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BRENDAJ21's Photo BRENDAJ21 Posts: 180
8/9/18 5:54 P

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Janis, WOW! After reading your share I felt so bad that I even complained about my pain. You poor thing you have so many issues. Some of my friends have no idea how I get through a day.
It's true. But what choice do we have I use to think this was punishment for all the bad things I have done in my life.....BUT I have never done anything this bad.
I am living on Predisone my insurance will not pay for Zeljans and I have Methrotrexlate but I am afraid to use it. How do members out there pay for the meds we can't afford? Zeljans would cost me $3,000 and month and maybe more. I do not bring home that much on SS.

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ROCKPORT9's Photo ROCKPORT9 Posts: 6,482
8/9/18 9:46 A

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I just finished 4 rounds of chemotherapy....dealing with some side effects. I start 5 to 6 weeks of daily radiation soon. My rheumatoid arthritis has calmed down while I fight lung cancer. After my surgery in February, doctors said they see no cancer....but this type of cancer can be persistent....thus the treatments.

Laurel
Rockport, Texas

Central time zone


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JANISMKW's Photo JANISMKW Posts: 1,339
8/8/18 11:50 P

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I just noticed this thread... I usually look at the Daily Chatter if anything, haven't spent much time socializing on SP.

Laurel, good to see you here but sorry to hear about the pneumonia, but glad you and DH recovered finally! Thanks for your story of being a power of example advocating for different antibiotics. I have been praying for you daily ever since I learned that you have been battling lung cancer. How is that going?

Brenda, Cynthia and other team-members, sorry to hear of some of your tough times with our nemesis pain. I am praying for you too!

I set up alerts on Medscape for articles about RA, asthma, autism. A good one on hard-to-treat RA came out. They are technical, but might provide some food for thought or something to bring to your doctors. I will post a link to it in the research thread.

Be well, God bless you.

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ROCKPORT9's Photo ROCKPORT9 Posts: 6,482
6/10/18 2:45 P

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Yes! emoticon Wonderful blessings!

Laurel
Rockport, Texas

Central time zone


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BRENDAJ21's Photo BRENDAJ21 Posts: 180
6/10/18 2:32 P

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Thank you. I did get my IV on Thursday and Friday I felt so much better. Not 100% by normal peoples standards. But ay better. So I feel like this is an answer to prayer, and I constantly am saying "Thank you Jesus!"

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ROCKPORT9's Photo ROCKPORT9 Posts: 6,482
6/7/18 12:56 P

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Brenda- I hope something works for you. Hugs

Laurel
Rockport, Texas

Central time zone


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BRENDAJ21's Photo BRENDAJ21 Posts: 180
6/7/18 12:43 P

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Well, I have been going through the flare of my life. I hurt everyday and can not use my hands until 1:30p or 2p
I live on pain pills and prednisone. I am going in for my IV at 1p today. Please give me good thoughts. This worked wonderful the first month and not at all he past 8 weeks. Oh to find a med that works and has few side effects.
Thank you for your thoughts and I will let you know how it goes. I've gotten the moon face and gained weight from inflammation and prednisone. Even tho I am only on 10 mg daily.
Thank you ladies.
Brenda

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ROCKPORT9's Photo ROCKPORT9 Posts: 6,482
6/6/18 11:09 A

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My husband and I just fought our way through 5 weeks of pneumonia. My oncologist wanted me to take an antibiotic....Lexofloxacin, I believe. I read the side effects and it was bad for those with rheumatoud arthritis. I refused the drug. My primary physician agreed and ordered two antibiotics to replace it. You have to watch out for yourself.

Laurel
Rockport, Texas

Central time zone


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 4,393
6/6/18 4:16 A

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Hello all!
Brenda, how are you feeling? I hope a bit better
Janny, Good to see you. I was interested in that Vectra D bloodwork. I wonder if it works for PsA also. I will ask my rheum about it.
My rheum wanted to stop the Remicade because I was having terrible itching from it. I told him just want to wait a while and see if the itch subsided. He also was not happy with the limited improvement in symptoms. The itch has gone...but it's almost time for my next dose of Remicade.. It will be interesting to see if the itch comes back. He did go from 8 weeks to 6 weeks in between infusions. I have to get my medi port flushed eveyr 6 weeks so I asked him if we could do this ---also because I hope to get more benefit from it.
How are you feeling Janny?
...So far June has been cold and rainy. I wonder if we will get any summer at all this year. I wonder how the local veggie and fruit farms will fare ar
ound here...and maybe even nationwide. Weather has been so unpredictable.

I had to have fluid removed that was surrounding my artificial hip. They were worried that it was infected. I don't think it is infected, however there appeared to be some crystals in it that would indicate something called Pseudo gout. It's extremely painful but differs from gout because the crystals are calcium not uric acid as they are in true gout.

Well be well my ffriends. Write and give us good news...or tell us of your struggles. We're al in this together.
c

cynthialottvogel.blogspot.com




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