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YUDEL6024KA's Photo YUDEL6024KA Posts: 326
10/1/13 12:44 P

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Hello all, this is quiet where are the moms to chat emoticon

Slow but sure


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YUDEL6024KA's Photo YUDEL6024KA Posts: 326
9/11/13 10:53 P

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Hello Dianne and every one, your story Dianne is very touching, we love our kids so much !!! My son is 10 and he has his up and down.

Slow but sure


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MBEEMOM's Photo MBEEMOM Posts: 176
2/20/13 7:56 A

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Hi everyone. Lets get together and start chatting again. I changed the team because it would be nice to not leave the group because your child is over ten. We can share their transitions, developments, and triumphs together as they grow!

~mbeemom


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ENNAID11's Photo ENNAID11 SparkPoints: (0)
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2/13/12 8:34 A

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Hi Chris, my name is Dianne. I have a 25 year old son with Autism with profound intellectual disabilities. He is also self-abuse since he was 2 years old. He is followed by a special team at the rehab centre in our area. They take wonderful care of him. He is now living in a special foster home with the best caregiver. He has no, or practically no communication skills and refuses to do most activities. Does not interact with others, except for a select few (me, his caregiver, his teachers.

He also has multiple physical problems. As difficult as his life has been we still love him to death.

Take care of yourself

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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QUEENCHRISWALSH's Photo QUEENCHRISWALSH Posts: 1,571
2/12/12 12:46 P

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I must admit that I joined this group and I haven't been active as of yet. I have Hunter who is 3 and in August he was diagnosed with Autism, Sensory Processing Disorger, and Verbal Apraxia. Since his birthday in October he has been attending an Autism class in our local school district which is 6 hrs a day and 5 days a week. Everything is progressing well and he really coming along with imitation, and for periods will join in on the group with his peers. He still has some self injurious behaviors but they are becoming fewer with the more speech he is developing. Hunter also has an older sister which helps because she will engage him in play which he willingly does and enjoys.

How about everyone else?

Chris Walsh
Pekin, IL. (Central IL)






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ENNAID11's Photo ENNAID11 SparkPoints: (0)
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1/28/12 8:15 A

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Hi everyone - just dropping by to say hello and hope that you are all well.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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11/27/11 7:28 P

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If anyone out there wants to talk about their child, please feel free to leave me a message.

I am willing and able to listen.

Dianne

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11/21/11 9:06 A

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Good morning everyone - have a great day

Dianne

PEGGYLOU4's Photo PEGGYLOU4 SparkPoints: (0)
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11/21/11 4:16 A

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Hi, hope youve had a good weekend.
I dont really feel that we need respite at the moment as he has school, out of school clubs and a special needs playscheme but that isnt to say we wont ever need it. Were in UK so dont celebrate thank giving. We went away for the weekend and the little village we were visiting were having a christmas fate. Korben coped with this suprisingly well considering we hadnt planned for it as we didnt know it was happening.

xxx'Lou'xxx


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11/18/11 9:28 P

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If you ever feel overwhelmed with your son, you should really think about putting in a respite home that specialized with our kids. It may stop you from reaching the edge of your strength or patience. Because my son was so difficult I sent him to respite every second week-end. This gave us an opportunity to share some special time with our daughter. Only you can make the decision of whether or not to use respite, but I highly recommend it. And if the first place does not work out , you try someplace else until you find what is right for your son. Anyway enjoy the day.

Happy Thanksgiving (if you are American) we Canadians celebrate it in October.

Bye for now.

Dianne

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11/17/11 1:52 P

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we have respite services but ive never used them. this is just a plain old mainsteam school trip that stays overnight. there'll be no speacialist staff just his teaching assistant.

xxx'Lou'xxx


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11/17/11 10:05 A

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Hi Peggy - glad you are getting a little time out. Do you get respite once in a while. In Montreal there are specialized spaces that your child can go to if you need a break. It gives you a chance to do "normal things" with the other members of your family.

I highly recommend it. If I had not had this service I would have had to place my son earlier but as it is I had to place him at age 15.

Good luck with your son and come back to chat. I am enjoying this site. Dianne



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11/17/11 6:37 A

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My 7yr old son has been invited on a 1 night residential in january with his mainstream school. This is so huge for is i want to do a little dance emoticon This time last year i was having to bring him home on an afternoon as both he and the school were struggling to cope. Just wanted to share this as it just goes to show how much a child can change with the right support and structure in place xx
What a difference a year makes.

xxx'Lou'xxx


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11/13/11 6:29 P

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My son has an intellectual level of a 1-2 year old. He does not speak, he is not toilet trained and type of communication is extremely difficult. He has had behaviour problems such as headbanging and at times aggressive - usually more with himself than others. He cannot tolerate noise (last year on the bus (he has a specially made restrictive vest to help him travel safely. He hates being in a car. He still managed to break 3 windows on the bus with his feet. He also suffers from numerous physical ailments such as: chronic pancreatis, polys in his intestines, he has frontal lobe seizures and has problems with his digestive system. You wander why one person should be given so much to bear. With all the medications he takes he has lost his wonderful laugh, people would laugh just to hear him.

