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Migraines Really Suck!

Tuesday, September 10, 2013

I am feeling quite bummed today! I saw a new neurologist in June about my migraines and he said he wanted me to stop the medication that I had been taking for a year and a half because it was dangerous. Well, I had already committed to watching 3 children for the summer and then working for a friend for 2 weeks while she went to Germany, so I continued taking my medicine to get through the summer. I emailed my new doctor today and got a response saying that I MUST stop this medicine no matter how miserable it makes me because it is DANGEROUS (emphasis his).
I am so bummed, I keep crying when ever I think about giving up the life that I was just getting back and going back to spending everyday in bed in excruciating pain and unable to function. I know I will not be able to exercise at all and when I am in that kind of pain I don't feel like shopping or cooking so I know I will resort to what ever is easy to grab when I do feel like eating.
I am trying to not totally flip out until I find out when I can get another appointment and see what if any alternatives they offer me. But, I am already considering going back to my old doctor and paying out of pocket which will be extremely expensive since we changed insurance and they will not pay for me to see my old doctor.
I am so afraid that the 60 pounds that I have lost this year will be extremely compromised if I wind up nonfunctional again. I wish that I could say that I will be able to turn to the friends that I have made here on Sparkpeople, but I know that if I wind up as sick as I was before I was put on this medicine that I will not feel like living much less getting on the computer everyday.
I know there are other people on Sparkpeople that deal with chronic pain so they may be able to understand when I say that I don't want to go back to praying to die rather than having to deal with the pain. The only thing that makes me soldier on is my 5 year old grandson, but when I am constantly sick, in pain, and unable to interact with him it doesn't even seem to matter whether I am here or not.
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Member Comments About This Blog Post
  • PCOH051610

    I'm not sure how I stumbled across your blog but it is funny because just yesterday I had read a blog about somebody in your situation who finally stumbled across what was causing her migraines after years of suffering.

    My mom used to get migraines all of the time and the doctors told her that if they didn't leave with menopause she would always have them. Bottom line is she still has them at age 73.

    I get them occassionally so I can't imagine how you are dealing with them on a daily basis. I would suggest you reach your doctor and ask a) what is it about the medication that is dangerous b) what alternatives are there and c) what are his suggestions on how you are supposed to go about day to day life with the migraines. Also, could you ask your pharmacist if they have some suggestions? Sometimes pharmacies can compound ingredients to remove the dangerous ingredients or at least offer some suggestions to bring to your doctor.


    2798 days ago
    Check out the meds on the internet. My wife took a shot, the pill dose did not work as the shot worked. Over 20+ years she has taken them and she is going strong. She did network with other sufferers and there are many meds out there.
    2805 days ago
    I think you should do more research,i believe you will be okay too!
    2805 days ago
  • no profile photo CD13423552
    I do not know what you are taking, but my daughter was having severe migraines this past year and could not function. She takes a low dose of Depakote for her migraines as a preventative medication and rarely gets a migraine. You need to do some research and talk to your neurologist about options. Does your neurologist specialize in migraines? If not, maybe find someone who does. Best of luck!

    2806 days ago
    I agree with FUNLOVEN. Arm yourself with knowledge! Don't give up. I don't have migraines but I do have Hashimoto's (an autoimmune disease) which came close to destroying my life until I started doing some research and learning about what my options are and what I could do. Good luck. Take care. emoticon emoticon emoticon
    2806 days ago
    I don't get migraines, but as a nurse I have to wonder why that doctor didn't give you the alternatives in June? There are plenty of other medications to try so why did he not start you on something new/

    If you have doubts that the medication is dangerous, you don't say what it is, talk with your local pharmacist about it. They are a wonderful source of info and talking to them is free! Ask your pharmacist if the med is considered any more dangerous than other migraine medications. Get a print out of the medication's side effects. Arm yourself with knowledge so you can make a good, sound decision about your health.
    2806 days ago
    I understand exactly where you are coming from in terms of the migraines. I have them chronically where they last for days and now my 7 year old daughter has them too. My doctor didn't take her complaints seriously because he said "well mom has them, so she has them" basically saying she is faking it. She almost did not pass 1st grade because she missed so much school due to these headaches. She is NOT faking. It makes me SO angry when I hear crap like that...okay, I got off topic, sorry. I would email the doctor again and ask what alternative they suggest because you cannot function without the medication. PERIOD.
    2806 days ago
  • MAJONES1225
    I know just how you feel. I suffer with them too. Feel better
    2806 days ago
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