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10/13/09 8:43 P

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Hi Nurse Mel, it's kind of ironic but I've never gone back to my doc! After my sleep study (which was done in 1 night with the CPAP--which cost me over $1500 thanks to my wonderful health insurance deductible!) I got a call from the DME (while I was on vacation) saying that my doc's office had called in an Rx for a CPAP! As far as I know there was only a Dr. who read the sleep study test. I did ask for a copy of the study that I have for my files. I still--after 5 months--have never actually spoken to my doc (she's actually a Nurse Practitioner). The Respiratory Therapist at the DME is excellent! If I have any problems I call and talk to her and she gives great advice/info.

I know that each situation is different so you may want to sit down with your Doc to discuss the results of the sleep study. From what I understand most Doc's are over scheduled and only seeing patients who are looking for immediate consultations. You might see if you can schedule a visit sooner if it means getting your CPAP machine. It never hurts to ask. Let us know how you are doing. emoticon

Peg

--If you always do what you always did
You'll always get what you always got!


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NURSEMEL404's Photo NURSEMEL404 SparkPoints: (30,548)
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10/13/09 5:44 P

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i go for my second sleep study tomorrow night this time with the c-pap but i dont go back to the doctor until december is this normal?

slowly but surely wins the race-Aesop
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10/12/09 12:45 A

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Marlene,

I just read this forum tonight, & I see you asked a question about a week ago about your mask leaking. From what I know about sleep apnea & using our machines, etc., you could still have episodes if your mask is leaking a lot - but the one thing you have is low oxygen saturation in your blood. That's your Pulse Ox - what they measure when they put that little clamp like thing on your finger. Your doc can order an overnight pulse ox to be done in your home if that's a concern.

I've lost track - have you had your machine for more than 30 days? If not, you should be able to get a different mask if the leakage is a big problem for you. And, since they can't give your mask to anyone else, they probably won't ask for the current one back if you do get a new one. That way, if you decide the new one isn't any better, you can always go back.

Also, in case you don't know this, you can get a new mask every 6 months (tubing, too). I would suggest that you get everything you're allowed at that time, because you never know when something might break. Not a common occurrence, but it happens enough to be prepared with a backup!

Hope you get things squared away soon - there's nothing like getting a good night's sleep!

Love,

Kerolyn
emoticon

Oops, I just re-read this. What I MEANT to say is that you MAY be having low oxygen saturation in your blood, Marlene - if you're still sleepy all the time, that may be the cause. I wanted to post this where everyone can read it, since yo may have already seen what sounded like me saying this is definite, which can't be told without having an overnight pulse ox test. Sorry!

Edited by: SING4MYFOOD at: 10/13/2009 (20:45)
Kerolyn
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When I feel like God is far away, I have to admit - I've moved, not God! He will never leave me, because I am His own.


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10/9/09 7:07 P

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Glad to hear that you are doing better each night. emoticon

So much good information on the site--lots to absorb.

It all does get better. I was just diagnosed in May and feel more comfortable now that I have used the CPAP for a while.

Peg

--If you always do what you always did
You'll always get what you always got!


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10/7/09 11:08 A

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Peg
Thanks for your all your help. Your right, knowledge is power. Im going to be doing lots of research! every night seems to be getting a little easier. I loosend my mask and that did help with my sore nose. Im glad things are going good for you. best of luck.
Lori

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10/6/09 8:34 P

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Hi Lori, I'm glad you found some good information from the site. The more we can learn about sleep apnea the better off we are! emoticon

Yes, the higher the pressure means the more apnea episodes a person had during their sleep study. You may have noticed on the cpaptalk site that some people have a pressure of 20! That's a lot of pressure! I'm glad I'm only at 8! emoticon

My husband is glad he doesn't have to wear his ear plugs anymore to block out my snoring! I feel more rested. Still have good nights and not so good nights, but glad I don't wake myself up either!

Hang in there and read as much as you can. Knowledge is POWER!

Peg

--If you always do what you always did
You'll always get what you always got!


