SP Premium
Walking Guide
Group photo
Author:
CD2036709 Posts: 42,795
3/27/08 1:32 P

Send Private Message
Reply
Wonderful milestone! Congratulations.

JEAN49's Photo JEAN49 Posts: 386
3/27/08 10:42 A

My SparkPage
Send Private Message
Reply
Today is 1 year since I had bc surgery.



Fighting breast cancer with Faith, Hope and A Healthy Dose of Laughter.












 current weight: 148.0 
150
145
140
135
130
GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/26/08 2:54 P

My SparkPage
Send Private Message
Reply
I am so glad that everything seems to be ok and they are keeping an eye on it. That must be such a relief for everyone!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
CD2036709 Posts: 42,795
3/26/08 2:50 P

Send Private Message
Reply
I'm so glad!!

PATRAE1 SparkPoints: (0)
Fitness Minutes: (25)
Posts: 12
3/25/08 8:41 P

Send Private Message
Reply
My daughter called and said that there was 6 to 7 spots and that they will do another ultrasound in 6 months so it doesn't sound to serious. Thank goodness, I will sleep tonight. I go to my doctor on Monday and will find out when the operation ios. Thank you for all the good vibs.
Have a wonderful evening Patrae

GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/25/08 8:28 P

My SparkPage
Send Private Message
Reply
Patrae I am so sorry to hear about your daughter. I will be sending her positive vibs. I will also keep you both in my thoughts and prayers. Please let us know how things are going.

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
CD2036709 Posts: 42,795
3/24/08 10:03 P

Send Private Message
Reply
Both times I was called back in, it was ok even though the did an aspiration the first time, I had them do it before I left from having the Mamogram, they worked me into the ultrasound then the Aspiration so I wouldn't have to wait and worry. The second time they removed 4 lumps. All 5 were ok. They had been worried about the shape and color of the first so it went for a biopsy and then the lumps. I have a horrible family history of BC so was worried. Her's will probably be ok and if it isn't, at least they caught it relatively early.

PATRAE1 SparkPoints: (0)
Fitness Minutes: (25)
Posts: 12
3/24/08 8:44 P

Send Private Message
Reply
I guess the saying, when it rains it pours. My daughter,age 45 had her first mammogram on Friday. They called her today at work and she has a spot and has to go in for an ultrasound tomorrow. Oh I just hope it isn't anything, with mine being dcis, it just scares me to death. thank you for letting me vent.

MACKTEE's Photo MACKTEE Posts: 22
3/24/08 4:03 P

Reply
Thank you for caring. Sharing my story hopefully will help others cope and get through this stressful time in their lives.
Nancy

Edited by: MACKTEE at: 3/27/2008 (10:09)
Nancy


 current weight: 206.0 
214
201.5
189
176.5
164
CD1898454 Posts: 2,030
3/24/08 9:05 A

Send Private Message
Reply
Thanks again, Nancy, for sharing. I'm so glad you feel comfortable enough to open up & share with us.

That biopsy you had - we do those where I work and I always tell ladies "Now I'm going to raise you up in the air and we'll be working underneath, just like at a garage!" so that made me laugh when you said that!

Here's wishing you the rest of your lifetime cancer-free!

CD2036709 Posts: 42,795
3/23/08 12:38 A

Send Private Message
Reply
Nancy, I had and I really appreciate you putting it here as well. It really helps when you ladies put it onto words for the rest of us that haven't or are now going thruogh what you have and are. You have such an inner strenght and it's wonderful to know that you are here with us and encouraging us as well by your stories.

PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
3/23/08 12:37 A

My SparkPage
Send Private Message
Reply
Thanks for sharing your story, I wish you well. BC is a lot to take in ... the tests, the surgeries, the treatments, it's such a heartwarming feeling to be surrounded by those who care. I pray all of us stay well from this. Inga

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




 Pounds lost: 29.0 
0
11.25
22.5
33.75
45
MACKTEE's Photo MACKTEE Posts: 22
3/22/08 11:29 P

Reply
Just in case you didn't see my story on another post, I thought I would share it on this discussion too.
I am 56, and have been a breast cancer survivor of almost 5 years. I was diagnosed in June 2003. I found the lump myself which was located on the top part of my nipple. I had had a mammogram 10 months prior, which either didn't show up on the mammogram, or someone was asleep at the wheel. I went to my GP, and when he felt the lump said " this is not looking good Nancy", and set up an appointment with a surgeon, which took place 10 days later. The lump had grown somewhat from the time I first felt it and the day I saw the surgeon. I didn't hold up too much hope. My husband, God bless him, was with me every step of the way, and went with me to the GP, and to the Surgeon. It took another 10 days to get my diagnosis from the surgeon. It was quite a blow when I received the diagnosis, but in my heart, I already know what the surgeon was going to say. I believe most women know their bodies, and know when something doesn't feel right. It was one of hardest day's of my life. To top it off, we had a house full of guests, as my husband and I were hosting a weekend family reunion, and had about 30 people attending meals and events for 3 days. I think the most difficult tasks I had to do was telephone my children, who lived half-way across the country. By chance they were together when I made the call, so they were there for each other.

I had my surgery on July 15 and had my right breast removed. I was fortunate not to have any lymph node involvement. The oncologist felt that chemo and radiation was not necessary. I was very nervous about this decision, but he assured me he had consulted with a team of oncologists who consult on each others cases to come up with the best method of treatment following surgery. I wore a breast prosthesis for about 10 months which I found very heavy and hot so I decided I would have breast reconstruction surgery. I think the reconstruction was worse then the mastectomy. I am a very fast healer which is good for me. While this is hard to believe for most people, I had my mastectomy on a Thursday, out of the hospital on Saturday (3 days later), and on Sunday was playing botchie ball with my family!! I felt so good. I'm sure my Dr. would have been horrified if he'd known what I did. One of the symptoms I had prior to my mastectomy was that I was very tired all the time, and had no energy. The day of my surgery, that tired feeling went away instantly and I had lots of energy. That was a relief. With the reconstruction it was quite different. I was in the hospital for 8 days, the first 5 days in intensive care. My surgery was the type where fat and some tissue are detached from the stomach, and then attached to the area where the breast was removed. The surgery called microsurgery, took 10 hours, done by a plastic surgeon. The reason it took so long was because all the veins, and arteries were re-connected, which was all done via microscopes and really small instruments. Anyways, I healed really quickly after I got out of hospital, and although I was supposed to be off work for 8 weeks, went back after 5.
I was put on a strong cancer medication immediately following my mastectomy,(can't remember the name) but was only on this for a couple of months, the oncologist thought it was too strong, so he changed the meds to Tamoxifin. After about 6 months on this, was changed again to Arimidix, which I've been taking ever since. My five years of being cancer free will be in June this year and that is when my medication will stop too. I have had mammograms, and ultra sounds every 6 months since my surgery, and except for a scare last year, all my tests have come back negative for cancer. The scare...one of the mammograms showed a spot in my left breast, but after going through a really sophisticated type of ultrasound, where you lay on a table on your tummy, with your boobie stuck through a hole in the table. The table is then elevated in the air, so the Doctors can work on you from underneath the table. While hoisted in the air, I remember saying " this must be how a car feels when it's getting it's oil changed".

