i know how rough they are but the end result will make you forget the bad!! or at least it will dim some!

Holly
Northern NY
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NMBUTLER Posts: 1,201
5/6/12 11:41 P

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Not feeling well from Lyme Babesia treatment. But got good news from the bronchioscope- no cancer or anything bad showed up. I do have mild asthma though.

nancy

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NIGHTSKYSTAR's Photo NIGHTSKYSTAR SparkPoints: (720,283)
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4/12/12 9:24 A

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Hi Bren, no i dont know about them. Kevin took neurontin and nexium..and triend the new one i cant remember the name. they did work he just cant afford them.he has no insurance. he just lives with the pain.
know I am thinking of you!! If you google the word i'm betting you get lots of info.

Nancy how are you?

Holly
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JITZUROE's Photo JITZUROE SparkPoints: (247,783)
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4/11/12 6:49 P

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Hi guys,
I'm having my own crisis too. Has anyone ever used sodium channel blockers for nerve pain? Apparently there are more than a few. My neurologist, rheumatologist and pain management doc's all say I need to start a regimine ASAP, but don't know a lot about them.
Being that this is MY body and all, I would love some feedback.

Thanks!
Bren

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JITZUROE's Photo JITZUROE SparkPoints: (247,783)
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4/8/12 8:39 P

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Hi Nancy,
I'm so sorry that you are stressing out! Please trust that the test results will come out clear!
Sending hugs of support and prayers your way.
Be confident. Breathe. We are here for you!!!
Bren

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4/8/12 7:00 A

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Deep breath Nancy!! First, know the statistics. Most biopsies are benign!!! Second--don't look stuff up until you get a diagnosis. Third. Sounds like you have found a good doc--yay! That said, prayers and a huge hug and lots of support coming--I know that fear well and I got through it you will to hon!!

Holly
Northern NY
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4/8/12 12:00 A

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was so exhausted after my 4 hour visit and 45 min of driving each way other day that I could not even write an e mail last night.

I have Chronic Lyme Disease and have been thru so much and now this.
I am SO UPSET. 5 months ago when I coughed up blood TWICE and they did a CT chest scan and found a nodule the Pulmonologist that I saw did not test or look any further or do a Bronchioscope to see WHY I coughed up blood. MORE INCOMPETENT DOCTORS GRRR!!!
They could have checked and done this and set my mind at ease a long time ago. In the mean-time I had thyroid surgery, the holidays and then was searching for a good Pulmonologist to go to and it took me awhile. WHY DO I HAVE TO GO THRU THIS EVERYTIME UNBELIEVABLE.
Then I got a recommendation from someone who attended the support grp and made an appt and waited to get into see this good Pulmonologist. He is VERY THOROUGH compared to the other doc.So hence the 2 appt.'s for different breathing tests and lab work. All of that took time. And yes my ribs hurt from the breathing yesterday but I got thru it. May have to go back to chiropractor if it doesn't settle down.
Went thru more breathing tests yesterday and saw Pulmonologist for test results. I have mild asthma and there is an abnormality in my blood work which could indicate a disease called Sarcoidosis- no known cause for this disease and symptoms are similar to Lyme- HMMM!!
Have to have another CT chest scan to see if nodule has grown in size or there are any other changes in my lungs since last CT 5-6 months ago. that will be on Monday and I have to drive myself. John will be out of town Monday and Tuesday and get back late on Wednesday which scares me.
And then I have to have a bronchoscopy in hospital next Thursday to check for Cancer and why I coughed up blood and why I have this nodule in my lung. I am really worried and freaked out. Pray for me. I CANNOT BELIEVE I HAVE TO GO THRU THIS AGAIN. All these cancer scares and then I have to wait to find out results for 1 week and then 2 month wait to find out other results that take longer. But at weekly follow up they can tell if it was Cancer.OMG
I AM NOT DEALING WITH THIS WELL AND THEN UPSET CAUSE JOHN WILL BE OUT OF TOWN BUT HE WILL TAKE ME TO HOSPITAL FOR PROCEDURE. HELP GIRLFRIEND.
Could not sleep last night- too worried. Found out on-line thru Harvard Medical Specialist that a nodule in the lung should NEVER be ignored and should be biopsied right away for cancer. Well ignore it is just what happened 6 months ago when I had CT of chest and my internist, radiologist and Pulmonolgist that I saw at the time blew it off. They were not even going to check it again. UNBELIEVABLE INCOMPETENCE. I have scary symptoms that are shown with lung cancer- coughing up blood twice, chronic cough, trouble swallowing sometimes, fatigue, etc.. I AM SO SCARED THIS TIME. PLEASE PRAY FOR BENIGN RESULTS.

Love
Nancy


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