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SLIMMERKIWI's Photo SLIMMERKIWI Posts: 35,545
3/2/13 5:46 P

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My response was put on another thread. Good luck with it.

Kris

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I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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GENEVIE5's Photo GENEVIE5 Posts: 3,181
3/2/13 6:37 A

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I just found out I will be on Remicade. Does anyone have any advice/ warnings/ side-effects experiences?

Thanks so much!

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SLIMMERKIWI's Photo SLIMMERKIWI Posts: 35,545
2/7/13 12:00 A

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My hubby had 3 strictures for which he had bowel surgery (18" bowel removed) in August. For the year prior to the surgery (which he couldn't have before because he was on meds for a year re a heart attack.) He had to have a very low residue diet too. The Dietician said white bread, and pureed cooked veges, and tender meat were fine. He had loads of white bread, but I made sure that the one I was buying had a lower calorie/fat content than the others. I would give him a lot of soups that had been pureed, but made sure that there was a little meat and/or gravy in there for the added protein. He could have a little peanut butter, but it had to be the smooth variety. The spreads for his sandwiches were things like jelly-type jams, meat paste, marmite or smoked fish in white sauce. He had these for his snacks, too. A cold baked potato (minus the skin) is also a good snack.

Good luck on finding what works best for you!
Kris

You may find it beneficial to ask for a referral to a Dietician so that your specific needs are taken into account.

Co-Moderator Dealing with Depression
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ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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CAPTHAMMER's Photo CAPTHAMMER Posts: 4,174
2/6/13 6:27 P

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Absolutely, Tracey, you need to stay within your dietary guidelines. Is it the fruit fiber or the amount of sugar that's the problem? 100% fruit popsicles are a good treat (if you don't think about the fact that we're in the middle of winter). Turkey jerkey is high protein, low fat but crazy high in sodium. Pretty much everything has their trade-offs. As with everything about Crohn's, you just need to find what works for you.
emoticon And your case, stock your kitchen with it.

Tomi from Vancouver USA (WA)
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You can't turn back the clock. But you can wind it up again.
(Bonnie Prudden)


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CD12510850 Posts: 56
2/6/13 10:49 A

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CAPTHAMMER's Photo CAPTHAMMER Posts: 4,174
2/6/13 10:11 A

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Hi, Tracey! Welcome to the team.

Ah the Prednisone munchies. The aftermath of which is what brought me to SparkPeople in the first place.

I remember when they were initially prescribed for me, the nurse told me about his wife waking him up while he was sleep-eating standing at the refrigerator. The urges can seriously be that strong.

Kris is right. Fill your fridge with carrots and celery (crunch is good). Having homemade Greek yogurt dip makes it more of a treat. Give yourself healthy, low cal, tasty options.

The drug seems to hit everyone differently. Like Kris's hubby, my mom went on it and lost weight. Go figure.

Good luck to you. And remember, rice cakes are our friend.

--Tomi

Tomi from Vancouver USA (WA)
BLC 20 --Powerful Prism Panthers

You can't turn back the clock. But you can wind it up again.
(Bonnie Prudden)


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SLIMMERKIWI's Photo SLIMMERKIWI Posts: 35,545
2/5/13 4:22 P

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You could have a supply of food that isn't energy dense, on hand to cover when you feel you really NEED to eat. Eating smaller meals and allowing yourself an extra snack or two might help, too. Another trick is to eat more slowly when you eat.

Have some hobbies on hand that you would enjoy, and that will occupy your brain and hands. Things like jig-saw puzzles, knitting/crocheting or going out for a walk to enjoy the sights. You might like to get onto SP and read the articles. I know when I first joined SP and for the first year or so, I spent AGES in the Healthy Lifestyle section going from one article to the next. I really enjoyed it, and it stopped me thinking about food. I even forgot about my meal times - LOL!

If you have a Mall handy you might find that going to the Mall (but keeping away from the Food Court area) helps, and you could get in some exercise at the same time and browsing around the shops. Just make sure that you know where all the loos are.

My hubby was very lucky in that the many times he had to go onto Prednisone, he never had any alteration to his eating habits, and his weight stayed pretty much the same.

Good luck,
Kris



Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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CD12510850 Posts: 56
2/5/13 11:26 A

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