The Dr. extracts fluid from the spot, while the ultra sound is being done. After all this the Dr. determined that it was just a polyp, and not cancer.

I'd be lying if I said I don't worry about the cancer coming back, but I try not to dwell on it. I'm at a point where I don't think about this every day (just once in a while).

Having a positive attitude, and a good outlook on life is what helped me get through this stressful time in my life.

Since I was diagnosed, my daughter got married and now she & her husband have a baby girl, born last May, and my son got married and he & his wife have a baby boy born last September. I thank God every day for allowing me the opportunity to live and be part of their lives.

Hopefully my story will help my SP friends who have just been diagnosed or are now in treatment to get though this horrible disease.

This is a great support group, and we're all here to help each other. God Bless.

Nancy


 current weight: 206.0 
214
201.5
189
176.5
164
CD1898454 Posts: 2,030
3/22/08 10:51 P

Send Private Message
Reply
When you're ready . . . we'll be here!

CD2036709 Posts: 42,795
3/22/08 8:54 P

Send Private Message
Reply
Yes, it all takes time. I feel for everyone that has or has had to fight this.

GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/22/08 11:00 A

My SparkPage
Send Private Message
Reply
LOL don't worry about it Jean... whenever you have time is fine...but I am glad you are working on getting it all in order. I hope you are having a great weekend!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
JEAN49's Photo JEAN49 Posts: 386
3/21/08 10:52 A

My SparkPage
Send Private Message
Reply
I'm sorry ladies...I still haven't shared my story. I will do that.. i have to get my notebook and read it so I tell everything that happened.



Fighting breast cancer with Faith, Hope and A Healthy Dose of Laughter.












 current weight: 148.0 
150
145
140
135
130
CD1898454 Posts: 2,030
3/20/08 10:48 P

Send Private Message
Reply
I'm so sorry, ladies, that I haven't even noticed that this thread was filling up! I just sat here for about an hour and read all of your stories - my heart is broken and the tears are flowing.

You have all been through so much, even those of you who have "had it easy" (as if there is such a thing in the world of breast cancer). You have drawn on strength that you didn't even know you had in you, and you have survived.

You keep on fighting the fight, because living is so worth all of the struggle! I'm so glad that you haven't given up, you've kept on fighting! When you didn't think you had an ounce of strength left to fight, you dug a little deeper!

Some of you are still fighting, still struggling. You are in my prayers. Keep reaching a little deeper inside of you to find that next little bit of strength that you need. And reach out to us and those around you for extra support.

I am so proud of all of you for being willing to open up and share something so personal, so painful with all of us. You are an inspiration to me.

God bless you all! As Cookie likes to say, "together we CAN do this!!"

PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
3/20/08 9:20 A

My SparkPage
Send Private Message
Reply
I want to thank everyone who has shared a story, you all are such brave woman and I am so glad to be amoung you. It took alot of courage to share mine, but after getting to know you all, I feel so comfortable here and I wanted to tell you about the BC road I have traveled on, a bumpy one that shook me at times like an earthquake, but I've made it to a place where I am a stronger woman. Every day is a blessing and a gift, to talk to you all, to lose a pound, to consume water that cleanses me, to eat healthy nutritious foods, to be ALIVE, some woman don't make it and we did...that's something to be so thankful for! Love and God Bless, Inga emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




 Pounds lost: 29.0 
0
11.25
22.5
33.75
45
CD2036709 Posts: 42,795
3/20/08 2:00 A

Send Private Message
Reply
Thank you so much for including us and letting us know your story. It helps when we know what each other has been through so we can be more empathetic.

PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
3/19/08 11:47 P

My SparkPage
Send Private Message
Reply
I had all my surgeries at Christ Medical center in Oak lawn, Illinois. I have many friends in Munster, Indiana, our swedish group meets there. Thank you for your kind words. My Mom went to university of chicago. Inga

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




 Pounds lost: 29.0 
0
11.25
22.5
33.75
45
GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/19/08 11:35 P

My SparkPage
Send Private Message
Reply
Thank you so much for sharing your story with us Inga! You are a brave women and have certainly endured alot. Where did you have your surgeries done?
Before I had my treatment I went up to the University of Chicago for a second opinion. I went for a 3rd opinion to a Dr in Munster and he said the same as UOC so I went to him because he was much closer. I'm glad you finally found some good dr's. I hope they can help find answers to alleviate your pain. God bless YOU INGA!!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
3/19/08 10:41 P

My SparkPage
Send Private Message
Reply
One thing that made me happy during this was when I donated 14 inches of my long red hair to locks for love, and I got a very cool wig that fooled alot of people! Ingrid

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




 Pounds lost: 29.0 
0
11.25
22.5
33.75
45
PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,620
3/19/08 10:35 P