Anyway I'll stop rambling, bad habit of mind, especially when talking about my son. My family has not seen or asked about him since he was about 3 years old. So I did not have a lot of people to chat with.

So if you want to chat about your son, I would love to hear from you. Thanks for listening.

Good night, Dianne

ZACEVETOB's Photo ZACEVETOB SparkPoints: (0)
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11/13/11 4:39 P

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Wow that is some story ennaid2. I never really had that problem. The child of mine that has autism. started going to a pre school when he was 2 and half. But the child clinic said he was a bit slow from his age group, his speach seemed to be a problem, He went to a medical child center where they specialized in children such as him, groups were small. He stayed there til he was 5. Then he went to a different school which also specializes with children like him, only they were more focused on the learning of each child as the center was more of a play group type school. He seemed ok with the change and seems happy with his class. He has been to this school for 2 years now and we see a great progress for him. His siblings go to the local school. I just hope later in life he will be able to deal with bigger groups and classes because they dont really have a highschool for autism and other disorders, its stops at grade 6 just like a primary/elementry school.

~ Jessica ~
The Netherlands (GMT + 1)



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11/13/11 7:44 A

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Good morning everyone. My son was integrated in a regular classroom in Grade 1 & 2. It was a major problem. He could not tolerate the noise on the school bus so they sent one where he travelled alone. He was still in a wheelchair then. The kids in his class were great with him, except they thought he was still "a baby" because he was about a head shorter than themselves. They had a tendancy to act like little mom's and dads. They would even fight over whose turn it was to hold his hand. Because he did not tolerate noise well. He arrived after the opening bell and before to closing bell. He finally had a breakdown and spent 6 weeks in the hospital to try and calm him down again. The funniest thing is that he was attending a French Protestant Elementary school. After he was released from school, we requested that he be transferred to a French Catholic special needs school. At first we were refused because he was "from the protestant school system. I found this a bit weird as he would not know if he was either. Anyway at one point I happen to mention that he had never been baptised and the woman said Oh you should of told us immediately and there would have not been a problem!! Go figure, to this day I do not understand why the Catholic School system would accept him because he was not baptized. He was finally accepted. Though he always had difficulties with transitions & noise. It was the best for him.

Integration is great, but not the be all and end all. Sometimes it is too much for your child. So choose carefully. Choose the best option for your child and not your personal needs.

Have a great Sunday, everyone.

PEGGYLOU4's Photo PEGGYLOU4 SparkPoints: (0)
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11/12/11 4:10 A

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Hi, after just come back to spark people after going of line for almost a year in wich my son was diagnosed with Autism, ADHD and dyslexia, has been given a duel placement between a mainstream school and specialist school (wich is working really well) and has benn statemented, and my 3yr old girl has started nursery so i actually have 3hrs a day completely to my self :)

xxx'Lou'xxx


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JBENTLEY98's Photo JBENTLEY98 Posts: 40
9/20/11 5:32 P

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How is everyone today? My 5yr old got sent home sick from Kindergarten today. Took her to the doc, but they couldn't find anything wrong. They suspect it's a stomach virus that's been going around. Poor baby, I hope she gets to feeling better soon.

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JBENTLEY98's Photo JBENTLEY98 Posts: 40
9/19/11 7:50 P

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I'm happy to say that my 3 year old is enjoying her special ed class. We've noticed some improvement in her communication skills, though its still all non-verbal at this point. Looking forward to what the rest of this year will bring us.

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WILLYNILLY3's Photo WILLYNILLY3 Posts: 211
9/13/10 12:48 P

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That's great! The fact she enjoys it helps a lot. Is she in a special ed class or regular?

Edited by: WILLYNILLY3 at: 9/13/2010 (12:49)
With realization of one's own potential and self-confidence in one's ability, one can build a better world.
~ Dalai Lama


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JANINEWHITE Posts: 74
9/10/10 4:00 P

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This may seem small, but we made it through the first week of school with no meltdowns or withdrawals. My daughter says she is loving first grade. Here's hoping it lasts the whole year!

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WILLYNILLY3's Photo WILLYNILLY3 Posts: 211
9/10/10 9:19 A

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This is for continuing conversation about struggles and achievements with our kids and weight loss.

With realization of one's own potential and self-confidence in one's ability, one can build a better world.
~ Dalai Lama


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