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Another Health update for timeline purposes

Wednesday, July 08, 2020

Granddaughter had her MRI. There has been no more bleeding from the bubble on the vessel in her brain, but there is some brain damage. Too early to tell much. No one is pushing her to do anything that causes much anxiety including school as they don't want to set that bubble off again or any of the other bubbles on the AVM. Now we wait to hear from Gamma procedure doctor. Hoping sooner than later. We need to get that AVM out of there so she can go back to a normal life.

I received a tens unit last week just in time to go off all blood thinner type medications for the epidural and then also twist and pop something in my lower back. It has been a super painful week spent mostly icing and using the TENS unit to keep from wimpering. The good news is that the epidural seems to be working immediately. Not sure if it is the novocaine or steroid, but I feel like a new person. Kind of like the first spring day after a long winter.

I did contact the nuerosurgeon about the surgery and they still have me on hold. This epidural was the temporary fix. I am truly grateful for the wonderful team at Kaiser who took such good care of me.
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Member Comments About This Blog Post
  • WHITECAT19

    Continuing prayers for all of you!
    184 days ago
  • MRSCLASSICSCRAZ
    Sorry to hear about all your & your family troubles. It's great that you're keeping up with SP & your health goals with all these issues going on.

    I stopped by to Thank you for commenting on my question on the Official Better Sleep Challenge.

    Sending Positive, Healing thoughts to you & your family

    237 days ago
  • ALIHIKES
    So sorry for your granddaughter and for you. Praying for your recovery.
    338 days ago
  • JANS-JOURNEY
    emoticon you had a rough week ~ prayers for both of you
    339 days ago
  • AAAACK
    I'm sorry you've had such a painful week, but glad the epi helped! And I continue to hope amazing things for your granddaughter.
    339 days ago
  • LENNIEMIKE
    Cathy -- Epidurals can be wonderful if they stay in place. I had one surgery with that type of "sedation". Praying for your grand-daughter and the necessary procedure to help her. Our 15 y.o. grand-daughter is followed by St. Jude's and one of the university hospitals in Florida (Orlando area). Her seizures have caused brain damage. Her problem is a tumor sitting next to the motor center in her brain. There haven't been any new studies about shrinking the tumor or helping her surgically. If she gets very tired/stressed, her seizures come more often. We had several exposures to radiation in all our moves over the years and we wonder if that is a factor in our son's melanoma problems and my husband's lung cancer. I have had early-stage cervical cancer, my mother had breast cancer, and my aunt had lung cancer. Sometimes the "history" goes back several generations (my great grandfather had a brain tumor). My husband got his latest CT Scan results -- no change in the tumors (both lungs) over the last three months. He will continue with the chemotherapy until it no longer helps -- there is no "cure". We just try to keep going and not dwell on our situation. A good day is no pain, no breathing problems, no digestive distress, and less fatigue. Due to the virus problems, I can't go to the cancer center with my spouse anymore. I miss talking to the other people and sharing stories...
    339 days ago
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