My SparkPage
Send Private Message
Reply
It's time to tell my story, I have been a Sparks member 2 months now and I am ready to share this.
I had a mammogram when I turned 40, it showed calcium deposits, I had a sterotactic biopsy in May 2004, 24 hours later a call came in, I had cancer. I had a lumpectomy and sentinal node biopsy in June of 2004. I then found out my margins were not clear of cancer, I had a second lumpectomy in July of 2004.
I recovered slowly and started radiation in September of 2004 and completed the 38 treatments by November. I had an okay year, I was fairly thin and felt cured. In November of 2005, one year later, my mammogram showed something abnormal. I had another biopsy, it was cancer again. I had some suspicious areas on the other breast as well, I didn't have both breasts biopsied as I was already sure that if I had cancer again, I would have a bilateral mastectomy. I had a double mastetomy on 1-6-2006, a dificult surgery, my poor husband, it was over 5 hours long, he was alone and scared, but very brave.
I was brave too, I called everyone when it was over, so they knew I was okay. My dear children had to endure this twice, why? When it first began Sean was only 18, Sara 17 and my little Steven was 6 and just finishing up kindergarden. They all came to see me in the hospital where I stayed for a week. I also had muscle expanders put in during the surgery, these added to my pain and discomfort. My pathology report revealed ductal carcinoma in the right breast which was a reccurance and a microscopic invasion in the left breast, the choice for a double mastectomy was definetely the right one. I had an oncogene test which stated I needed 4 chemo treatsment (the hardcore stuff (A & C). I was also going through reconstruction and had gone to a plastic surgeon who was filling me up with saline to prepare for the implants. These office visits proved to be torture treatments. He filled me up to a painful point each time I saw him. The ports which he used to put the saline in were always twisted and he had a terrible time getting them to work. His nurses picked up a bandage that fell on the floor and put it back on me, he was very rude to me, but I stayed and didn't know where else to go. I was in so much pain from the muscle expanders, my oncologist said I should get the implants in before starting chemo. I had the implants put in March 2006. I recieved a giant uniboob and couldn't hug my husband or stand up straight. I had asked for very small breasts and this is what I got. I started chemo and was very ill for weeks, I had my 2nd treatment and then all hell broke lose. My white cell count went down to nothing, I bottomed out. My skin started to break open by the implants, an abcess formed. I had high fevers and was losing alot of weight, I got down to 128, now I weigh 143, I was weak and things were going terribly wrong. I had to have surgery to remove the implants in May 2006, it turned out to be a staph infection. I still had a hole in my chest after that, I had episodes were blood would come exploding out, my husband would have to wrap me in tight elastic bandages. The bleeding was a seroma.
My chemo had to stop, as I had an open wound. It stayed open until October 2006, my oncologist said it was too late to start chemo again, just take tamoxifen, so I did. I went though a bone cancer scare, soon after this, they put me through various test due to all the pain I was having, but no cancer was found. This has been a long and dificult road, but I get by. I buy bathing suits that hide my "issues", I play tennis, I love God and keep busy with Sunday school. I always give of myself. I love to travel and be outdoors. I try not to dwell on it, but of course I cannot forget. I have a new team of doctors, my old ones were not very good, or even kind. My dear husband Les is my rock and his love guided me every step of the way. I am from a family of BC surivior's. Grandma, Mom and me, all had it, but we keep living and that's the key. We must not let Breast Cancer paralize us, we pray for a cure, I myself have to believe this is right around the corner, so our precious daughter's don't have to endure this. I found out one of my favorite actresses had this too, Ingrid Bergman, another Swede like me, one never knows what life may hand to them. The one thing I lost in this was my chance to have my 4th baby, I have accepted this and I just hope to live a long and healthy life now. Your Friend, Ingrid or as my friends call me Inga. Thanks for being a very supportive team of friends. emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




 Pounds lost: 29.0 
0
11.25
22.5
33.75
45
GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/14/08 10:48 P

My SparkPage
Send Private Message
Reply
Thanks for sharing your story!! You are an awesome, strong young women. It is amazing how many of us find a strength in ourselves that we didn't know we had. Congrats on graduating from uom with such high honors that is also quite an achievement. Good luck on the rest of your lifestyle changes and jounrey!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
TEACHMI's Photo TEACHMI Posts: 108
3/14/08 12:51 P

My SparkPage
Send Private Message
Reply
Alright... here's my story. It was Spring 2005 and I felt a lump as I reached across myself in the shower to grab the shampoo. I was 20 so I assumed it was nothing. It wasn't just that I was in denial, but my mother was also in the hospital for over a month that summer because of a completely degenerated disc in her back, leaving her temporarily paralyzed from the knees down. I wasn't sure how my family would be able to deal with another issue. Finally, in September, I told my doctor what I had felt. Three days later, and after a needle biopsy, I was diagnosed on September 12, 2005. Up until that point, I felt that my life was going great. I was a college student, I had a wonderful boyfriend, and I was finally happy with my body. The next few days were a blur of tests, ensuring that the cancer had not spread. About a week after a lumpectomy on October 4, I took the train to Chicago for a birthday celebration that was already planned. The day of my actual 21st birthday, October 17, I signed papers to begin a clinical trial program. On November 2, I received my first round of chemo. I had to cut down on my class load, and of course the chemo was no picnic, but I was actually surprised at how easily I got through it. So I guess in some ways I was thankful that it happened when I was so young. For me, the hardest part of it all was losing my hair. After cutting my hair to donate it and then wearing two different wigs to school, I was actually asked by a classmate (jokingly of course) if I was a secret agent... :) After 6 months of weekly chemo treatments, I also underwent 7 weeks of radiation. After chemo, radiation seemed like a breeze. Through it all, my boyfriend was there physically, but I think it was all too hard for him to handle mentally, not that I can blame him, and our relationship struggled under the pressure. We broke up the week before I started radiation. It was a very tough time in my life but I am definitely a stronger person for it. I have met so many people through this process that would otherwise not be a part of my life. As weird as it sounds, I really wouldn't trade my experiences for anything. After it was all said and done, I was able to graduate from the University of Michigan with gold-chold honors, something that I am extremely proud of! Now, being a 2 1/2 year survivor, I can't believe how fast it has gone and I finally feel as if I have control of my life again. Sparkpeople and teams like this one have definitely helped me on my weight-loss journey!!

Edited by: TEACHMI at: 3/14/2008 (12:51)
**BETH**

~~TOO YOUNG FOR CANCER~~TEAM LEADER~~

"Attitude is a little thing that makes a big difference." ~ Winston Churchill

"I have heard that there are troubles of more than one kind. Some come from ahead and some come from behind. But I've bought a big bat. I'm all ready you see. Now my troubles are going to have troubles with me!" ~ Dr. Seuss

"Cancer is a word, not a sentence" ~John Diamond


 Pounds lost: 17.0 
0
12.75
25.5
38.25
51
LALATY152's Photo LALATY152 Posts: 856
3/10/08 11:01 P

My SparkPage
Send Private Message
Reply
Sonja.RiverGirl,

I also like to welcome you to this group...I'm a newbie to SP and therefore here as well. You'll see my story a bit below your's.
I can't begin to tell you how you should feel, or what you should feel or do, but I'd like to suggest some things based on my experience with BC and chemo.