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10/6/09 3:57 P

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Hi Peg

I found out the name of my mask. Its the comfort gel nasal mask. my pressure is set at 9. Does the higher the number mean you have a more severe case of sleep apnea? I got some good advice from the cpaptalk site. I am going to try to loosen my mask a little bit first and if that doesnt work Im going to try putting moleskin or a small bandage on the bridge of my nose. Hope this helps out anyone who is having the same problem.
Lori

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10/5/09 10:37 P

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Hi Lori, I'm glad the websites are working for you.

I think I remember from the cpaptalk.com website that some of the users were talking about the soreness of the mask. Usually it's because the mask may not be the right size. You might check with your Respiratory Therapist and ask to be re-measured.
What is your pressure set at? Mine is low at 8 and since I use a nasal pillow mask as opposed to a nasal mask I can't give you reliable info on the sore nose problem.

You can do a search on the site for "sore nose" and see what others have discovered to cope with the soreness.

You can also do a search for your type of mask and see if someone has posted a "fix" for your type of problem.

Good luck! And be sure to post what you've found so that others can gain by what you've learned.

Peg

--If you always do what you always did
You'll always get what you always got!


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10/5/09 12:00 P

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Hi calicokate
thanks for the great websites they were very helpful. last night was the first night that I did ok sleeping but I need to try to go to bed earlier. I have a red line on my nose between my eyes. Its sore and it wont go away. Is this normal and something I just need to live with? Have a great day!
Lori

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BLESSEDINBAMA's Photo BLESSEDINBAMA Posts: 1,251
10/3/09 9:56 P

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Cathy, you're right--it is a large mask! I have just begun to try sleeping on my side. I have nightmares when I sleep on my back and I've always been a side sleeper, but afraid to try it with the mask. I slept mostly on my side last night and did okay. However, I found that I slept on the edge of the pillow to accommodate the mask. I'm thinking of changing to a smaller mask just so I can sleep on my side. I've gotten used to having the mask on, but I still wake up several times a night with a leak at the top. Since I'm so new to this, I'm not sure how much of a leak is acceptable. Does that mean that I may still be having episodes of apnea?

Marlene

"But those who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."
Isaiah 40:31


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10/3/09 9:40 P

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Hi Lori. The nasal pillow mask can be found here: www.myresmed.com/MyResMedUS/page.do?
ty
pe=product&requestedPage=0a2839006efR>8a110VgnVCMServerc60210ac____&cat=Na
sa
l%20Pillows


I really love mine! It is very lightweight to wear. So you might check with your doc to see if you can change your mask. The right mask makes a BIG difference with your compliance with the CPAP therapy.

From what I understand in regard to the medical equpiment supplier, you can change masks if the one you have is not right for you.

A really good website for newbies and veteran sleep apnea patients is www.cpaptalk.com/viewtopic/t35702/Wh
er
e-A-CPAP-Newbie-Should-Start.html


You can do a Google search for other sleep apnea sites. The more info you find, the better you will understand the importance of dealing with this lifestyle change.

Peg

--If you always do what you always did
You'll always get what you always got!


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10/3/09 12:03 A

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Hi Calicokate
im not sure what kind of mask i have except that it only covers my nose. Its just the one they sent me home from the study with. What is a nasal pillow? I will definitely try the fleece idea. I do keep my room pretty cool so maybe that is the reason. My humidifier was only on 2. Thanks for welcoming me to the team.
Lori

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10/2/09 8:46 P

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Hi TINK401 and emoticon to the team!

What type of mask do you have?

I know when I had the "drowning" feeling I ended up finding out that I had turned the humidifier dial all the way up! So that should be the first thing you check. I guess I hit it when I put the tank bank in the unit.

Another thing that can cause "rainout" as it's technically called is that the hose has warm moist air on the inside and if the outside room air is cold, it will cause condensation to build up in the mask itself.

You can buy some fleece from the fabric store and make a tube to wrap around the tubing that comes from the unit. That makes a huge difference!

I love my Resmed Swift LT for Her mask. It is a nasal pillow type--not a full face mask so it is less intrusive--at least I think so. I've not had many problems with it.

