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Soul searching...acceptin
g hearing loss

Monday, July 08, 2013

It will be 2 weeks on Wednesday that I was diagnosed with Otosclerosis. For about a year I was having ear infection symptoms recurring about every 4-6 months in my left ear. My doctor referred me on to the ENT specialist. We didn't really think there was anything he would do for me except maybe watch it closely and prescribe oral meds instead of ear drops. After a hearing test I learned that my hearing in my left ear is only at 90%, nothing major and honestly I thought this was from overuse of my ear, I mean I talk on the phone all day with the headset to my left ear.

After meeting with the ENT doctor he asked me questions and asked if I had a family history of hearing problems. I told the doctor that my mom had surgery to correct her hearing when she was my age, the bones in her ears were growing together. He just knodded and then the bomb dropped. Dr told me that the condition was hereditary (my mom thought, and always told me it wasn't), its a dominant gene and because my mom had this I had a 50/50 chance of getting it also, my kids are carriers of this disorder now, I will slowly lose my hearing until pretty much completely going deaf. I guess the silver lining if there is one is that I can have the surgery my mom did 20 years ago to correct this when my hearing gets bad enough and because the surgery was initially started in the 50's, by the time I need it (in about 10 years) it should be close to perfected.

I'm having a hard time dealing with this. Ever since I was little this has been a fear of mine, and even though my mom told me not to worry I still couldn't get it out of my head. 2 years ago I was cleaning my ears with a q-tip (they felt really plugged) and apparently my left ear was really packed with wax. Anyway when I cleaned it out I just pushed the wax all the way to my ear drum and I lost my hearing for a couple hours. I started freaking out, crying hysterically, went to the Urgent Care (it was a holiday) where they flushed my ears out and I was healed. Hind sight its kind of amusing because I saw my mom lose her hearing and it wasn't sudden, it was gradual over about 7 or 8 years, so I should have known it was wax and not Otosclerosis. I mean duh people don't usually just become deaf in a matter of seconds unless there is trauma to the ear. What I'm getting at though is that ears, hearing, deafness freaks me out.

At first I did a lot of crying, looking back on how hard it was on my mom. I remember having to talk loudly to her, I was 10 and she was in her late 20's. My mom was actually diagnosed when she was 20 and I was about 2. By the time she was late 20's and I was 10-ish she had the surgery to correct her hearing. She hears perfectly fine now, which is comforting. But I also remember the pain she was in after her surgery.

Full circle will be my daughter will more than likely have this disorder when she gets older. I guess Otosclerosis affects women more than men, so my boys will be carriers and if they have daughters they may have this, but my daughter more than likely will, even though its 50/50.

UGH this sucks.
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Member Comments About This Blog Post
    Good luck with the hearing problem. Surgery is not excellent for that problem. I have a hearing loss equal in both ears now. I have 2 hearing aids. It is probably from little blood vessels being blocked and not getting enough nutrients and oxygen to the nerves there.

    Keep on top of it. It is worth getting it taken care of when the time comes.

    2893 days ago
  • no profile photo CD13074531
    Ah. So sad! I lost most of my hearing through a medication in 1984. I can wear hearing aids, so it is MUCH better than your situation.

    I am glad that there is a solution for your situation, though! Best wishes to you, your children, and further descendants.

    2907 days ago
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