1. I was on Adriamyocin and Cytoxin (I may be spelling those wrong) this was known as A/C...I got both meds during the same chemo run which mine were once every 3 weeks. I was originally told I'd probably be on chemo for 8-10 months...when I got specifics from my oncologist mine was actually for 3 months. My chemo runs started with (apparently) a very good anti-nausea med then the A, then the C. I was terrified the 1st time...and was happy to find that for me, my anxiety was the worst part of the whole thing. I had 2 anti-nausea meds to take (was told take them whether you think you need them or not)they were only 3 days worth, and that worked for me.
I never got sick once...felt nauseated once but took the anti-n med at midnight fell asleep and was fine...I had been really worried about that to.

2. I would suggest that you try to have some "back-up" from family or friends. I happen to live 2000 miles from all family other than my son who was 14 at the time. I had the "chemo fatigue" near the end, 2.5 days after the 3rd, and for over a week after the 4th/final treatment. I just stayed home and rested, and I took a pillow to work to rest during my breaks which I thinked helped. I'm a single mom, working full-time, and running my son to baseball practices and games. I got him to everything, but sometimes I dose in the car which was near enough that I could watch the game frequently. I found frequent small grocery trips were sometimes easier than 1 major trip...be as flexible with what you expect from yourself as you can.

3. My son originally refused to discuss anything about me having breast cancer, or when I'd try to talk to him about the mastectomy. I was concerned and talked to my older brother...he advised me that no teenage boy wants to discuss his mother's breasts...this gave me an idea...Alex had a poster of Britney Spears (when she 1st became popular) on his bedroom wall...so I talked to him about "if Britney Spears had BC this is what she would be going through"...that seemed to work,it allowed me to talk to him, and it created a certain distance which I think he needed at the time...and I knew he'd been thinking about her breasts anyway (ha ha ha). Somehow, when it's time, you will find the correct way to talk to your kids...depending on their age you may not need to get into details beyond what they understand.

4. I didn't really have a problem with the whole head of hair thing. I had told all my co-workers about my diagnosis and chemo, and when it started falling out I did what I called "hair tricks". I had gotten a "pre-chemo" hair cut because I was told it's less traumatic if it's shorter. The day it started falling out big time happened to be Christmas Day...I had previously talked to my son that it would be the 1 and only time he could give me any hair-cut/buzz-cut he wanted. He said going to do a mohawk, but settled on a buzz cut, and then mine was completely gone about 3 days later. I started out wearing a cool hat (kind of Spanish with bigger hoop earings)...then switched to a wig I ordered on-line from "Wide World of Wigs"...the wig was perfect, it was "Glazed Fire". Co-workers had been guessing if I was going to be blond or brunette, I told them it takes attitude to be red, so I went for it...and everyone loved the color on me. I only had 1 co-worker (out of about 80) that asked not to see my bald head, she said it was because she wanted to think of me, and not think about the cancer...I simply asked her not to look when I showed everyone else...and then thanked her in front of everyone else for letting me know she was uncomfortable with it before I showed them, I told her I respected her feelings about it...a couple people told me they thought it was weird of her to say that, I told them I thought it was great of her to go ahead and express her feelings to me, and that I was glad she did...then they were OK.

Also I finished chemo the end of January, and had enough hair before June that I went everywhere without a hat...and oddly enough got numerous compliments from people who didn't know anything about me, stating how cute it was and how they wished they had enough guts to get their's "cut" that short.

5. I found the breast cancer support group at my oncology department to be very helpful to me, it felt like "safety in numbers", and I felt relieved that I was "not the only person going through all the miscellaneous weird things"...sometimes we'd all just talk, frequently we'd laugh about our weirdnesses and how we got through them...and only once we all were teary for no good reason other than we could feel any way we wanted to.

6. I met a guy when I had just enough hair to barely feel it. I had worn a baseball cap (the 1st time I did that in public, after the wig), I had gone to the bowling alley to watch some friends bowl. I had just showed a friend my "essence of hair", I popped the cap back on my head, and she gave me a big hug. He wanted to know what the big hug was all about. I said do you really want to know, he said yeah! I took my hat off...he looked my head over, and asked why I had been bald, told him I had cancer and had finished chemo so my hair was growing back now. He asked if I was doing OK...told him yes. Then he looked at my head again and said "dang woman, you got more hair than me!". Up until then I hadn't even noticed that he was completely bald...I looked around and said, "and I think you're the only guy in here that can say that too". We became friends and hung out together for about 6 months, we still talk on the phone once in a while. So hair or not, cancer or not you can still meet some good people out there.

7. I found it very helpful to acknowledge that for me...my life was different after all that. At first I thought about "getting back to normal". . .and eventually embraced the fact that "Hey, I have a new normal and I can make it anything I want." I've had a variety of difficulties, most unrelated to cancer/chemo...but I can handle all of them much better than I ever would have before my "all he-- broke loose in 2001 year". Things are good, and if they are not I can deal with it when they occur.

I wish you strength-which you will find within yourself, and courage-when you need it, and tears-whenever you feel the need. Supportive people are good, surround yourself with them, and weed out the negative ones.

I can see there are good people on this Team...and I have talked way too long.

Linda - 6.5 year survivor





emoticon

Your best is going to change from moment to moment; it will be different when you are healthy as opposed to sick. Under any circumstance, simply do your best, and you will avoid self-judgement, self-abuse, and regret...Don Miguel Ruiz




 current weight: 376.0 
379
328
277
226
175
GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/8/08 8:06 P

My SparkPage
Send Private Message
Reply
(((((hugs))))) My heart goes out to you. Dealing with breast cancer is hard enough without having to deal with a divorce, changing jobs, your kids, moving, and all the other things. I don't know how much help I will be but I will try. Do you know if the 4 rounds and the 12 rounds will run back to back or will they do them together? Loosing your hair is a big issue with most women. I had long hair and finally I cut my hair really short. Actually it made it easier because I felt I was in control of something. Even this was hard, but then I realize I was going through hell and if people didn't like how I looked tuff sh--! Getting a new job worries me a little because it will take time before your new insurance kicks in and they have clauses about pre-existing conditions. Also if you start the new job and then have to take days off they might not be as forgiving as your old job. Please don't hold off on treatment because then you give the cancer a chance to come back. Even when you have surgery they don't always get clean or large enough margins. I understand how you are worried about your kids just try and talk to them and reassure them you will be ok. Do you have any family or close friends that can help out? Even if it is to reassure your kids that things will get better. I never felt like the "hairless cancer girl" but I did have alot of why me, I don't deserve this! You will still be the wonderful person, beauty is only skin deep and it is what's on the inside that counts. It would be nice if you had someone to hold you and reassure you that things will be ok even if it's just a good friend. I was on Tamoxifen for 5 yrs and unfortunately I did gain about 50 pounds, but it doesn't affect everyone the same way. There is nothing immature or silly about the way you are feeling. Your life has been turned upside down in may ways. I know it is hard for you to grasp everything that is going on, but it WILL get better. There is life after cancer! It will bring out a strength in you that you didn't know you had. You will be a stronger more confident person! Please let me know if I can do anything for you!! Good luck to you!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
SONJA.RIVERGIRL's Photo SONJA.RIVERGIRL Posts: 768
3/8/08 6:07 P

My SparkPage
Send Private Message
Reply
Hi Ladies, just joined the group and feeling like I need some help.