Of course, since this is all new to you, the best advice I can give you is to stay with it since the therapy will be saving your life!

Please post your questions and this wonderful team will do its best to answer them! emoticon

Peg

--If you always do what you always did
You'll always get what you always got!


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10/2/09 12:19 P

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Hi everyone
I am new to this team and actually used my mask for the first time last night. It was not a good night. I kept waking up with my mask twisted and one time i even had a bunch of water in my nose mask and had to dump it out. I felt like i was snorkling! lol hopefully it will go better tonight. What does it mean to have so much water in your mask? Im using the mask but I havent even heard from my doctor yet. I would have thought my doctor would have called me to explain things to me. I hear there are 2 different kinds and im not even sure what kind i have. Any advice or info on this subject would be really helpful to me. Thanks and I hope everyone sleeps well tonight!


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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
9/29/09 11:40 P

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Hurray for a good nights sleep!

That is one large mask. I see the value in that it does not push against the sinuses or the bridge of the nose. Can you sleep on your side?

Cathy
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BLESSEDINBAMA's Photo BLESSEDINBAMA Posts: 1,251
9/28/09 11:04 P

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Cathy, the mask is a FITLIFE total face mask. I finally got it adjusted last night so that it felt comfortable and I actually got some sleep!

Marlene

"But those who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."
Isaiah 40:31


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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
9/28/09 12:27 A

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emoticon
Hi Marlene,
I am glad you made it here. I am interested in your mask. Next time my insurance will pay for another mask, I want to get a full face mask to get me through allergy season. Do you know the name of your mask?

We can pop over to www.cpap.com and check out the reviews on it. Air leaks can be caused by the straps being either too loose or too tight. It may take you a few weeks to adapt and find the best fit. Of course if the mask is a bad fit to begin with then a different mask is the answer. Time will let you know.

emoticon

Cathy
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BLESSEDINBAMA's Photo BLESSEDINBAMA Posts: 1,251
9/27/09 8:22 P

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Hi, and thanks to Cathy for telling me about this team! I'm newly diagnosed and had my CPAP for less than a week. I have a full face mask that covers the eyes, too, but it's clear so you can see through it and it's softer than most. I'm claustrophobic, but for some reason it was the one that I liked best. I'm having a terrible time sleeping--not because of the mask, but because of leaks. I just can't seem to get it adjusted just right. I'm afraid NOT to wear it though; I stopped breathing 168 times, anywhere from 24-60 times an hour for up to a minute each.

I also have Meniere's Disease and benign positional vertigo, so I'm pretty much just a mess! LOL

I praise God that the sleep apnea was discovered when I couldn't come out of the anesthesia after a recent surgery! My husband has been telling me for two years, but I wouldn't listen to him. God knows how stubborn I am, so He figured out a way to MAKE me get help. Looking forward to getting to know all of you and hope you have some good advice and support while I learn to deal with this thing.

Blessings,
Marlene

Marlene

"But those who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."
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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
9/25/09 11:57 P

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It is not much older than my new machine. You really were blessed.

I would guess the family that gave it to you are all glad it is getting good use by someone who appreciates it.

Cathy
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BIKINIBOUND2010's Photo BIKINIBOUND2010 Posts: 31
9/25/09 9:59 P

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Its a Resperonics... I think its about 3 years old. I love it :)

GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
9/25/09 9:22 P

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emoticon emoticon

I am glad this is going so well for you. You are very creative in the cost savings.

What type of machine did you get?

Cathy
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BIKINIBOUND2010's Photo BIKINIBOUND2010 Posts: 31
9/24/09 12:27 A

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Well I have now been using my machine for about 3 months, and WOW I am SOOOO glad I have it! I went from being tired all the time and maybe getting 2 hours of total sleep a night to sleeping a full 8 hours and having tons of energy! It took me a few days to get use to the nose mask, but it was a piece of cake! You just have to use it no matter what and eventually you will get use to it and using it will become second nature. I have sinus problems and was usually a mouth breather, but I use a nose spray that helps keep my nose clear all night. Again I am so glad I have my machine... now sleep isn't a problem for me :) emoticon

Oh and I almost forgot to mention that a friend of mine had a Cpap machine from when her sister had sleep apnea (she unfortunately passed away a few years ago) and she gave it to me. All I had to get was the mask, tube, and filters. I think I only spent about 100 bucks. I don't have a humidifyer but so far I am perfectly fine. Its an older machine but it works great!

