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CD13949204 SparkPoints: (2,013)
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5/25/13 9:25 P

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Hello,
I am new to SP and I have had Lyme Disease for 5 years. When I first got sick, I lost 70 lbs. in just a few short months. I thought nothing of it and now that I've gained it all back + some, I realized it was the multiple parasites I had that caused me to lose the weight. I too crave sugar constantly. I have learned that the Lyme spirochetes as well as candida feed off of sugar and need it to survive. I've been battling arthritic symptoms, severe depression, massive headaches, brain fog, neurological symptoms and vision problems. I'm trying so hard to motivate myself to go for walks with my dogs and just move. It's hard for me to maintain a consistent diet. Some days I have no appetite at all, other days, (like today) I'm ravenous and eat 1000's of calories in just one day, and still feel like I haven't eaten for weeks! I'm really hoping to connect with other Lymies for support. This disease has ravaged my mind and my body. But I absolutely refuse to give up!
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CD13776795 SparkPoints: (10,599)
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5/9/13 11:00 A

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I know it has been a long time since you posted this, but I just joined Spark. I have had lyme disease for almost 20 years and 5 years ago I got breast cancer. I gained 70 pounds also. Here is what I have discoved that is of utmost importance - stay as stress free as possible. That means we need healthy outlets for your problems we have no control over - friends to talk to, faith in a hight power - meditation - stress free exercises like Thi Chi and Qi Gong - listening to how we talk to ourselves, don't us negative language and self criticism - encourage your self, give your self credit for what you do the best you can.
I had given up exercising because it took too much out of me and I did not think a little would be enough. then I discovered a number of studies that showed a little can be just as good as the heavy kind of exercise that is not good for us. I started with just a slow walk of 5 min. a day I am now up to 10 min. twice a day every other day and doing Qi Gong on the alternate day. Something is alway better than nothing and as you try little by litte and do not over due you will suceed!!!!

CD13776795 SparkPoints: (10,599)
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5/9/13 10:51 A

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This is an old post I am replying to, but I just joined Spark and I have lyme disease and have had it for almost 20 years. I had 2 false tests and was paralysed before they finally took a test that came out positive. Do not give up. If you are having trouble with your dr try another.
Getting plenty of sleep, and not stressing your body is vital. That means physically and emotionally. Exercise needs to be gentle and start slowly. There are now studies that show the heavy exercise does no better than gentle consistent exercise. Even 10 min. of walking has helped me.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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4/20/09 6:49 P

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I know yourtroubl it is tough not to get depressed and eat. Just take it one little step at a time!

X there seems to a lot of debate about the testing and that it doesn't always show up right. Best thing is to find a doctor who is well versed in Lyme disease.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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XPUZZLED Posts: 135
4/19/09 5:43 P

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I was tested for Lyme disease 3 years ago and the test came back negative. The article posted sounds a lot like my experience. Does anyone know if false negatives are common?

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YOURTROUBL Posts: 1
4/1/09 12:48 P

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Its so hard. I gained 70 pounds. First, I think it was the steroids (before the Lyme Diagnosis) and then the pain and inactivity. Working, taking care of family is hard enough so working out at lunch became napping on my couch in my office. My port for my meds went way wrong and went to my heart and now I have a high heart rate. Its like I keep having these excuses not to exercise. Its tough not to get depressed and just eat too..

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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3/1/09 5:34 P

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Your welcome. Hope your doing well.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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MCLH001 Posts: 3
3/1/09 4:59 P

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Thank You very much.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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2/26/09 7:22 P

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emoticon Here it is!


http://www.articlearchives.com/medicine-
health/diet-nutrition-fitness-choleste
rol/413954-1.html

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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MCLH001 Posts: 3
2/25/09 10:41 P

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Thank you very much. I have been trying to figure out for the past year and a half what has been going on in my body. Nothing has made sense and I need to do more research for answers.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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2/24/09 4:28 P

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Your welcome. I will have to look and see where I got it.

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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MCLH001 Posts: 3
2/21/09 3:52 P

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Thank you for the article. Finally I have some answers. Where did you find it so I can show it to my doctor.

NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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11/3/08 1:03 P

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Here is an article about Lyme disease and Weight loss.
People with longstanding Lyme disease end up in poor physical condition. Even with successful treatment of the Lyme infection, they will not return to normal unless they take an active role in personal rehabilitation.

In late-stage disease, many negative effects to the body occur. The muscles atrophy, and to some degree the heart muscle also suffers, as do the joints, nerves, liver, and other structures.

Besides these physical effects, chemical changes occur. The fat content of the body as a whole rises, the cholesterol rises, and the balance between high-density lipoprotein (HDL) and low-density lipoprotein (LDL) becomes less favorable. At least 80% of the patients experience significant weight gain.

To make matters worse, because of the extreme fatigue and body pain, many Lyme disease patients end up spending inordinate amounts of time in bed and get far less exercise than they had before they became ill.

As a result of all this, patients are stiff, weak, and tired; they have poor stamina and are at increased risk for cardiovascular disease and diabetes.

Therefore, a vital part of any plan for recovery must include various forms of physical therapy, the extent of which depends on an individual patient's condition.

The earliest phase involves multiple modalities (massage, heat, ultrasound) and simple range-of-motion exercises to relieve discomfort and to promote better sleep and flexibility. This then evolves into stretching and mild muscular strengthening, which can lessen joint pain and increase mobility and stamina. Finally, the program must include some form of aerobic conditioning.