I am 42,with 2 small kids and just got my diagnosis a week ago. I had an excisional biopsy 2 weeks ago, rather than a lumpectomy. the difference is that they thought it was benign, so just took out the mass, not surrounding tissue. So, it looks like I will need more surgery to remove more tissue as well as sentinal nodes. I have no idea, yet, if there is nodal involvement.

Met with my oncologist yesterday. she is telling me bc of my age and family history, I will definately need chemo... I was really hoping to avoid that & I'm having trouble coping with the reality of it. She told me I will need 4 rounds of 1 type of chemo (which will occur over 8 weeks) then 12 rounds of a different type over 12 weeks.. .that is 20 weeks of chemo... sounds like a lifetime right now, esp when I read that some folks had 4-8 rounds. And, 20 weeks before my hair even starts to come back... and it will take years before I have it back to the way it is now...

I have some other challenges that are making this tough for me. I am going through a divorce, and financially, I must change jobs. I'm not sure if I should try to get a different job right away and maybe hold off on chemo for 2-3 mo. or just get the chemo going on normal shedule, which would be in about 3-4 weeks. I'm just not sure how sick I will be & how much time it will take for the treatments and stuff.

I'm also really worried about my kids. They are 5 & 8 and have so much to adjust to now: our divorce, my illness and they must change schools. Once my divorce is final, I will be looking for a different home, too... so more stress for me and more adjustment for the kids.

I'll also need to be on Hercepton for 6 mo after chemo and Tamoxifen. Does everyone gain weight on Tamoxifen??

My biggest concerns are my health, my kids and my financial security. All at risk right now in a big way. But, I am also struggling with some of the social components. I am this super healthy very vibrant person. I don't want people to look at me and think there is "sick girl" or "cancer girl" or whatever. I hate the idea of that. I hate it so much that I've not told anyone other than my parents and sisters & I'm not sure when I will tell anyone else. Also, I've been doing a little dating, but no serious relationships, but I'd really like to be in a healthy relationship. I just feel like it would be asking too much for anyone to want to date "hairless cancer girl"... I know it sounds rediculous!! but they are very real feelings for me. Part of my power is my intelligence and my attractiveness... so I feel like a huge chunk of my personal power is being taken from me.

I'm kind of spilling some stuff here and admitting to some things that I'm sure sound very superficial, maybe even immature. But they are real to me. However, I beleive that only women who have been through it might be able to identify and help me sort through some of this.

Thanks

Sonja
5'10.5"


"We do what we have to do, so we can do what we want to do." from the movie The Debaters

Discipline weighs ounces, regret weighs tons. Jim Ro


 current weight: 170.2 
175
172
169
166
163
CD2036709 Posts: 42,795
3/7/08 4:03 P

Send Private Message
Reply
Welcome to you all, it's so nice to see you here. There is so much support from the members of this team.

GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/6/08 9:35 P

My SparkPage
Send Private Message
Reply
Thanks for sharing your story. It is hard to believe what we still have to go through when we have problems and no one will listen. I am so proud of the women that are coming out and sharing their stories. I am so glad you are doing fine now too. I had chemo brain and still have it every once in awhile but nobody ever told me about it. I thought I was loosing my mind. I was on Tamoxifen 5 years and gained 50 lbs. They put me on Femara and I was on it a month before I told my dr I couldn't take the pain and I wanted off. I had pain in every single bone in my body, I felt like I had really bad flu, and finally got to the point where I could hardly walk. Enough was enough. I am now 9 yrs cancer free. Good luck to you!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
LALATY152's Photo LALATY152 Posts: 856
3/6/08 8:41 P

My SparkPage
Send Private Message
Reply
I can't help but wonder if my story actually started a couple years prior to getting diagnosed with breast cancer. I had gone to the doctor a number of times due to pain in my left breast, I insisted they do tests to rule out breast cancer...they basically told me that I had pinched a nerve in my chest or it was "all in my head".

In 2001 I had a major tramatic injury to my right shoulder (shattered it slipping on ice) had surgery and about 10 months of physical therapy. It was just before this time that I started feeling like something was very wrong with me...I talked to my PCP who told me to reduce my stress and exercise more, then I'd feel better. I even started going to a therapist and told him on my 1st visit that I wanted him to note that I'm telling him something is wrong medically and I felt like it was going to kill me if someone didn't figure it out pretty soon. My medical doctors were telling me that it was all related to my major injury.

In October 2001 I talked them into doing another mammogram (they said I didn't need another one yet). This time it showed something about the size of a quarter. They had already told me the radiologist was doing a stereotactic biopsy and wasn't available. But they had me wait for him, he looked at it ordered more views and an ultrasound...once they did that, they had me wait for him again. He came and told me he was seeing "something suspicious" and was going to call my doctor immediately and that I needed to talk to my doctor that day.

I told the doctor if it was suspicious, and it wasn't supposed to be there, I wanted it removed. She suggested a biopsy first...I told her no, I want whatever it is out. She referred me to a surgeon. I saw him on a Tuesday, he was going out of town for 3 weeks, he talked to a partner, so I saw another surgeon on Thursday, who told me he thought it looked like a cancer. I had the lumptectomy on Friday, he removed an area about the size of a baseball.

The following Tuesday I got the pathology report...all I saw at first was "no clean margins" and "carcinoma" over and over again.

So I borrowed a book from the surgeon called something like "A Woman's Decision". I read as much as I could before having a mastectomy on Thursday. I found the book to be very helpful. They told me the irregular shaped tumor was about the size of a large navel orange...fortunately (God and angels must have been with me) no lymph nodes were involved.