Edited by: BIKINIBOUND2010 at: 9/24/2009 (00:29)
GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
6/6/09 1:16 P

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I looked up titration. It means a sleep study with the mask. The titration is when they adjust the pressure till you are sleeping without apneas.

Bikini,
Check out cpap.com for prices on equipment and for equipment styles. You might also check around and see if there is a used machine that someone would be willing to sell or donate. I almost like my old machine better than my new one.

Cathy
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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
6/6/09 1:07 P

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Welcome Bikini and Becks,
Having no/little insurance is a scary prospect. The masks are frequently hard to get used too, but don't let that discourage you. Just hang in there. It will be worth it. It is often much easier to lose weight when you are getting a good nights sleep.

I have heard the term Titration before but cannot remember what it means. I will go to cpap.com and check it out.

Cathy
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6/6/09 6:59 A

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Hi everyone! I've been on Spark about three months now. During that time I had my first sleep study, and the doc diagnosed me with "moderate sleep apnea and restless leg syndrome." How I got that I don't know because I think I slept maybe 3 hours and most of that was broken up.
I don't understand too much yet besides I always tired and overweight and that is why the doc had me tested.
I go back on Wednesday for another study while I’m on titration? Whatever that means... I'm just happy they gave me a sleeping pill for this one.

Quotes:
“Those who believe they can do something are probably right – and so are those who believe they can’t.”

“To be nobody but yourself--in a world which is doing its best, night and day, to make you everybody else-- means to fight the hardest battle which any human being can fight; and never stop fighting” - EE Cummings, poet


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BIKINIBOUND2010's Photo BIKINIBOUND2010 Posts: 31
6/4/09 12:56 A

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Hello! I was just diagnosed with Apnea today... I had my sleep study done last night. What a horrible night! I slept a total of 2 1/2 hours lol. It was enought for them to see that I do stop breathing several times.

I'm extremely nervous about whats to come. I'm afraid it isnt going to work. I'm also nervous about the fact I am doing this without any insurance. My job has horrible coverage... I didnt feel like spending more than half of my paycheck on medical insurance... altho now maybe I should have.

Anyway, I am glad there is a SparkTeam page dedicated to Sleep Apnea! I just hope I dont have it forever ;p

GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
5/29/09 1:08 P

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emoticon
Hot Flashes....Just pretend your basking on a sunny beach in the Meditteranean.

emoticon

Cathy
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CALICOKATE's Photo CALICOKATE SparkPoints: (0)
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5/27/09 10:26 P

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Last night was SO MUCH BETTER! I slept really well.

I have at least used the mask/CPAP every night, so I am in compliance. Some nights have been better than others. Last night I got about 7 hours of sleep.

Besides being diagnosed with OSA I've also been dealing with being post menopausal. WOW! How many health problems have been associated with being menopausal and a myriad of other health problems!

At least I can hope that the heart palpitations, night sweats, weight gain, etc. can now be dealt with and I can be on the road to a healthy lifestyle.

Peg

--If you always do what you always did
You'll always get what you always got!


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MAUREEN19640824's Photo MAUREEN19640824 Posts: 10,340
5/26/09 10:15 A

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Thanks Cathy!

Joy is the best makeup.
-Anne Lamott

My goal in life is to be as good of a person my dog already thinks I am.
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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
5/25/09 11:08 P

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Hi Maureen,
You can do this!

Cathy
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MAUREEN19640824's Photo MAUREEN19640824 Posts: 10,340
5/25/09 8:59 P

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I am back! Going to try the mask go round again.

