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Life And The Crap It Throws At You Literraly!

Sunday, May 03, 2020

Yep that's right had a lot of crap thrown at me the last year.

My hubby as some of you know from the RV Group I'm a part of has been sick. He was sick when we went to Branson, MO and didn't partake in most activities. He had been sick before but had seemed to recover. After the trip it just got worse. They say it is Ulcerative Colitis, but I don't know if they are really sure, all I know is for over a year he has had the problem. It got so bad he was in depends cause the flow could not be stopped. He lost 45 pounds in 5 weeks. Finally they had him go to our ER, which is all we have now, they sent him to the Parson's Hospital, about 35 miles away and the fun began. He spent a week there with them not knowing what to do, of course they would not fully admit this, tried all kinds of things, talked about removing the whole colon, that's when I got involved and threw a hissy fit. So they moved him to Wesley Medical Center in Wichita. Now he's a veteran which in some ways can be good or bad. The regular hospitals are afraid to do anything without permission, and the Veterans Hospital in Wichita could not take him because of his condition do to the fact they were in the middle of redoing the area he needed to be in, so they gave permission for Wesley. Even with permission it's an uphill battle. While there he was in ICU for a couple days because they thought he had a heart problem, to be told by the heart specialist they were all full of what was coming out of him and get him back in a regular room. They wanted to put him on Humara, but according to them could not get permission. When he told me that I said we got a special medical delivery at the house and that's what we got, so when they learned that, after spending a month in Wesley, was sent home in horrible condition, with a walker, a truck load of depends, and a car load of medication. Then he couldn't start the treatment for 3 weeks after dismissal because they were waiting on results of his blood test. Really?! They were making sure he didn't have TBl. Again Really! you couldn't figure that out while he spent 4 weeks in your establishment? We are just grateful he was released before all this other crap started going around.

So that's my reason for being away in a nut shell. Not looking for sympathy just letting you know.

Now for the cheerful news. We finally bought a camper, but of course we can't really go anywhere because nothing is open yet. If we could get it in our backyard, have to move some fence for that, we would camp out here. LOL!! As promised here are pictures.

Joshua trying out the top bunk.

It has a really nice sized bathroom.

A little camper warming gift from a friend.

Joshua's shiny red forehead after a 2 hour bike ride.

Joshua's new toy.

So as you can see life isn't all bad.

I hope all of you and your families are healthy. Stay strong and I'll try to be here on a more regular basis.
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Member Comments About This Blog Post
    I am so sorry to hear about Mike and all those horrible hospital issues. I hope he is feeling better and continues to improve. Love your trailer it will be a great way to get away and make some memories. I'm sure Joshua is loving his new toy.

    Take care and keep
    371 days ago
    2020 is going down as the worst year for everyone
    371 days ago
    I had no idea of the struggles your husband has been dealing with. I sure hope he is doing better now. You need to update us more regularly. I will add hime to my prayers.

    And you know how happy I am that you found the trailer you love and have purchased it. Now I hope you will be able to get out and enjoy it this summer. I am hoping your will be at our next rally!

    Joshua has wanted his bike for a long time. I remember his talk about it at our last rally. I am happy for him and wish him nothing but safe travels and great memories!
    372 days ago
    Bummer! I admire your positive attitude!
    373 days ago
    I am so sorry about all the issues. My son has similar issues but fortunately not as bad. However he has been to a dozen specialists over the past 10 years. He may or may not have ulcerative colitis, his celiac disease, pernicious anemia, fatty liver, and about a million other things that require testing only to have them come back inconclusive. He is now self treating with probiotics, more plant based foods, Pepto and handfuls of anti-diarhea meds. He has had multiple colonoscopies, endoscapies , etc. It really limits where he goes and what he can do.

    Your husband and you both have my deepest sympathies and prayers for a REAL answer!
    373 days ago
  • no profile photo CD1904002
    Wow, you two have been through so much. I feel your frustration and hope that it all gets figured out and he starts feeling better. Congrats on the camper - it looks like fun! Hopefully, you get to use it sooner rather than later! Hugs!

    373 days ago
    Love your camper but sorry about the runaround you got.
    373 days ago
    Hello So sorry to read about your DH . I hope he finds a answers for his health problem, as I do understand I have UC since I was 12 not as bad as he has it a very very mild case but do take Asacol 2 pills of 400mgeach 3xs a day for it and it helps alot .Sending prayers

    Happy you got a Trailer it looks beautiful love the outside colors lucky you have a floor register in the bathroom ours doesn't and it gets a bit chilly in there.

    Joshua's new toy is nice also be careful on it .

    It was nice to hear from you again talk later stay safe

    373 days ago
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