I did 4 chemo treatments with the lovely A/C combo. I didn't have to have radiation therapy. Lost all my hair and did "hair tricks" for co-workers during that time. I either wore a hat or a wig (glazed fire was the color - loved it). I tried to maintain working and doing all my single mom duties. 5 days after the 3rd chemo, it kicked me on my butt - major fatigue...so much so, that the 1st day of it my son thought I died because he couldn't wake me up for several minutes standing beside me and yelling in my ear. That lasted 3 days. I took a week off from work after the 4th one, which the fatigue on that one lasted for most of 2 weeks.

Then I started Tamoxifen and slowly recovered from chemo. I had names for my new hair...1st Essence of Hair...then Hint of Hair...then Baby Hair...and finally Baby Fro. I put up with the side effects of Tamoxifen which were not as bad for me as I've read from other people. I gained weight, had "industrial strength hot flashes", and insomnia. But I finished 5 years of Tamoxifen. . .then the trouble began. They put me on Femara...had about 25 out of a list of 30 possible side effects, including vomiting, night terrors, chemobrain much worse than when I was actually on chemo ie. had days where I didn't know how to get home after work, also had migraines 24/7. I told the doctor I wasn't going to take it anymore. So they put me on Arimidex which was just as bad. Told my oncologist I was going end up on disability and unable to work if I had to take that. So they switched me to Aromasin...I had problems with that one as well, pain, nausea, dirrhea, stomach pain, headaches 24/7...so I decided the 1st of last week I am not going to put up with that any more and stopped taking it. Yes I'll be talking to my medical doctor and my oncologist about my decision to stop taking it.

Well that is my story...I'm a 6.5 year survivor...and I'll talk to anyone about it, if they need to talk to someone.

I'm loving SparkPeople and all it's support groups...and wish you all the very best in your ventures and continued survivorship...it's a unique club that I wouldn't wish on anyone, but once you're there it's a good place to be.

Your best is going to change from moment to moment; it will be different when you are healthy as opposed to sick. Under any circumstance, simply do your best, and you will avoid self-judgement, self-abuse, and regret...Don Miguel Ruiz




 current weight: 376.0 
379
328
277
226
175
GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
3/6/08 7:14 P

My SparkPage
Send Private Message
Reply
Thank you so much for sharing your story with us. It is nice to tell it to people who have gone through similair things. I am so glad you are doing well! good luck to you!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
JAZZID's Photo JAZZID Posts: 8,834
3/6/08 5:01 P

My SparkPage
Send Private Message
Reply
Hi ALL:

My story began when I was doing aerobic exercise, on June 6, 2006, and felt a soreness on the side of my upper right breast when I would move my arm a certain way. After the workout, I felt in that area, but couldn't feel anything. I then proceeded to just do my monthly breast exam... When I laid on the bed with my arm behind my head I felt my breast and kind of felt a thickening, not a lump,in the upper outer portion of my breast. I then examined my breast sitting up and standing and felt a lump.

Actually, for the past couple of months I felt apprehensive about something, like something bad was going to happen, but I just couldn't put my finger on what was really bothering me; so anyway, I made an appt. with my pcp. When she felt the area she really didn't feel anything when I was lying down, so I told her that I could only feel it sitting or standing; sitting up on the table, she felt the area and that is when she felt this round, soft lump in my right breast. She said it felt like a cyst, and she gave me a referral to have a diagnostic mammogram. Ironically, the day of the mammogram was the day I had to registrator my 16 year old for his 2nd year in high school, so I took him and a friend of his with me to my appointment. The mammogram showed a perfectly round mass. They took me in the consultation room and explained that it looked suspicious for cancer because it was solid. The surgeon was there that day and she said that she would do a fine needle biopsy that day if I wanted her to, and of course I agreed. It wasn't as bad as I thought, they did 6 passes, 3 for the lump and 3 for the enlarged lymph node; and by the way, what was sore was a lymph node that was under the rim of the outer breast, that's why I couldn't feel it.
Well, with that confirmed, I was scheduled for a breast MRI, that went ok... Surgery was then scheduled for August 25th..And after I got dressed, I was off to my sons' high school for registration... Life goes on...

I had a lumpectomy and an axillary node dissection. My surgeon called me about 1 week after my surgery with my pathology report, she was happy that my tumor was not as large as initially thought over 3.0cm, and the fact that the 5cm lymph node that was sore, was tested and showed no indication that the cancer had spread outside of my lymph nodes; she said that my lymph nodes had done exactly what they were supposed to do, "contain the caner". The official diagnosis was: early stage II, T2, N3, MO, she was very encouraging about my prognosis.

After I recoverd from surgery, I started my chemotherapy in October 2006 of AC for 4 cycles and Taxol for 4 cycles. I worked through all the treatments. The hospital is only 4 blocks from my job, so I would work in the morning and have my treatments, every 2 weeks, on Friday afternoons, that way, I could recover over the weekend. The one regret I have is that I didn't get a port. I used my left arm for the IV treatments; but by the 5th treatment, it was more difficult to find a vein and it became painful to insert the needle.. but I got through it.. Every Monday, after my treatment I would go to the hospital and get my Neulasta shot to prevent my blood counts from dropping. After my chemo ended in January/2007, I started on Tamoxiphen.

I began my radiation treatments in February/2007, daily for 36 treatments. I worked a full day and scheduled radiation for after work. I had FMLA, and used it as needed intermitently. I had no major problems from the radiation.

Well that is my story... I am glad I didn't have to stop working. The most painful part to my surgery was the axillary dissection and the exercises I had to do, with a video that they gave me, to rehab my arm. However, it paid off because I have full mobility of my arm and so far no lymphedema... I was referred to a lymphedema therapist and she gave me a sleeve/gauntlet for preventative measures to be worn when I am doing my cardio and weight training. She also said that I can lift up to 20 lbs; so I have a lot of room to grow. I never lifted more then 10 lbs doing bicep curls, etc. anyway...

I had a vaginal hysterectomy Oct.9, 2008, so now I am on Arimidex.. I am going into my 4th month on this medication, and so far I haven't had any negative side effects. I had a baseline bone density test prior to starting this medication because it can cause bone loss. My results were higher then the norm because I had regularly done strength training for years.

I would like women to know that cancerous tumors are not always firm, hard or small. They can feel like cysts and also, it is important to examine your breasts sitting up and standing up because that is the only way my tumor could be felt.