Diet also plays an important role. This is the time for the very best of health habits. Recommended are light, low-fat foods with high nutritional value. Further fortification should include daily intake of vitamin-mineral supplements, including beta-carotene, vitamin B-complex, vitamin C, vitamin E, calcium with magnesium, and potassium. Foods that contain these nutrients are preferable to pills.

Patients with Lyme disease should also abstain from alcohol, caffeine, and tobacco. A serious commitment to weight loss, if applicable, is desirable.

COPYRIGHT 1994 Vegetus Publications
COPYRIGHT 2004 Gale Group




~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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11/3/07 8:17 P

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Past week pretty much been at a stand still with the weight. Lost about 1/2 lb. Better than nothing though. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AVONREALTOR's Photo AVONREALTOR Posts: 367
10/28/07 12:47 P

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Glad you got. We work hard to make that ticker move, and we want to see it! Also thanks for the kind words on my sparkpage. The mini goal is my new best friend!

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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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10/27/07 3:00 P

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I finally figured it out. When you make changes you have to edit it on your sparkpage as well. I had gained more than I originally had started out on sparkpeople, so I had to adjust it higher but I never changed it on the sparkpage. Then I started going back down again. So I was just all over the place I guess. Wll at least I am going back down. emoticon emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


 Pounds lost: 11.7 
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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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10/27/07 2:18 P

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I'm going crazy, I never had a problem with it before. I did exactly what you said and all it just did was change my number and the bar got shorter but my ticker is still not moving. emoticon oh well at least my waist is. emoticon emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AVONREALTOR's Photo AVONREALTOR Posts: 367
10/27/07 9:46 A

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On your start page click on the WEIGH IN part of the tools block ( Not on the progress part). Also you have to click on the save button at the bottom to save. I do not put the measurements in every time. I am currently going to the hospital for some classes and they measure. I put the measurements in then. I hope this helps.

 current weight: 262.0 
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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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10/26/07 11:23 A

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I don't if I am. Where should I do it. I think I may be mixed up. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AVONREALTOR's Photo AVONREALTOR Posts: 367
10/26/07 10:23 A

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Are you changing it in the right spot? I did that before????

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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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10/26/07 1:21 A

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I lost a few more pounds but my ticker seems to be stuck I don't know why. The number is moving but not the ticker counter. Maybe it hasn't been significant enough. emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


 Pounds lost: 11.7 
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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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10/24/07 1:38 P

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Over the past two months I had gained about twenty extra pounds. I was depressed and hitting the ice cream big time. So I stopped that and starting tracking my calories again. When I don't track my calories I usually start to gain weight. I mean I track every piece of candy, stick of gum, bite of anything. Because it adds up so fast. So now I have ben starting to lose about a pound a day. So we will see how things go. Hopefully they continue on the positive. emoticon

Edited by: NARNIA9334 at: 10/24/2007 (13:38)
~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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AVONREALTOR's Photo AVONREALTOR Posts: 367
10/23/07 10:34 A

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Delirium, this Lyme thing is really awlful. I was diagnosed last June (06) and just this last two months started to really fell somewhat normal. I was very depressed and did not even realize it. I gained 40 pounds in the process and I am STRUGGLING to lose even 5 pounds(I am in my 8th week) I think that one left over problem has been some major joint pain and it is worse in one ankle. That can limit my exercise. Last week I did a total of 7 hours of exercise with no results! I would have a question, How is your eating? I craved sugar. I understand that is common with the lyme? This is a great website for support. Keep up the fight! I also wanted to add that I did take something for the depression. I took it for 3 months. My Blood pressure became very high and I am still on medicine for that and I was always swollen and that has not changed. I take something for that. Not sure what your symtoms are, but I would take anything to help get through the ordeal.

Edited by: AVONREALTOR at: 10/23/2007 (10:44)
 current weight: 262.0 
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NARNIA9334's Photo NARNIA9334 SparkPoints: (29,016)
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8/27/07 2:12 P

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Welcome Delirium! Lyme can be very difficult to treat especially if you have carried it around awhile. Has your doctor tested for any additional tbi's? I am having a slight breakthrough right now, that is actually why I am able to get on the computer. I was actually pretty down and out for awhile. I am still fatigued and have to watch I don't over do things. I think this new treatment may be finally making a difference (hope so).
emoticon

~Wendy

My Website: www.pa-dutch-travel.com

Follow me on Twitter: twitter.com/PaDutchTravel


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DELIRIUM1's Photo DELIRIUM1 Posts: 2
8/12/07 5:21 P

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Good day fellow warriors. I have been diagnosed with Lyme disease for a little over a year now (although my doc thinks I've had it since I was a small child). My symptoms are mainly arthritic and extreme emotional dynfunction. Since my symptoms have gotten bad in the last year, I have found it increasingly difficult to motivate myself to take care of myself and it keeps getting worse. I am glad to have found this site ... and this group.

My treatment seems to be at an impasse ... and I wondered if anyone has had luck treating the symptoms while treating the disease? Currently I am simply taking 3000 mg of amoxycillan a day ... but feel that the doxy and flagyl were doing a better job. The doxy just made me so sick that I was scared to take it ...

I hope we can help one another.

~M

Edited by: DELIRIUM1 at: 8/12/2007 (17:26)
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