Joy is the best makeup.
-Anne Lamott

My goal in life is to be as good of a person my dog already thinks I am.
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GRAMMACATHY's Photo GRAMMACATHY Posts: 25,955
5/25/09 6:06 P

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I kept ripping the mask off and putting it back on several times a night for about six months. Just keep putting it back on. Don't sleep without it. You will get used to it faster. I love the hum and I am a little jealous of your auto flex. I sure could have stood cranking up the pressure last night. I also liked the idea of using an ace bandage for a chin strap.

Cathy
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5/23/09 8:44 P

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3rd night much better! As I've read on several websites it may take several weeks to get used to the CPAP therapy. I am one of those people. Even tho I'm one of those that wants instant gratification! Since we are all different I know that I just need to stick with it and know that I'm improving my health. emoticon

Peg

--If you always do what you always did
You'll always get what you always got!


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5/22/09 10:38 P

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Last night was a little better but I kept waking up when my mouth opened up and I was totally dry. I read on another site about using an Ace bandage to make a chin strip. I will try that tonight and hope I will get a better night's sleep.

The Resp. Therapist at the DME was amazed that I had been dreaming before being diagnosed with OSA. According to my sleep report I had many apneas both regular and central my oxygen level was under 80% and usually a person doesn't enter REM sleep. What can I say--not a usual OSA patient? I don't have high blood pressure, don't get so sleepy during the day that I nearly fall asleep while driving or while sitting at my computer at work.

My pressure is only 8 and I know from reading that some are at 20 or above!

I've always been healthy so this is quite a surprise! emoticon

Hopefully I will start sleeping and feeling more energetic soon.

Edited by: CALICOKATE at: 5/23/2009 (20:45)
Peg

--If you always do what you always did
You'll always get what you always got!


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ABNER1's Photo ABNER1 Posts: 3,499
5/22/09 8:56 P

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don't worry you'll get the hang of it. the biggest threat to your health is taking it off.

determined in tn.


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DTILLER1147's Photo DTILLER1147 SparkPoints: (0)
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5/21/09 10:18 A

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Hang in there, Do not worry about the leaks right now just learn to get use to it on your face.Taking it off is the biggest leak ever!! emoticon Do not give up this WILL help you.

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CALICOKATE's Photo CALICOKATE SparkPoints: (0)
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5/21/09 8:17 A

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Well, 1st night didn't go so well--didn't really sleep. Was worried about mask leaks, listening to the machine and the exhaust air.

My sleep study indicated that I shouldn't take sleeping meds or drink alcohol close to bedtime. Although it might have helped me get more than 3 hours sleep! emoticon

I have the nasal pillow mask and it seemed to shift when I would turn over to either my back or other side. I finally took it off at 4:30 and slept until my alarm rang at 5:30.

Hopefully, tonight will be better.

Peg

--If you always do what you always did
You'll always get what you always got!


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OVERWEIGHT's Photo OVERWEIGHT SparkPoints: (39,423)
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5/21/09 12:13 A

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I have been on a cpack for over a year, I have to take pain meds and a sleepiing pill at nights. I think that is the way I got use to it.

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Happiness is celebrating the little things.
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The Lord says when 2 or more are gathered in My Name, there I will be also!!!


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DEE107's Photo DEE107 SparkPoints: (1,569,428)
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5/20/09 11:23 P

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I am on cpap for just a few months and doing ok, took awhile to get use to it

DEE Southern New Jersey

SP Class of Oct 12-18 2008.
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God is Good all the time. All the time GOD is good.

Let your life be like Angel Food Cake...sweet and Light---




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CALICOKATE's Photo CALICOKATE SparkPoints: (0)
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5/20/09 11:02 P

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Hi Everyone, had my sleep study on April 30th--what an awful night!

I've been trying to read and research as much as possible. I've been on Spark People for almost 2 years, but found this board since I now have this health issue to deal with and hope I can call on your wisdom and experience when needed.

Anyway, I picked up my APAP machine today. It's a Respironics with CFlex and heated humidifier. I just hope I don't have a hard time getting used to this whole process.

I'm looking forward to hearing from you all and any suggestions or info you can provide. emoticon

Peg

--If you always do what you always did
You'll always get what you always got!


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