I am so glad that I found SP. There is so much support, motivation and inspiration here, and I hope that I can inspire and motivate someone along the way as well...dee emoticon

Edited by: JAZZID at: 3/7/2008 (15:55)

 Pounds lost: 21.0 
0
5.5
11
16.5
22
JEAN49's Photo JEAN49 Posts: 386
3/6/08 8:59 A

My SparkPage
Send Private Message
Reply
MJMiles...Thanks for the welcome. Thanks for the wedding pic compliment.



Fighting breast cancer with Faith, Hope and A Healthy Dose of Laughter.












 current weight: 148.0 
150
145
140
135
130
MJMILES's Photo MJMILES Posts: 111
3/5/08 10:01 P

My SparkPage
Send Private Message
Reply
Welcome to our group Lorraine. You'll find everyone so warm and encouraging. Your story sounds almost like mine - married 24 years and gained 70. I have a sedentary job as well but recently started walking again and found it gives me a huge boost in energy and also the way I feel about myself. While your husband is away you've got the perfect opportunity to devise some really nutrious meal plans for when he returns!

MJMILES's Photo MJMILES Posts: 111
3/5/08 9:57 P

My SparkPage
Send Private Message
Reply
Hi Paula - congratulations on the 1 year anniversary! I checked out your page - what a lovely wedding picture! Welcome to our group - I think you'll enjoy the friendship and support.

NONIGIRL2008 Posts: 6
3/5/08 5:47 P

Reply
Hello Everyone,

My name is Lorraine and I was a cancer survivor of kidney cancer for 9 years when I was diagnosed in late November 2007 with breast cancer. Everything happened so fast, I didn't have time to think. On Dec 5th 2007, I had a lumpectomy with removal of sentinal nodes. My doc was terrific. He referred me to the oncologist and the radialogy oncologist. I decided to forego chemo and will start my radiation in a week or so. I'm a little nervous about it all but I feel positive. I think it's really time to change my life and have a better healthier diet. Since I've been with my hubbie (23 yrs now), I've gained 80 lbs., mostly midriff and breast area. I've become so sedentary, work is sedentary but I've almost stopped all other forms of exercise. I've just started walking again with the dog but I think I need to do more. My hubbie's work now has taken him 450 miles away and as a result, my diet is not great. I need to get moving and start preparing better healthier meals for 1. I want to try and get him into it too as he is over weight also. Any help anyone can give me would be really appreciated. God bless all of you who are surviving and dealing with life's issues.

JEAN49's Photo JEAN49 Posts: 386
3/5/08 2:30 P

My SparkPage
Send Private Message
Reply
Hello everyone

I'm Paula and I was DX Jan. 9, 2007 at age 50
IDC
Mastectomy w/ tram flap reconstruction 3/27/07
Chemo: 4 rounds Taxotere & Cytoxan
No radiation
5 yr. tamoxifen

Jan, 9, 2008 I was a 1 yr survivor. I'm doing very well.

Edited by: JEAN49 at: 3/5/2008 (14:29)


Fighting breast cancer with Faith, Hope and A Healthy Dose of Laughter.












 current weight: 148.0 
150
145
140
135
130
CD2036709 Posts: 42,795
2/1/08 8:13 P

Send Private Message
Reply
Yes, I get tired of Dr's just thinking, another bored housewife or woman and brushing things off.

GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
2/1/08 2:41 P

My SparkPage
Send Private Message
Reply
So sorry to hear what your grandmother had to go through. At least she is at peace and not suffering. A dear friend of mine also passed from bc. She was going to a really good hospital (so I thought) in Chicago (which was an hour away) She was 2 yrs out and kept having pain in her other arm. She told her dr and they assured her all was well. She went to her gp and had blood work done and they said her count was elevated. She sent the results to her other dr. They had her come in and repeat the blood test and reassured her all was fine. As time went on she was in constant pain and started having trouble breathing and was admitted to a local emergency room. After many tests they discovered her bc had indeed return but to the other breast and it had already spread to other places including her bones.
She wrote a wonderful letter (which is more than I would have done)to the team of drs who had been assuring her this whole time that everything was ok and her pain wasn't because of bc, telling them in the future to pay more attention to the complaints of their patients. I felt so quilty over her death because I couldn't help her more. She was so confident with her dr's and I assumed she was having blood tests everytime she went to see them and once she said the dr's said the pain wasn't anything to be concerned about I just accepted it too. When we talked she never complain about the pain so I thought it was resolved. I learned a very painful and valuable lesson that day. If you aren't happy with the answers you are getting about your health go to another dr. No matter how confident you are with him. Keep trying till you find someone who supplies you with answers that make sense.
Together we CAN do this!!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
CD2036709 Posts: 42,795
2/1/08 12:48 P

Send Private Message
Reply
That's why we lost my Grandmother. She and at least 2 of her 3 sisters and her mother,had all had BC. Grandma had, had a double masectomy. A couple of tears later, she started feeling bad and kept going to the Dr. They never did blood work on her or even thought about Cancer again. They figured they had gotten it and that was all there was to it. Grandpa wasn't happy about her always feeling sick. Told her if she got better he would take her to the Carribean. She just got worse so he got mad and took her to the hospital and told them they weren't leaving till they found out what was wrong with her. The tests came back quick that she had Cancer all through her and had 4 - 6 months to live. She was gone in 3 and we never found out she had it again till about a month before she was gone. We were going to take our newest son to see her and had it scheduled for a few weeks later. Job and finances weren't conducive to getting across the State sooner. She wasn't supposed to go like that. They had Grandpa giving her, her morphine shots at home and of course, you are only allowed so much, after all they don't want you to become addicted to the stuff! Anyway, she was constantly begging him to just give her enough to help or give it all to her and end her pain. He just couldn't do it. She started drinking to help easy the pain and caring. I was so glad she didn't linger. She had a Ceberal Hemorrige one night in her sleep and didn't come out of it. I get so angry over ner needledd agonizing death when they were touting at the time the 5 year bit and yet ignored her Breast Cancer.

CD1898454 Posts: 2,030
2/1/08 7:13 A

Send Private Message
Reply
Cookie, thank you so much for sharing your story with us. I don't know about your Doctor or facility, but I know where I work we try very hard to get it right the first time. And yet for all our efforts there has been a time or two where we've missed the mark. And though that's a great track record, I know it's horrible for that one who got told one thing and then found out otherwise.

Reading your story has reinforced in me just how critical it is that we get it right the first time EVERY time.

Your son was right - you are a strong person, and you've survived breast cancer, I know you can do this weight loss thing!! Keep up the good work!

GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,903
1/31/08 10:02 P

My SparkPage
Send Private Message
Reply
Ok here goes my story!
I was suppose to go for my baseline mammo when I turned 40 which was 1998, but I thought it was a waste of time. I never smoked, rarely drank, and went to the gym 5 days a week, so why bother. My husband kept mentioning it off and on and I still kept putting it off. Then he started nagging (or so I thought) when I was about to turn 41, so to shut him up I scheduled the useless test. Well 2 days after the test I find out I had a lump, ok no big deal. I go to the dr and she sends me to a surgeon to have it removed and biopsied. So at this point I think ok I have a 50-50 chance of having cancer. So I start thinking I don't have any other health issues so I am sure it is nothing. The surgeon removes the lump and says he is 98% sure it is nothing. A week later my emotional rollercoaster and nightmare began. When I went back to the surgeon he said I am sorry to tell you this but I was wrong. I just went numb. Then he said I have to tell my next patient I was wrong on hers too she also has breast cancer. (Like that made me feel better) I totally broke down and was almost hysterical. I mean at first I knew it could go either way but he told me it wasn't. I told him he shouldn't tell people that he is so sure they don't have it, when he doesn't know. I had to go back into surgery again and have lymph nodes removed. Then 6 weeks of chemo and nuprigen shots because my blood levels were too low. The hardest part of chemo was loosing my hair. But it wasn't my issues that was the problem, it was my fear for my son. He was in 6th grade at the time and I was afraid his friends would tease him because of the way I looked. After many weeks of crying over it and getting a ridiculous wig, I finally talked to him about it. He told me that he was so proud of me and what a wonderful strong person I was and that if his friends said something bad he would kick their butts. I guess I underestimated how he was handling my cancer. By the way I only wore that wig once and that was to the gym, then I decided if people didn't like how I looked that it was their problem and not MINE, because I was proud of who I was and what I've gone through. Next came the 42 radiation treatments. I also had to be on Tamoxifen for 5 years. Those were the most frustating times for me. I was still going to the gym 5 days a week and finally getting some strength back and doing a real workout, when the pounds started creeping on. 5 lbs 10 15 ok enough, I really need to do something else. I cut down on my snacks (as you can tell by my name that is my downfall) I wasn't hardly eating them anymore, but it didn't matter. I told my dr and he snickered and said oh I put on a few over the holidays too. Then I said no it's not just of few it is 20. He said oh that is because of the Tamoxifen. So now I am more frustrated because I can't go off the stupid stuff. SO I decided forget it. It doesn't matter if I eat healthy or cookies I still gain. (Bad decision)
I kept trying off and on but still no luck the pounds kept piling on. It wasn't until a year after I was off the medicine that I started loosing weight without even trying, but unfortunately that didn't last either. So here I am with 50 (or more) pounds to loose, having trouble with arthitis in most my joints, and sometimes my blood pressure is borderline. I have 2 beautiful graddaughters. The oldest will be 7 Feb 4th and the baby is almost 7 months. I miss not being able to play with them the way I use to. SO I want to loose weight for them and mostly for ME! I feel I am on the right track with sparks and all the wonderful support from you all! SO please spread the word about getting your baseline mammo, and regular mammo's after that. I am soooo thankful that my husband kept pestering me to get mine!!! Good luck and stay strong!!!
Together we CAN do this!!!

Co-leader of Breast Cancer Survivors and Those Who Care



 current weight: 222.8 
236
217.75
199.5
181.25
163
CD2036709 Posts: 42,795
1/25/08 3:19 A

Send Private Message
Reply
Waiting for results is one of the hardest hhings to do. You wonder why they don't get them to you faster when you know they can. Hang in there and I pray its negative like mine have been both times.

CD1898454 Posts: 2,030
1/24/08 7:40 P

Send Private Message
Reply
Della, I know that the process seems to take forever and I hate that you are having to wait for your results. I wish that all facilities would adopt a policy of informing the patient at the time of the exam (for diagnostic mammo's & ultrasounds) what the radiologist recommends, but I know that isn't the case in a lot of facilities. And so you wait. And wonder. And worry.

I can tell you that it is an FDA requirement that for positive studies (Birads 4 or 5 - biopsy recommended) the radiologist must communicate the results to your Doctor within 72 hours. If the facility where you had your mammo done is FDA accredited, they must comply with that.

Have you contacted your Doctor's office yet? If it's been more than 72 hours (3 days) and the results were positive, they should have them. If they don't have them, then probably, unless somebody dropped the ball, they aren't recommending that you have a biopsy.

I hope that helps you some, please let us know when you hear anything. We are here for you, hoping & praying for the best.

CD1590107 Posts: 92
1/23/08 7:39 P

Send Private Message
Reply
DMWILS2007, Have they done any biopsy's? That was what determined what I had and they did it right in the office. Take it one day at a time so it doesn't overwhelm you.

DMWILS2007 Posts: 18
1/23/08 12:57 P

My SparkPage
Send Private Message
Reply
Elaine, my heart goes out to you and I will keep you lifted in prayer. I'm still awaiting the diagnosis, I've been through three mammograms and an ultrasound and am waiting to hear what next. It seems to take forever to get back an answer. The maybe's will get to you quick. Keep your head up Sister.

 current weight: 168.2 
168.2
157.4
146.6
135.8
125
CD1590107 Posts: 92
1/22/08 3:02 P

Send Private Message
Reply
My name is Elaine and I was diagnosed just before Christmas and I am scheduled for surgery February 7, 2008. Without SP I probably would have gained 20 pounds since then but writing down what I eat every day has kept me on track. I have not lost any weight for a while but I have not gained and at this point in time I am happy with that. I am glad you started this team. emoticon

CD1898454 Posts: 2,030
1/19/08 12:02 A

Send Private Message
Reply
Those of you who are survivors have a story and those of us who care would love to hear it!

Please feel free to share your stories with us, you can tell as much or as little as you are comfortable telling. I want this team to be a place of comfort and support for you.

Page: 4 of (4)   « First Page   ‹ Previous Page 2 3 4

Report Innappropriate Post

Other Breast Cancer Survivors and Those Who Care Share Your Breast Cancer Story Posts

Topics:
Last Post:
12/30/2019 11:03:44 PM



Thread URL: https://wfl.sparkpeople.com/myspark/team_messageboard_thread.asp?board=3382x17755x11454853

Review our Community Guidelines